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Old 02-05-2023, 05:21 PM   #41
long road
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I am unsettled mentally. Something is not quite right inside my head is a screaming static.




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Old 02-05-2023, 05:22 PM   #42
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Have you felt like this before? Did anything trigger it? I'm sorry you're in such a distressing place.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 02-05-2023, 05:33 PM   #43
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I get this kind of thing sometimes. They have suggested it's pseudo psychosis as it comes from inside / when it comes from outside I have insight. I.e. it feels real but I know it can't be real. I take antipsychotics but on a low dose now because of prolactin levels.

I think its a stress thing thinking bout it right now like me running out of capacity to deal with things and bucket overflowing.




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Old 02-05-2023, 09:38 PM   #44
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Do you want to talk about the things that are going on?

In my experience, when things like what you are describing happen, it is stress related and I need to slow down and take a breath. Not always easy, I know. Is your partner aware of how you’ve been feeling? I don’t know you’re situation very well, but is it possible to plan something nice with him sometime soon?

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Old 02-05-2023, 09:55 PM   #45
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It's just little things all adding up, plus some trauma stuff that's rearing it's head again. With my FND I have a pretty full capacity bucket most of the time. And I think it's not just mental stuff but also pain and.fatigue. Just overwhelmed a bit. Trying to chill down and it works for a little bit but doesn't stay that way. Just want my head to be quiet.

We do our best to do fun things. But I don't always have energy to do much. We are going to try and go to garden centre tomorrow to get some plants for our planter out front. I am usually pretty good at communicating with him these days but he was supporting his friend earlier so I kept quiet. He knows I am struggling but not quite how me tal it is today


Last edited by long road : 02-05-2023 at 09:57 PM. Reason: Adding detail



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Old 03-05-2023, 12:41 PM   #46
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I get the wantimg your head to be quiet stuff. Does anything help with that? Sometimes I find that listening to music can be helpful for that, because then I’m listening to something specific rather than my head/general life noises.

I’m glad you do plan nice things :). I definitely think its ok to still talk to your partner even though he was also talking to his friend. Are you feeling any better today?

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Old 03-05-2023, 12:45 PM   #47
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I hope you made it safely through yesterday and had some peace. Are things any better today?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-05-2023, 01:04 PM   #48
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I am doing a bit better. On the edge of falling into chaos but about managing to keep it together and not get overwhelmed. Just lay down and listened to music for a bit. When my head is chaos static I can't listen too music the static is so loud that trying to drown it out makes my head hurt.




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Old 03-05-2023, 01:15 PM   #49
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I'm glad you're a bit better and hope things are kind to you to not make you get overwhelmed. Are there ways to prevent the overwhelm when you feel it coming or do you not feel it coming?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-05-2023, 01:22 PM   #50
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Trying to pace myself is a big one, so getting rests and meditations in. Not sure how to adrees some of the mental stuff that is filling my capacity bucket right now, but managing day to day FND stress /symptoms makes it easier




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Old 03-05-2023, 01:27 PM   #51
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Are you getting any support for the mental stuff?

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Old 03-05-2023, 01:32 PM   #52
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Not really. Had therapy for a year and a half but that finished in November 2022. I am hopefully getting some EDMR for some of the trauma but we agreed that focusing on mental stuff and physical stuff at the same time would be too much for me. So concentrating on neuro rehab work at the moment.

I am not entirely sure what but of mental stuff is bothering me right now, think I am processing the emotion from some stuff. I am expressing some but not enough and I do miss therapy at times.




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Old 03-05-2023, 01:47 PM   #53
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I can relate to missing therapy. I know it's hard to do on your own but did you learn anything in therapy that you could do yourself? Would your partner help out?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-05-2023, 02:06 PM   #54
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I am better at handling emotional stuff than before therapy and in a better place and it helped with FND symptoms. Just got some stuff I probably still need to process at some point and I can find it hard to express my emotions (although getting better at it) and having that designated hour a week was great. My partner does his best to help out but I can be quite resistant to help at times especially him suggesting techniques as by that point I usually know they would help but am struggling to make myself do them.




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Old 03-05-2023, 02:17 PM   #55
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Do you know why you can't make yourself do the techniques? Are they hard to do or are you just allowing things to stay difficult for some reason such as you think you don't deserve to feel better.? I know a lot of the time I learn of things that might be helpful but don't allow myself to do them.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-05-2023, 02:24 PM   #56
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It's a case of whether I get in early enough. Too far into the distress cycle and often trying techniques seems far to much effort /brain power or like it won't help so what's the point sort of thing. As least the ones like grounding and meditation. Although if I am actively dissociating and my partner talks me through grounding then I am generally more receptive as I am either calmer with the dissociation or desperate to find a way out if the fog.




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Old 03-05-2023, 04:44 PM   #57
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Do you get any warning before things start to get difficult?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-05-2023, 06:15 PM   #58
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Quote:
Originally Posted by one_step_closer View Post
You're doing well, Dawn. I hope you recognise that. I hope things settle soon.
Thanks Lindsay. I have had a more peaceful day today. I feel more calm in my flat. I am making sure that the door is locked more often that I used to. The voices are getting better each day so i guess the olanzapine is having an effect. Or perhaps I am getting better anyway.



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"He who is tired of Weird Al is tired of life." - Homer Simpson
"I hear those voices that will not be drowned"
Sanity is a nasty disease. The world would be a happier place without it. - Rilic
RIP Kat 4th July 1987- 11th June 2013


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Old 03-05-2023, 06:44 PM   #59
one_step_closer
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I'm glad things are gradually getting better for you. I hope it continues this way.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-05-2023, 07:38 PM   #60
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Thanks once again Lindsay. I have yet to harm myself whereas in the past I would have harmed myself by now.



Wannabe CPN : -)
"He who is tired of Weird Al is tired of life." - Homer Simpson
"I hear those voices that will not be drowned"
Sanity is a nasty disease. The world would be a happier place without it. - Rilic
RIP Kat 4th July 1987- 11th June 2013


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