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Old 19-03-2024, 04:07 PM   #581
tamobhuuta
 
Join Date: Jan 2008
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And my SH in there was superficial so that's EUPD. Because people with EUPD never SH badly and other diagnoses only do *eyeroll* sorry, I need to rant and get feedback, or I would use rv.



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Old 19-03-2024, 04:09 PM   #582
not_so_insig
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It's ok to rant as i would be too in your situation.

I don't know what to say that hasn't already been said so I just echo what has been. Plus leaving hugs if wanted.



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Old 19-03-2024, 04:32 PM   #583
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She says that I said at the end of my admission that if I was informal I would go and buy blades. What actually happened was I'd told the nurse I'd had an initial urge to buy blades when Mum suggested they might make me informal but decided I wanted to stay safe and be discharged home and be safe at home. I know the two things sound similar but they are importantly different!



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Old 19-03-2024, 06:15 PM   #584
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I really am very much against doctors dishing out a diagnosis when they've only briefly seen, and spoken to, someone. It seems ridiculous. And a lot of people are given a wrong diagnosis because of that.
I respect you for standing your Ground, Tamo. It's your life and it's you who has to live with whatever consequences a wrong diagnosis might cause. Keep being insistent. It's the only way things will ever change.

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Old 20-03-2024, 11:56 AM   #585
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Thanks Zurg.

I've got an appointment with my CPN at 3pm tomorrow to go through the letter and decide what to do next.



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Old 20-03-2024, 01:12 PM   #586
one_step_closer
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What might your options be for what to do next? Do you need to do anything since you have already had the opinions discounted?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 20-03-2024, 04:25 PM   #587
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I'm not sure tbh! I will ask my CPN tomorrow. I mean, there are downright lies on there that I don't want to leave unchallenged.



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Old 20-03-2024, 04:38 PM   #588
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I tried to challenge what was written in ward notes before and my psychiatrist said what was written was insensitive but they didn't think it could be taken further. I think there isn't a way to 'delete' notes but additional notes can be made next to the previous notes to explain why they are wrong.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 20-03-2024, 04:40 PM   #589
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Maybe I can do that.



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Old 20-03-2024, 07:55 PM   #590
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similar to what others have said, we've never had good luck with challenging things that have been written about us in hospital either. even when they were lies or trying to twist things to fit a diagnosis that did not fit. (obviously different country but still same situation and outcomes)

as long as you can get the EUPD diagnosis removed, maybe have a think about how much time and effort you want to put into dealing with the notes? will trying to get them changed make a difference for you treatment wise? definitely don't think it's wrong to challenge and try to get things fixed! but also agree with the others re being on the pessimistic side here outcome wise.



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Old 21-03-2024, 04:56 PM   #591
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So, I saw my CPN. He said to write up everything I disagree with and it can go in my notes along with the report. He's not going to help! He said to be diplomatic in case the hospital refuse to have me back.



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Old 21-03-2024, 06:27 PM   #592
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yea, unfortunately that's not a surprise. are you okay with that plan or do you still want to try to fight it on your own?



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Old 21-03-2024, 06:37 PM   #593
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That's usually what happens. It doesn't feel fair but everyone including you can only express their opinion and once it's down in writing it can't be taken back.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 21-03-2024, 07:14 PM   #594
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There isn't really another avenue.



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Old 21-03-2024, 07:24 PM   #595
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that really sucks. glad they can at least document your disagreement and put the truth down though.



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Old 02-04-2024, 11:40 AM   #596
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The manager has already got back to me about my other two complaints! I'm too nervous to read them right now.



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Old 02-04-2024, 11:50 AM   #597
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Would it help if someone were to sit with you while you read them? Also there's no rush to read them, your wellbeing comes first.

I think it's so great that you've fought this and made the complaints, it shows a lot of strength and will hopefully help other people too.



'It's an impossible choice ... I'll just have to hope that when I flip the coin it somehow explodes and kills me.'

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Old 02-04-2024, 01:52 PM   #598
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One of my complaints she apologised for and said they were taking action to make sure it didn't happen again.

The other... I complained that in all my ward rounds the psych said I wasn't ill because I wasn't SHing badly to get the implant out. The manager said in her letter that they weren't saying I wasn't ill, but I had EUPD and that's why I wasn't SHing badly/at all. Because people with EUPD only SH superficially??? It seems odd that I was diagnosed emotionally unstable for being unemotional.

I would just leave this but if I do and I end up in need of hospital again this diagnosis will haunt me and effect my treatment. It's ok while I'm in the community with my cpn and psych but no one can guarantee I wont relapse, even if it's years from now.



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Old 02-04-2024, 01:54 PM   #599
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wow that's so incorrect and infuriating. definitely understand why you want to fight it. rightly so.



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