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Old 03-08-2016, 08:40 PM   #1
Doikers
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My Anxiety . My Depression . My Borderline .

How am I supposed to deal when they all hit at once . Like they are doing all day today .
Sorry to Post So Much .
My CMHT are messing me around , SW ( Off Sick ) says I've a Locum Psych Appt Friday ( Which I NEEEEED )
CMHT Admin say there is no record of it.
Diaz tolerance is Building Fast .
I'm stuck and it's getting worse.
Again , I Apologise for so many posts .



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 04-08-2016, 12:15 PM   #2
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My SW got back to work today,at 9.30am I was told I had an appointment for 2.30pm with about my 7th locum Psych in a row so *Fingers crossed*



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 04-08-2016, 01:01 PM   #3
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annnnnd with less than 3 hours notice the appointment was cancelled on me. Diaz Now.



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 04-08-2016, 07:34 PM   #4
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A&E is an Hour Away.
I am honestly considering rocking up a the CMHT tomorrow morning and Demanding to see a Psych.



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 06-08-2016, 03:04 AM   #5
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Hi Mark, I'm not sure if it would help to turn up at Ty Illtyd like you say, I believe they do have a duty of care, but they are likely understaffed like they always previously have been, you may see an SW or CPN if you were to turn up, but it's unlikely you'd see a Psych, as Auror suggested, perhaps getting an advocate may also help, the advocate for Brecon also covers Ystradgynlais, and I have had her help and assistance before, perhaps if you feel up to it, she may be able to write a letter on your behalf to try to get you a psych appointment, and try to ensure they honour and stick to that appointment, if you feel up to it you can contact her, Kirstie Morgan, Telephone: 01874 711661, extension 2496, or Mobile: 07967808145, or you could email her: kirstie.morgan@wales.nhs.uk

I hope this helps a little Mark, also I don't know if Kaleidoscope have in Brecon like WCADA drug and alcohol services down here, access to the dual diagnosis team, complete with CPN's SW's and Psych's, maybe it'd be worth asking and give it a shot to see if they can help, just a thought, I will try and find out, if there is a dual diagnosis team in Brecon, but may not see the head of services to find out, for a month, as unfortunately I saw they Friday, and I only usually see them once a month, but if any of the others in the team know then I may be able to find out sooner.

I hope you do manage to get the help you need, I know from personal experience and all the fighting I've had to do to access the services I'm entitled to, just how rubbish services are in our area, but keep shouting Mark, you need to get your voice heard.

There should also be a Commissioning and Support Team as part of the Local Area Planning Board (Powys County Council), who may also be able to guide you about provision of available services :)

You could also try getting some help with this, from tenancy support officer, either with Gwalia or the council, perhaps it may be a good idea to take someone with you, to back up the way your feeling at the moment, perhaps preventing services sending you away, having my counsellor to go with me to a psych appointment, was the best thing I ever did, as it gives them insight from another professional on how your mental health is affecting you.

Good luck, I hope your successful in getting a psych appointment :)





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Old 06-08-2016, 10:32 AM   #6
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I contacted Kirstie Morgan a couple of months ago , Ceri , via e-mail. She sent me some info but wanted to meet up in Bronllys , as you may know I cannot do public transport , haven't done for many years , and 2 , it's Bronllys , I HATE that town , spent too much time there already . also 3 it doesn't seem that she had much to offer me , Wouldn't I need a Psych Appointment in the first place , which I am struggling to get , for her to support me in? Didn't help that part way through our e-mail exchange she went on annual leave so kinda lost contact.



