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Old 06-06-2010, 03:30 PM   #1
CrepuscularHuman
 
aspergers syndrome

Hi im known as Stevie but apperently i just been informally diagnosed with aspergers syndrome im findinh it hard to cope with life. i dont know how to describe what it is like. its hard reading people like their emotions and wherther they are joking or being sarcastic and things. im extremely violent towards my younger brother and sister i somehow manage to get into bother ands chaos every day at the moment i dont know what i could do and how to handle it. i feel as if every day is a struggle and people in my college like tutors expect me to be fine everyday but it deosnt work like that!!!! i feel like screaming at them and telling them what it is like and they need to give me more space and its not the right course for me which is why im finishing this year. i do have a life story but its pretty long but you can always ask

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Old 06-06-2010, 04:10 PM   #2
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I'm sorry things are so difficult right now. I know how frustrating Asperger's Syndrome can be. My boyfriend and my grandfather both have Asperger's and I know it can be really difficult and can make things really confusing. :( Do you have any support for this? Can you talk to your tutors or get somone to talk to them on your behalf about how difficult you are finding things?



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Old 06-06-2010, 04:31 PM   #3
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i have a couple of people that support me my physc and nurse and familie arent that supportive itr only ben picked up now cos im a lass and it is apprently quite rare in girls but college arent being supportive at all and i dotn think they ever will be, i suppose i could get my nurse to ring him or something

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Old 06-06-2010, 04:56 PM   #4
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It might help a lot if you could get your nurse to contact the college for you. I know my uni gave me a lot more support when I got someone to contact them on my behalf.

I'm sorry you're not finding your psych and your nurse and family to be supportive to you. That sucks :(



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Old 06-06-2010, 05:05 PM   #5
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my physc will have to leave me soon cos i get reffered to adult service because turn 18 soon but it might helpill give it a go :)

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Old 06-06-2010, 10:09 PM   #6
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my boyfriends got Aspergers =] yeah, its rare in girls, because its less likely to be noticed. you now come under disability laws and procedures, and can get help, like extra time in exams and school/college/uni staff to help you, extra funding at uni.

from what i understand, it can be difficult, as you dont understand what people mean or feel, and people find it hard to understand what is "wrong" with you, or even how to interact properly with you.

im sorry your family arent being supportive yet, but i think it can be hard to get used to, many parents dont WANT to have their child have a disability, because it can be hard, and siblings can feel jealous at the attention or special treatment. it'll be okay, aspergers is a relatively moderate form of autism.

i suggest you look into autism in general, charities and organisations, studies etc, so that you know exactly what it all means to you, especially as this is a new thing, and that kinda background knowledge can help those understand what it means, and how they can be supportive.



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Old 06-06-2010, 11:43 PM   #7
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I know exactly what you mean. I can't read emotions at all.
Could you maybe talk to your teachers etc about it and then they would be aware so they might be able to do something to make life easier for you? I know my mum went in to talk whith my teachers about my dyspraxia/ADD and it really really helped. I guess just let your teachers know how hard it is for you and things. I'm sure they can help. Mine were fantastic once they knew.




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Old 07-06-2010, 01:06 AM   #8
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my daughter has just been told at 16 that she has aspergers syndrome and after reading up on it everything makes sence . its rubbish tho as the doctors can take years to say 100% that thats the diagnoses (even tho thats what there saying ) and without the diagnoses there is no help ... not that we have found anyway .



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Old 07-06-2010, 11:51 AM   #9
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My brother has Aspergers and was only recently diagnosed at 19, although it does make sense.

Now you have a diagnosis you should be able to get much more help and support and people won't expect everything to be ok for you all the time or push you too hard in college.

I understand that it a struggle to deal with but I hope you will be ok.



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Old 08-06-2010, 09:05 AM   #10
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Hi! I hope you manage to get more help. i have 2 daughters with Autism so know how frustrating life can be sometimes. Pm anytimexx



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Old 08-06-2010, 03:02 PM   #11
CrepuscularHuman
 

thankyou guys i really appreciate gthe support and stuff just dont know how to show it :/ I just want to do whats best for me in college which i think going back next year will be the worst desicion to make...........maybe not/maybe will!. i will take a look at all those things you have suggested and my mum just plainly doesnt understand how to deal with all the effects it has

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Old 08-06-2010, 11:57 PM   #12
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Hey, I have Aspergers too....
What I did is bought books that have pictures of faces and gestures, then below it tells what the emotion it is. It helped a lot! Obiviously not 100%, but a lot.
Do you have any close friends there who could help out?
Did your IEP follow you to college? Did you have one in high school?
If your psychiatrist isn't working you should try finding one that's more sympathetic and knowledgable on this..
These were just some first thoughts, you can message me any time. I'm always at war with my school, but shouldn't give up. :( Try to set aside some time for yourself before you make that decision... I kinda explode if I don't get time to myself. Again, you can message me anytime!

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Old 09-06-2010, 10:59 AM   #13
CrepuscularHuman
 

it is scary. and no because its only recentley come to be known likemy dyslexia, i dont have many freinds but the real freinds have stood by me and i now know who my real freinds are and who isn't. shes ok not gret but she cant really do anything im turning 18 in a month so she is reffering me to adult services instead to get a proper diagnosis and i have the crisis team who keep regular contact at the moment because i keep havign ups and downs all the time. sure ill PM you sometime i just gotta work out how first LOL :) hope your ok.
Stevie
x :) x

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Old 10-06-2010, 08:40 AM   #14
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Hey Stevie

My 17 yro has "Aspies". He wears the label like a suit of armour. He knows he thinks and learns different to most of his friends but he just says 'thats me, get used to it'. He is very intellegent and has got a good sense of humor even if it is a little left of centre.

