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Old 31-05-2011, 07:28 PM   #1
insidemyhead
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i hate community services

ive been waiting 9 months for therapy and finally got appointment through for today and its only going to be 20 weeks their website says up to 2 years and i was told id need a constant therapist fir as long as id need took through the **** in my head they said tgatvwas my hope for recovery. and this happens i have really bad communication barriers and trust problems it takes me a while to remotely trust someone its not deliberate or something i can control its.really bad. these people have messed with me so much after being inpatient for 9 months (December) come home and nothing i was left for two months with nothing then my can decided she didn't want to bother and i only saw her 4 times and 3 phone calls in 5 months yeah i record it she blamed me for not being cooperative which was a lie i tried hard despite her manipulation and refusing to reading my notes also support workers keep changing as im not being give permanent staff despite them being told i can't cope with change or new people well. im now have new care co whose taking history and doing all the things my old one should have done and am meant go be getting a new support worker and i was going to start therapy so things were looking up i was going to be able to get help coping stop going to minor injuries for crap and hiding everything and just having someone to talk to and calm my fears. but just stuff like this happens my therapist used to stand my ground in hosp as i couldn't talk to doctors and before that my t stood up to my mum. i just wanted 1 person to hear me out until im on my own two feet again but that has to be crammed into 20 weeks im managing to pay for a chiropractor once. a week it is very cheap for private as nhs physio hadn't got back after 3 months as my pain is chronic i can wait longer maybe mh services are the same but like my physical pain needing to be sorted as id had enough of not being able to walk or exercise I've had enough of my mh as i can't do sod all without the crippling fear or im too tired from not sleeping sometimes im so scared i can't move for hours or im just hself destructing. im scared im going to do worse soon but none is here to hear me and i really can't afford private as i didn't inherit enough its stretching it with chiropractor.

I've had enough really can't hack this much more id write a complaint about my lack of care after discharge from 24/7 care despite my high risk but it will just make things worse i just wanted to write this cap out im not complaining without me trying to change things i have tried i don't know what else to do im close to packing it all in and leaving it all but itd increase my reason to act on things im not sure where to go from here. i know same people get worse care but im not competing i just want advice on what to do or someone to sympathise really im feeling at an utter dead end with hope i haven't actually felt genuine hopelessness in quite a while. um yeah sorry for posting again




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Old 31-05-2011, 07:40 PM   #2
startingagain
 
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I don't know if it is any help, but I was told that I could see the clinical psychologist for 12 weeks. That was 4 years ago. Once you start seeing someone they may be able to look at different options.

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Old 01-06-2011, 03:48 PM   #3
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i dont think your complaining or competing.

And ive seen your posts around and know your really struggling and it saddens me that you really arent getting the care you need or deserve.

And i know it may not also help hearing others have had a hard time too getting therapy etc.i waited over two years in my old area and my name was just coming to the top of the list just before i was due to move to be closer to my family [partly cos i have now become so ill].

i come to my new area who say they may eventually provide CAT Therapy but wont even put me on the waiting list for it right now as they are worried about my suicide risk.i will have to wait again if they do ever decide to put me on the list which they refuse to do at present.If i do ever get that therapy they say it will be a maximum of 16 sessions.They say they may let me have art therapy before that but again there is probably quite some wait and i dont see it happening cos they are still going on about my risk level even with that.i think they are going to give me nothing.

I have been struggling for years and have so many issues from my past.i know they are stretched but i just dont understand it all.

i know you feel like giving up and i can understand that but please dont give up fighting your case and for the help and support that you so desperately need and deserve.

You shouldnt have to fight like this especially when you are struggling so much.It is so unfair but just please dont give up.You deserve this help.

Have you thought about going to PALS for support to try and help you get through to services or looking for an advocate perhaps through Mind etc to help you be heard?i dont know if it would help just an idea and maybe it could also help you to feel less alone in trying to battle for what you need.

Please know that we are here and that we hear you.i just wish they did too.You deserve better than this.

xx xx



i do not always manage to be around but i wish you all the very best - love and luck to you all!


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Old 03-06-2011, 01:58 PM   #4
roiben
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Often they will make appointments for a fixed length of time, which will have a review at the end. In most cases, this review gives you the option to continue to see the person, at which point they will set up more regular appointments.

It is not at all a fob of to get a 20 week course, although I do appreciate it is incredibly frustrating after waiting for quite some time. Do keep heart though, there is always the chance that you will continue the therapy beyond that period. However, if you find you do not feel that course has helped you, you can use the review to decide what you may need going forward, maybe a different focus but the same therapist, for example, or more or less regular sessions.

Do be gentle with yourself,

Roiben x





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Old 03-06-2011, 06:32 PM   #5
insidemyhead
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I thought about pals may do something like that, not sure though I don't think it's a fob off more just a headache considering the restriction that I was told I'd be able to get the proper help for once told by the osych who made my referall she knew me enough that id need time with therapy someone It may work I just need to get over my barriers I think my reaction was more how do I overcome them and then get the things I need to work on in 22 hours it really just makes my heart ache I don't want to appear demanding or bratish
I just get told something will happen get hopeful it will happen and it doesn't.. Sorry I've had a bad day I'm just not up to replying properly but I have read the replies thank you x




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