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Old 07-06-2011, 01:12 PM   #1
Sunshine
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Respirdone injection

My cpn has told me there is a new injection for respiridone which you get every two weeks (or every month i cant really remember) and i would be interested because it would stop me from having to go to the pharmacy every month and the hassle of repeat perscriptions but im just abit worried if it hurts a lot? im ok with needles but ive never really had regualr injections because when the liquid goes in you it makes your arm cold (or that is my recollection of it) so it different from taking blood.

my cpn seems to think its a great idea but im also worried about the control factor, like i wont be able to stop taking them if i dont want to anymore without them knowing about it! (which i know you will all say is wrong to do anyway) but i just worry that they will have so much more control then i do at the moment. i know its stupid because when ive stopped taking meds in the past they have almost sectioned me anyway so i had to start taking them again so its pretty pointless but i just have this problem about lack of control.

also im pregnant and although my cpn knows this and wouldnt be suggesting me to have these injections if it was dangerous but its a new thing they surely cant know what the effect could be on the baby?

anyways sorry for the longness fo this thread basically is anyone on these injections or any regular injections? how do you cope with the injections themselves and the control issiues (if you have any that is)

thanks
x



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Old 07-06-2011, 04:18 PM   #2
Ami
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Hey, I think it is risperdal consta that the injection is.

In my personal opinion I wouldnt take anything especially risperidone (as it ****s around with prolactin and as you're pregnant you will be increasing prolactin anyways.) if I was pregnant, unless the need abolutely outweighed the risk of harm to baby. That is just what I would do personally though.

However, may you could try the pills for a like 2 weeks and see how you react before moving on to the injection because if you get bad side ffects you would need to wait the whole injection out before they went away, which could be weeks as opposed to days.

Also, if you do want to stop meds, which I believe should be your choice, I think it would be better to discuss it with the dr anyways, not cover it up, because there are usually reasons as to why people stop, such as bad side effects, for example, even if they have nearly sectioned you.

not really answered your questions but threw in my 2 pence anyhoo :P
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Old 07-06-2011, 05:40 PM   #3
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I'm on the Risperidone injection. It's been a life-saver for me. It's given once a fortnight, usually in the upper buttock but some nurses are qualified to give it in an upper arm (deltoid?) muscle. I'd prefer the upper arm as I've had it there once and it didn't really hurt, but my practice nurse will only give it to me in the bum. It's a bit sore but it's not that bad and the pain wears off really quickly.

I started it because of repeated noncompliance with meds = repeated hospital admissions. I find it so much easier to cope with than having the everyday battle over whether or not to swallow a tablet. I don't even really have to think about it anymore. I'm not in a place of caring much anymore about having control over it - I feel that this way I have more control over my symptoms and a better life. Ultimately, too, I know nobody's forcing me to have it so if I choose not to it's a discussion I can have early (as people'll notice I haven't had it) before relapsing so I can avoid relapses and make a decision on what I want with a 'clear' mind.

I haven't had any effects on my prolactin levels as far as I can tell, menstrual cycle's been a tiny bit iffy but nothing major. I imagine your CPN would deem it safe for unborn babies if she's mentioned it, but if you're concerned (and even if you're not) I'd recommend an appointment with your psychiatrist to discuss it.

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Old 07-06-2011, 05:55 PM   #4
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I have just checked my bnf and for risperidone it says 'manufactor recommends only if need outweighs risks' and 'can cause eps in neonates' and also 'contra-indictaions - breast feeding'. So yeah, like laura said, check with your psych, but Ive had no experience with depots myself.

Good luck whatever you choose x





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Old 07-06-2011, 06:25 PM   #5
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Depending on the dose of oral medication and the dose of the respiridal depo it should be no different being on the injectable form. Yes if you develop or have side effects from the drug [whatever form it comes in, the side effects are the of the drug itself are the same] The injection cannot be 'stopped' from working in the short term where-as tablets can be stopped immediately. If your CPN has suggested it I would ask to have a medication review with the psychiatrist and in the intervening period have a think about what questions you'd like to ask.