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 06-08-2016, 01:19 PM   #7
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I met with Kirstie, at Mind, and no, it's a misconception that you'd already need a psych appointment for her to support you, she's an independent MH advocate, so she is there to advocate you're needs, so she can write a very formal looking letter to the CMHT to suggest that you need to be seen, and usually, Kirstie is a very powerful person, they don't usually want to say no if Kirstie has asked, as they are fearful of the repercussions if they were to say no, like the way she'd have it publicised, about how the local CMHT is failing a guy with complex mental health needs and how disgusted both she and others she works with are, and believe me if it were to reach that level, where it gets published in the local paper, I think the CMHT would be in trouble, as that would get the attention of the area planning board commissioner, that's the person in charge of the funding the CMHT and other local services receive, so I'm sure it'd be worth seeing Kirstie as it can help make things happen :)

I understand how difficult public transport is, I'm wondering if this is something you're OT can help with, maybe take you by car to help get some of you're needs better met, and then possibly help with some gradual exposure therapy where they would catch the bus with you for a short journey, until you feel comfortable that you could do that journey alone? what has your OT offered to help with, it sounds to me like perhaps your OT needs to be told how they could best help you :)

There is also the community transport scheme (Brecon Dial-a-Ride 01874 624060) they can also provide transport for disabled including those with MH conditions, usually their drivers are very good, and understanding about MH fears and Concerns and will do their best to make you feel comfortable to travel with them, they are subsidised but they do still cost money, but it may be an idea to find out how much they cost for short journeys.

I hope that helps just a touch to help put things into perspective.

Also Mind also can contact the CMHT and tell them you need to be seen, hence I think it'd be a good idea for you to try hard to go there even if you have to ring in advance and let them know you're coming, and to ask them when the best time would be, when the centre is at it quietest :)

If you can't get what you need, the only other way I can see, as others have said, is to go to hospital, but it's a long way to go, so you're probably better off trying to get some other support, no matter how hard it may seem, sorry I can't suggest anything else more helpful :)





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Old 06-08-2016, 02:11 PM   #8
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You've been really helpful , Ceri . I don't have an OT though , the one I met just happened to be the duty worker that time . I have a DD SW but he can only see me for an emergency in 5 days and I'm not sure what he can do , I need Prescribing something that will stop my anxiety and I need it yesterday.


Last edited by Pi.R^2 : 08-08-2016 at 10:09 PM. Reason: removing tip-sharing


I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 06-08-2016, 03:46 PM   #9
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I have e-mail Kirstie.



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 07-08-2016, 05:26 AM   #10
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Quote:
Originally Posted by Doikers View Post
You've been really helpful , Ceri . I don't have an OT though , the one I met just happened to be the duty worker that time . I have a DD SW but he can only see me for an emergency in 5 days and I'm not sure what he can do , I need Prescribing something that will stop my anxiety and I need it yesterday.

I've started taking Antihistimines to try and sleep as they make you drowsy when combined with alcohol . I was not impressed , maybe need to take extra.Not loads but 2-3 .
Ah maybe you'd benefit from an OT, I'm not sure how you'd go about getting one, as I've never had one, and also found one I met at the hospital during my last admissions very helpful, but when I asked about the possibility of one to help me on a more permanent basis, I was promptly refused, as they said my MH wasn't severe enough, maybe Kirstie may have more idea of how you may be able to get an OT, antihistamines never worked for me, they just caused breathing difficulties, as they cause my throat to close up, when taken along side Ritalin, they really didn't react well, hope they help you though, and at least help you get a little relief and a little more sleep :) x





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Old 07-08-2016, 05:45 AM   #11
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Quote:
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I have e-mail Kirstie.
That's great news, am proud of you, that's a positive step, I really hope she's able to help you, if you're not sure what to ask her, or how to explain what you need help with, then perhaps you could either print out, or make some notes from here, so she fully understands your needs, and the problems you're encountering with getting appointments you need, and the fact that you feel your voice is not being heard, and that you feel it may help if she were to advocate your need for an appointment.

I had the same problem down here with my voice not being heard, it's terrible, it should be easier to get what we need, and it's mostly because of funding cuts, service closures, and understaffing, in any services that are available, hence their reluctant to provide appointments, unless your considered an immediate danger to yourself or others, and this is something I'm working on, and attempting to campaign to change :)





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Old 07-08-2016, 10:54 AM   #12
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Thank You Ceri :)
I Left nothing out in the e-mail that I can think of , I may have even gotten a bit carried away (Anxiety) . I'm thinking of writing to Kirsty Williams too. She has been good to be before.



