Have any of you here been told you're "treatment-resistant"? I have treatment-resistant paranoid schizophrenia, but I am not sure what they mean by "treatment-resistant" if they say that Clozapine will 'cure' me.
Please help me understand, because the Voices are telling me that they'll never leave me and that there is no 'cure'.
PM me if you want a PDF copy of the ICD-10or the Mental Health Act 1983/2007. I ALSO HAVE THE DSM-V BOOK and am a pharmacology student.
I have a visual impairment / neurological problems so I need people to type in clear text and no funny fonts. Also excuse any typos, my vision blocks things out.
I have autism and have problems communicating, PMs included.
Just becasue I type well doesn't mean I speak well. I am only part time verbal.
I have been told i am treatment resistant. It sucks but what i think it really means is that your symptoms dont respond to treatments fully, or as well as a Dr. would have expected.
Does that make sense? Clozapine is the drug of choice for treatment resisitant schizophrenia, depression etc. Like i have said before my partner has treatment resistant schizophrenia and is so much better perhaps even cured because of clozapine.
I was told I have 'longstanding treatment resistant depression' by the psychiatrist I saw.
Technically it means that 2 or more medications haven't helped.
But basically in my case I think he meant that it's that medications and therapy help, but I'll still always have a tendency to depression.
I have treatment resistant severe depression. To be honest I still don't really know how to take it? It's pretty depressing in itself, but then I think I'd agree with it. I'm not really sure.
I don't see it meaning that you will always be struggling and that nothing will ever alleviate the symptoms, just that the treatment that may be seen as first-line/what works for most people with your illness isn't working for you, and the doctors have to search harder for meds/therapy that will help!!
So there's still hope for us resistant ones! Just the most effective treatment for you is a bit harder to find?
Hope that's of some use to you :)
xxxx
I just would like to add that 'treatment resistant' doesn't mean that we're pushing away the treatment we have, rather that the symptoms are particularly ingrained for whatever reason - in my case repeated ongoing abuse, trauma and neglect over many years, starting very early on.
I was told I had 'treatment resistant ocd' BUT I am now pretty much OCD Free. I have other problems now which are 'severe and enduring' but I don't think Ihave ocd anymore, and as far as I know no one else does either. Treatment resistant doesn't mean to say there's no hope, it's just voicing that so far the treatment things haven't helped and that something else needs to be tried.
Thanks guys. I've tried four different antipsychotics and none of them worked in the long run. If this Clozapine doesn't work, I will give up on life altogether and end up in hospital for months and months. I've already been told that I may be here over Christmas and New Year, although I do get a lot of leave. Thanks for the replies, it helps keep me calm.
PM me if you want a PDF copy of the ICD-10or the Mental Health Act 1983/2007. I ALSO HAVE THE DSM-V BOOK and am a pharmacology student.
I have a visual impairment / neurological problems so I need people to type in clear text and no funny fonts. Also excuse any typos, my vision blocks things out.
I have autism and have problems communicating, PMs included.
Just becasue I type well doesn't mean I speak well. I am only part time verbal.
I've been told I'm treatment resistant, and that I will "either end up dead or living in a hospital" in the words of my psychiatrist. It's pretty depressing to be told that, but don't let it stop you from trying.
Thanks...I'm being moved to supported accommodation after this hospital stay. They're moving me there to help prevent me from ending up in hospital again. But I've also been told I'll end up living in hospital and that the Voices/paranoia/etc will be with me for the rest of my life. *cries* THE VOICES ARE DRIVING ME MAD.
PM me if you want a PDF copy of the ICD-10or the Mental Health Act 1983/2007. I ALSO HAVE THE DSM-V BOOK and am a pharmacology student.
I have a visual impairment / neurological problems so I need people to type in clear text and no funny fonts. Also excuse any typos, my vision blocks things out.
I have autism and have problems communicating, PMs included.
Just becasue I type well doesn't mean I speak well. I am only part time verbal.
Oly hun, you need to take this a little at a time. Firstly, getting up to a therapeutic dose of the Clozapine. After that, then the supported accommodation. Re hospital in the future, no-one can say that for sure. You need to fight what is in front of you right now, please don't get a head of yourself as it can become far too much and no-one knows really. They have been less bad in the past at points - hold on to that hun. Take care! *hugs*
"Everything is possible through Christ, who gives me strength". Phillipians 4:13
I'm not going to supported accommodation any longer - my Mum said she'll never talk to me again if I go to supported accommodation and there are other, more complicated reasons why I can't go there.
So I'm going to go home after hospital.
The Clozapine has made my white blood cell count dangerously low, according to my psych, so I may have to stop taking Clozapine and move onto a new, SIXTH attempt of an antipsychotic, perhaps Haloperidol.
Thanks for the help though - I really do want to get back to a point where I am functioning.
PM me if you want a PDF copy of the ICD-10or the Mental Health Act 1983/2007. I ALSO HAVE THE DSM-V BOOK and am a pharmacology student.
I have a visual impairment / neurological problems so I need people to type in clear text and no funny fonts. Also excuse any typos, my vision blocks things out.
I have autism and have problems communicating, PMs included.
Just becasue I type well doesn't mean I speak well. I am only part time verbal.
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