I was in hospital again last night with the same symptoms. MY heart hurt and was palpitating. It was 170 at the highest.
The dr said it could be a fault loop system that I have, that could be f ixed my surgery. So hopefully when I have the scan next month they can identify that and fit it.
I'm really scared. I'm scared I'm going to die in my sleep. Sometimes my heart feels so bad I think if I fall asleep it will stop.
I'm terrified. :(
Last edited by Aardbei : 08-04-2017 at 12:48 PM.
Reason: Discussing moderator action
It's scary having something unknown. Like if it were a specific problem or condition I could live with it a bit easier because I'd have answers and be able to research treatment options and stuff.
The unknown, though, it's just scary. I don't know how serious it is, if there are treatments, if I'm stuck with this forever, if it could kill me. I just need answers.
And I really wish my mum was here to support me. I need a hug from her.
This must all be very distressing and scary, and I'm sorry you are going through this. I hope you get the help and answers you need.
I know what you mean about wanting your mum. I wish my mum was here and when you are scared all you want is your mum. Is there anyone else who can help support you just now?
My boyfriend is being incredible. But he worries so much. Like he's not sleeping properly because he keeps waking up in the night to check my heart rate on my fitbit. Makes me worried about him.
He's being wonderful though. He's looking after me when I'm too unwell to move around. He's taken me to A&E on several occasions (unfortunately), visited me every night when I was inpatient. I honestly couldn't ask for more. I'm wary of placing too much on him though, which is why I made the thread. I'm hoping I can get some support and advice here too.
MY dad is also being really good. Normally he doesn't really do much, but he's offered to fly down to be with me, called me every day and generally taken an interest in my health. When it was psychiatric reasons I was inpatient he was distant and unhelpful. But because this is a physical illness I think he feels more able to offer support because it's something tangible rather than a mental illness that you can't visualize.
And my friends, Lillie in particular, have been incredible. SO supportive. I'm very, very lucky.
So yeah, I DO have support. I just also miss my mum and want her here with me.
It sounds like you have a lot of good people around, which is fantastic. Your boyfriend is bound to worry. Maybe after the scan when you get some answers he might calm down a bit.
It's good your dad is offering to be with you, although I'm sorry he's not the same with your mental health. Some people just don't know how to react with mental health problems.
It's great that your friends, and the lovely Lillie, have all been so supportive. It's probably important you be around such people to keep you both supported and distracted too.
My heart rate used to get all out of wack on a very regular basis.
What I used to was take deep breaths and wait until it was over. I know this is scary because you have no control or anything.
When you have the scan, they'll have more information and be able to help you better. You're so lucky to be able to access a scan and a doctor who believes you!
I know I'm lucky. He kind of had to believe me because I was hooked up to a machine that kept going crazy! Can't really deny that :P
I've got the 24 hour ECG tape on now. Take it back tomorrow. I already had an episode up to 148 so hopefully it caught that and the dr will be able to read into what's happening to me.
Theres a problem with the elctrical wiring of my heart.
I was given a drug called adenosine which I was tole, 'makes you feel like you're about to die' for about 10 seconds then passes. I was give it three times each at a higher dose. It was awful. I felt so bad.
It brought my heart rate down a bit but only lasts a few hours. So it's not a fix, just a short term patch.
It's good that they know the problem as this will mean they should be able to fix it. Did they give you anymore info?
Idk if you saw my reply in the thread that got deleted but I had a heart issue too which was due to electrical wiring called (ignore my spelling) supra ventricular tachycardia and I had a small operation to fix it (radio frequency obliteration) I would say that medicine has massively advanced even from then. (This was 2002) I know it's really scary for your heart to go too fast. When I ended up in a&e my hr was so fast they were wondering why I was still alive. But mostly this stuff can be fixed, either with medication or surgery.
I don't have advice but wanted to let you know I understand.
Life can be beautiful if you let it.
Step back, breathe and take it in