The way I see it is you are on the medication already, presumably it is helping otherwise they would take you off it. You may as well have a depo, it might save you from thinking so much about 'if' to take your meds and being stressed over that. Medication like AP's are meant to be taken regularly and stop starting them even for a couple of days can be more unsafe than being on a steady dose. In terms of your baby it would be better that you are stable, it sounds like if you were to stop it you would need a replacement medication or admission anyway.

I hope you work out what is best for you in the longer term with meds, its a hard cycle to go through being non-compliant and if you need the meds it will get you absolutely nowhere. Sometimes it is a relief to have the medication 'sorted' with a fortnightly injection.

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Old 08-06-2011, 05:09 PM   #6
not_so_insig
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Quote:
Originally Posted by Sunshine View Post
My cpn has told me there is a new injection for respiridone which you get every two weeks (or every month i cant really remember) and i would be interested because it would stop me from having to go to the pharmacy every month and the hassle of repeat perscriptions but im just abit worried if it hurts a lot? im ok with needles but ive never really had regualr injections because when the liquid goes in you it makes your arm cold (or that is my recollection of it) so it different from taking blood.

my cpn seems to think its a great idea but im also worried about the control factor, like i wont be able to stop taking them if i dont want to anymore without them knowing about it! (which i know you will all say is wrong to do anyway) but i just worry that they will have so much more control then i do at the moment. i know its stupid because when ive stopped taking meds in the past they have almost sectioned me anyway so i had to start taking them again so its pretty pointless but i just have this problem about lack of control.

also im pregnant and although my cpn knows this and wouldnt be suggesting me to have these injections if it was dangerous but its a new thing they surely cant know what the effect could be on the baby?

anyways sorry for the longness fo this thread basically is anyone on these injections or any regular injections? how do you cope with the injections themselves and the control issiues (if you have any that is)

thanks
x
I am not on risperidone injection (and never will be, due to the fact I had a bad reaction to risperidone tablets), but I have recently started on Clopixol, which is also an injectable antipsychotic. You may want to read the thread I started called Clopixol.

As others have said, Risperidone can be given either in your arm (risperidone is the only injectable antipsychotic which can be given in your arm) or in your bottom. I have mine in my bottom, though. They do it every other side.

It really doesnt hurt (I had my second injection yesterday, so I have had both sides), though you do feel a sharp scratch. But the first time I did feel a short scratch, and actually the rubbing (as once the needle is taken out they rub the area briefly with an antiseptic wipe) actually hurts more than the injection itself. But it does help that you remain as calm as possible, as apparently (so far this has not happened with me) if you tense your muscles it makes it worse and you feel tons more pain. My CPN said that if you do tense up (because of fear/anxiety) than for her it is like trying to inject a stone!! I am needlephobic and the pain I was imagining for the first dose, was actually worse than what it was. So pain factor I would say it hardly ever hurts, but there is a small amount of pain. Like you I had a lot of hassle with my chemist (and twice they gave me the wrong stuff!), so it may be the case that the small amount of pain once a fortnight (which is what risperidone is usually, but not always, given) may be better than having the chemist stressing you out!! If things go ok with me (like I said it's early days so I am not on it properly) than I will only have to take 1 tablet a day, which is my antidepressant, so that means less hassle with my chemist, so I dont have to deal with them not very often.

With the clopixol, I dont actually feel the stuff going in, so my bottom never gets cold or anything, so hopefully it will be the same with the risperidone.

Like you I have issues with control, and so far I am only allowing my CPN to do it. My CMHT (and it's the same with other CMHTs) run a clinic, which means within certain hours, a nurse injects anyone who turns up with the appropriate dose of your medication. You dont have to book an appointment, just turn up and wait your turn basically. It's done in a private room so you dont have to deal with anyone else other than the nurse in charge. So because of the control and trust issues, I dont want anyone but my CPN doing it.

I dont have any real advice about control really, other than to try the injections. I have it written into my CPA that I will try the clopixol for 6 months, review it with my psych/CPN and see how things go. My CPN says that if I dont want the injection before the 6 months, just say and let her know. She says that if I say no, I wont get into trouble. It still feels that I have control and if I hate the injections after a month (or in the case of me, have never had clopixol before so I am unsure about the side effects) then I know I am not stuck with clopixol forever. Perhaps that is an option for you??

