Hey, i've been following you a lot recently. I'm a lurker as i've managed to recover and left RYL but came back to offer help.
Firstly I suggest you read the thread I wrote (not sure how to link to it) its only on pg 1 or 2. Its positive and shows that you can recover.
An angle you may want to consider is the local press. You are one of many people in your area who are ill. I suggest this becuase a friend has been on many local tv shows locally and was also on the one show on bbc1. It may help raise awareness and gives needed press to the struggle not only in diagnosis but in getting the help.
people who are not affected can struggle to understand how you cant do it alone and there is an image that help is there but we avoid it.
Please consider contacting your local newspaper and possible some of the larger ones, maybe the mail is a good one for raising awareness and is more likely to run it without it looking needy and tacky than say the sun.
I just joined the FB group. I wish there was more I could do.
Don't give up hun, you've fought too hard to let go now. They will see sense, sadly it sometimes comes down to *he who shouts the loudest*, so keep shouting. I'm sure your community team are doing everything they can from their end too.
Just wanted to say that you're in my thoughts and prayers.
Be kind to yourself,
RBT x
I give myself very good advice
But I very seldom follow it
Could explain the trouble that I'm always in...
I joined the petition (slightly later than I meant to) but wanted to say goodluck in your appeal! *hugs* They have no right to say no :( xx
"John, being brave is going where no man has gone before and with Lizzy Stark, that is NOT what you'll be doing!" - Aunt Polly.
“I told him I was going to betray you, and betray Lyra, and he believed me because I was corrupt and full of wickedness; he looked so deep I felt sure he'd see the truth. But I lied too well. I was lying with every nerve and fiber and everything I'd ever done...I wanted him to find no good in me, and he didn't. There is none.”
*hugs* I think it is ridiculious that they have not funded you and you are having to fight this hard. It's hard when your diagnosis is not "typical" and the symptoms are different then others, it's so much easier for doctors to just put people in a box. I don't have a facebook account, but I would join the petition if I could. You need the help, and I really hope you get it.
But these are flowers that fly and all but sing: And now from having ridden out desire They lie closed over in the wind and cling Where wheels have freshly sliced the April mire. Robert Frost, "Blue-Butterfly Day"
I shouldn't be,,, but I'm stupidly excited & hopeful.
Hmmm.
I might find out today, my CPN might ring but most likely I'll know on Monday... Another long weekend then.
Wow that was very quick - I am very glad of that! Another long weekend for you yes, perhaps maybe plan some things to help you get through it? Some nice activities? Wishing you all the best and hoping for an amazingly positive outcome when you do find out!
I really do praise you for not giving up, it's taken a lot of strength to get back up on your feet and fight this and I hope that it pays off for you with a result that will help you get well and healthy again, and get your life back. Well done on fighting for this.
Amazing, amazing, amazing. I guess that's the best news you could have hoped for so soon.
Stay positive, it'll make the weekend much more bearable.
Let us know their decision!!!
Can't tell you how much I hope it's good news
xxxxxx
Always seem to get things just that little bit wrong.
"don't wish, don't start, wishing only wounds the heart"