Be pro active and get some information you can give to your friends and family, and even your teachers. Not everyone is going to understand or even make an effort but at least you tried.

You should give yourself more credit, you seem very insightful. I agree with the idea of the pictures of emotions. My son seems to have learn't that there are social proticols and works on following them even though he doesn't understand them or why they are in place. For instance he knows that you ask someone if they are ok, when you see them crying. He doesn't really care that they are cry or what to do about it but he has learnt the protocol.

I would suggest watching Big Bang Theory, Sheldon(a character) has classic Aspergers characteristics and yet his friends accept him. My son really likes this show and relates very well with Sheldon.

Hope i have been helpful and have not assumed too much.

Jackie





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Old 03-07-2010, 08:33 AM   #15
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Hi, I have Aspergers. I forgot to mention it in my introduction post because of all my diagnosis...it pretty much gets ignored. It doesn't usually require immediate medical help and there aren't any adult services for this diagnosis in my area...such as social therapy/rehab and such. So basically, I get to deal with having it and not knowing what to do about it or even which of my symptoms really tie into it.

What I know for sure is that I am horrible at reading other people's body language. My worst ones are I can't tell when I've offended someone and they aren't making it blatantly obvious...and I can't tell when someone is bored with the conversation or needs to leave. So people get frustrated or mad at me pretty often.

I am also super focused on animal behavior/training and will talk endlessly about it.

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Old 04-07-2010, 10:01 PM   #16
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Hello Stevie, I use this site to help me understand the details: http://www-users.cs.york.ac.uk/~alistair/survival/ and watching youtube blogs on Aspergers/Autism has been good.. check out stuff by 'bikiniartist' and 'whitetigerdream'. :) the forum Aspergic is really supportive, and there is an informative forum called aspies-for-freedom which is good too!

to get a diagnosis, i suggest you take the AQ and EQ tests here: http://homepage.mac.com/lpetrich/Asperger/Index.html (by printing them off and pencilling in your answers), then take them with you to your first meeting to look thru.. thats what i did, just makes things easier.

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Old 06-07-2010, 10:38 PM   #17
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I have Aspergers. If you want to talk about it, then PM me and I'll send you my e-mail address (I am crap at replying to PMs but marginally better at replying to e-mails). I am a member of Wrong Planet too ( www.wrongplanet.net ), which is an Aspergers and Autism Online Community.


Last edited by Steel Maiden : 06-07-2010 at 10:40 PM. Reason: additional


PM me if you want a PDF copy of the ICD-10 or the Mental Health Act 1983/2007. I ALSO HAVE THE DSM-V BOOK and am a pharmacology student.

I have a visual impairment / neurological problems so I need people to type in clear text and no funny fonts. Also excuse any typos, my vision blocks things out.
I have autism and have problems communicating, PMs included.
Just becasue I type well doesn't mean I speak well. I am only part time verbal.


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Old 08-07-2010, 12:41 AM   #18
Albemarle
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Hi,

I'm autistic too - I guess I'm what would be called mid-high functioning autistc.

If you have any questions about autism/aspergers, feel free to PM me.

I do quite a lot of research about autism and am looking to do some formal study/research in the future.

Have you read anything on the subject?

If you PM me I can tell you what books have helped me.

But I would certainly recommend Women from Another Planet
and Freaks, Geeks and Asperger syndrome (written by a 12-year old with AS, so aimed at people in early teens, but still an interesting read and interesting to see how a 12 year old aspie views the world)

Books by Genevieve Edmonds can be useful for learning strategies too.

Tony Attwood's Complete Guide to Asperger Syndrome is good too, but pretty long.

There are also some good blogs out there too by other aspies/auties.

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Old 12-07-2010, 11:06 AM   #19
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Hey, hope you're doing ok. Both of my brothers have austic spectrum disorders, and have been diagnosed from a young age so I've had alot experience on the other side of it so to speak. PM me anytime if you want x



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Old 03-11-2010, 12:39 PM   #20
CrepuscularHuman
 

Hi just make this thread come to life again possibly!
Ive had a really bad month everythign chnaging i react really badly to chnage especiallyy to routine i go to college two daysa week onthursday and friday andthis week has been half term lots of mixed emotions that arte confuzzling me rite now.
I dotn know how to see my emotions or anyone else i kept asking my CAMHS worker if he was ok cos i didnt understand him with his bodyu laungauyge ect i find that incredibly hard its one of the things that really upsets me because i find it hard and it irratatyes people when they have to keep reapetign themselves or being really blatant with me about how they feel!

Im finding going out into town shopping very hard and i wont go throgu hthe day either espcially on my own because of crowds and noise and stuff like that.
Im beign very senstiive to noise at the moment!
Touch is a completly diffrent story im scared of beign touched by people i was Sexually abused when i was younger and realy dislike people touching me but its got considerbally worse since i went to college and all the anxiety came back to me!

Im sorry to open it up again but im struggling to cope with it at the moment!

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