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 08-08-2016, 12:56 AM   #13
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Contacting Kirsty Williams sounds like a good plan, I'm friends with her on Facebook, and Norman Lamb who she brought to meet us at Ystrad Mind a while ago, she's great when she can put her politics aside, and is very helpful and person centred, she is quite influential in most of Powys, so well worth contacting her, but I do know she's often very busy, so like Kirstie Morgan, you may well have to go to her, or agree to meet somewhere convenient for both of you :)





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Old 08-08-2016, 10:39 AM   #14
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I was just thinking about writing to Kirsty Williams tbh , Ceri . Just so the CMHT Realise that I am no longer going to back down and take this kind of thing , Get a letter of support , y'know?



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 08-08-2016, 11:01 PM   #15
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Auror , I am on PIP yet I need 40k to get my SO To even apply over here , I have little qualififications and experiense and am unsure how to raise the money , been unemplyoed for over a decade . go.



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 10-08-2016, 01:02 AM   #16
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Auror , I am on PIP yet I need 40k to get my SO To even apply over here , I have little qualififications and experiense and am unsure how to raise the money , been unemplyoed for over a decade . go.
Hey Mark, I'm on P.I.P too, yet u say u need 40k to get ur SO to even apply, what's an SO? Or am I just misunderstanding? I'm not sure what an SO is, so not sure how to best advise if there is any other option other than you trying to raise 40k, I too have been unemployed for a long time, it's difficult even with all my qualifications, as my ADHD makes me lose interest in work, and I jump from one thing to another finding it difficult to stick to things, also because of my medication and criminal record from when I have been severely unwell and lashed out and attacked the police when they have tried to help, it's something that stays with me, and effects the jobs I can be accepted for, as having several assaults on my record means I can't work with children or the elderly, or in places like pubs for obvious reasons, doesn't leave much except shops stacking shelves, or factories, and the one I was at locally now package pharmaceuticals including sudafed, so not really safe given my track record with overdosing, hope you're OK, I didn't manage to get to Mind in Brecon today, as I didn't realise how much the bus times had changed, hopefully I'll get up there some time next week :)

Auror for you're benefit I'll explain that P.I.P (Personal Independence Payments) is a disability benefit that replaced DLA (Disability Living Allowance) in the UK, just thought I'd explain so you're aware for future, at least in part what people may be referring to :)





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Old 10-08-2016, 11:51 AM   #17
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an SO is a Signifcant Other , sorry to not explain well . I am in a long distance relationship with an American Woman , We are so in love . To Even Apply for a spouse VISA I need to have over 35K and be earning close close to 20K a year . To go there is easier She says but as BPD , Chronic Depression and Anxiety are all pre-existing conditions I would not get health insurrance and would lose all 5 or my psych medications . There is no way bar a lotto win for me to raise this money except getting a very well paid job . I have 3 low grade GCSE's and experience of menial work over a decade ago and pretty serious psych issues.

My SW came yesterday . He said "It's not just you not being seen it's everyone , The are no Physicions" Even told me the Accute Schizhophrnia ward clinic juts was cancelled at the drop of a hat as there was no Dr . On next Monday I have my 7th Locum Psych in 8 Appointments . . . . My SW much have been concerned as he is coming back Friday , I was on Diaz and massively Anxious and Agitated . F is the only thing or Person who can Calm me and she is 6000 Miles / 8 Hours away .

I wrote to the MH Advocate on the weekend and have had no response to my e-mail , not even automated.
My Parents are putting in complaints about the state of the MH service to the Health Board , MP and AM ( Assembly Member , I'm in Wales) Go Kirsty Williams!

This is my situation.



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 11-08-2016, 02:38 AM   #18
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OK so ur significant other is in America, I understand now, but don't really have anything more helpful I can add. I hope you can find a way some time in the future :)





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Old 11-08-2016, 04:23 PM   #19
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MH advocate Texted then called . Now I'm Shaking



I'm still not comfortable in my skin and the anasthetic's slowly wearing thin - Otep
Everyones lost but me! - Indiana Jones

It's okay , they know me here .

Kahlia1981 is my adopted little sister :)


''Courage doesn't always roar , sometimes courage is that little voice at the end of the day that says I'll try again tomorrow"

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Old 12-08-2016, 05:28 PM   #20
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Hope the call went well Mark, hope you're doing ok :)





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