As for coping with injections, the thing that helps most with me, is having my CPN doing it. She is brilliant at calming me down (I got the first time I had it really bad anxiety!), though. I cant think of anything else, except try not to get tense about it. For example if you find listening to your ipod whilst doing it helps, then I would do that. For me I do like to watch my CPN loading the stuff into the needle which also calms down. For me I found the second injection much easier than the first.

Like you just over a month ago I nearly got sectioned because I stopped taking the tablets nearly 3 months ago. I saw my psych last week and he said that he wasnt going to section me, because of the fact I started retaking the tablets and they are slowly weaning me onto the clopixol.

As for side effects, like someone else said, whatever you are currently getting with the Risperidone will continue. The only other thing is that you may feel some discomfort (and this happens with all injectable antipsychotics) for a while in the injection area. For me, my injection site stung all day yesterday, which apparently is quite common. Some people (again it is an thing that can happen with all injectable antipsychotics) develop a small lump around the injection site, but I have yet (so far) to experience that.

I agree with the fact that other people said about a medication and pregnancy. I would talk to your psych (or whoever prescribed the risperidone in the first place) about a medication review. I would ask if you can go without some medication, or if that is not possible, then if you could have a lower dose. It may be the case with some medication, you may be asked not to take in the third trimester. But I am not an medical expert, so you may be told completely different. But anyway, a medication review is something I would strongly recommend if I was in your position.

But I hope that helps, and if there is any questions you want to ask me, feel free.


Last edited by not_so_insig : 08-06-2011 at 05:14 PM. Reason: added more info



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Old 10-06-2011, 01:16 PM   #7
Sunshine
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Thank you for all your comments, i am currently 20 weeks pregnant and on 4mg of respridone and i saw a perinatal psychitrist 2 weeks ago and he told me the risks which made me want to stop taking it but he said i had to talk to my own psychitrist about it because in his opinion the benefits outweigh the risks. They also spoke about me going on anitdepressants again which is abit worrying as i would like to come off the meds totally. im seeing my psychitrist on thursday so im going to talk about it because the risks i was told about have worried me and im abit annoyed that i was only told the risks when i saw the perintal psych about 2 weeks ago because before then they just told me, i needed to be on them and it would be better all round if i was on them but never what could actually happen to the baby as they told me if was one of the safer ones in pregnancy!

The positive with having the injection (if i cant come off the meds altogether) would mean i wouldnt be stopping and starting because some nights im just too tired to get the pills out (lazy i know) or i run out and have to wait about 2 or 3 days untilli get new ones so its not constant so not having to think about it would be a lot easier.

thanks again for all your advice
x



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Old 10-06-2011, 06:05 PM   #8
not_so_insig
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Quote:
Originally Posted by Sunshine View Post
The positive with having the injection (if i cant come off the meds altogether) would mean i wouldnt be stopping and starting because some nights im just too tired to get the pills out (lazy i know) or i run out and have to wait about 2 or 3 days untilli get new ones so its not constant so not having to think about it would be a lot easier.

thanks again for all your advice
x
I am the same with you, as I am still on the quetiapine. Some days I think "I really cant be arsed with taking my tablets", and dont bother. If things go ok with the clopixol then at least that problem is out of the way, as like I said, I only have to take 1 tablet once a day rather than currently 2 tablets (and if I was on the quetiapine and the antidepressants properly then it would be 5).




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"He who is tired of Weird Al is tired of life." - Homer Simpson
"I hear those voices that will not be drowned"
Sanity is a nasty disease. The world would be a happier place without it. - Rilic
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Old 19-06-2011, 09:35 PM   #9
Sunshine
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i spoke to my team at my cpa and my psychitrist said she had to look up if having the injection would be ok, so its abit annoying that it was suggested to me without even constulting my psychitrist. but oh well. i also asked to come off my meds and they said that i had to talk to the perinatal person and the perinatal psychitrist said when i spoke to him last i had to talk to my regular psychitrist so its also annoying because they dont seem to be listening to me. my psychitrist did say she would talk to the perinatal psych about it but i wont be seeing her another few months so it looks like im stuck on the meds.



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