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Old 23-11-2022, 12:07 PM   #161
The Worst Witch
 
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Thanks Camden.

Claire is on holiday for a week from today. She did say that I could email any of the other support workers if anything urgent came up while she was away but I think I’ll be okay until the 5th. Going to try amd go to the group next week.

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Old 23-11-2022, 11:47 PM   #162
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We can understand wanting to wait for her to be back.

Proud of you for continuing to try with the group.



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Old 27-11-2022, 12:56 AM   #163
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None of us can speak to why the papers you get say what they do. You'd need to get in touch with whomever sent them. We're just letting you know that in most autistic circles, the term Asperger's is frowned upon and thus we explained why (i.e. being outdated and no longer a diagnosis, and ties to naziism). If that's a term you identify with you are free to use it, but be aware that you might get people upset at you for using it for those reasons.



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Old 27-11-2022, 07:10 AM   #164
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I think that the UK might be slightly behind the US with regards to autism/Asperger's syndrome - technically yes, Asperger's is outdated and not used in the ICD-11, but we switched from the ICD-10 later than the US moved to DSM-5 so there are still doctors etc who haven't caught up!

Auragrace, I think in your assessment they probably will use ASD/ASC rather than Asperger's. I hope they contact you soon.



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Old 27-11-2022, 08:56 AM   #165
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Bloody hell, Camden was just trying to explain the diagnostic changes in recent years. They were warning you about the associations with the name Aspergers and trying to help you avoid really difficult situations where people will take offence at you unknowingly using an outdated term. Nobody was calling you a nazi or bullying you or associating *you* with naziism. Quite the opposite. This is a thread aimed at people with an autism diagnosis or who suspect they have autism so sometimes people may be a little more blunt. I also notice you haven't responded to my post further explaining some differences and offering you support.

Emotional blackmail and personal attacks are never the way. If you choose to leave RYL then that's a decision for which you and only you are fully responsible, and I hope you find the support you are looking for elsewhere.



'It's an impossible choice ... I'll just have to hope that when I flip the coin it somehow explodes and kills me.'

"You're not scared of climbing mountains. You're scared that you can't make them move."

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Old 27-11-2022, 09:19 PM   #166
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ANYWAYS

Does anyone else really struggle with holidays? We just had Thanksgiving here and we are getting really stressed about all schedule changes and potential expectations surrounding Christmas and New Years too. On top of nobody remembering the whole "hey there's a pandemic still" and ugh. Is this just us?



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Old 27-11-2022, 09:33 PM   #167
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Yeah. Thanksgiving here isn't really a thing, and it's unlikely I will do anything for Christmas except maybe cook a roast if my housemate isn't working. My issue is the way everything just *stops* - I don't know when I should order my meds, or if I'll be allowed to pick them up if I do it too early. All the shops are shut. People lose their minds and turn houses into noisy, blinding spectacles. Everyone asks 'what are you doing for Christmas?' and I have to come up with a reply that isn't 'shutting the curtains and eating potatoes'. I feel like I am *obliged* to have a good time when actually it's two weeks of nothing, with the occasional meal where everyone makes stupid comments about diets and January. It's DARK. The same four songs are played on repeat for two months.

Ugh.



'It's an impossible choice ... I'll just have to hope that when I flip the coin it somehow explodes and kills me.'

"You're not scared of climbing mountains. You're scared that you can't make them move."

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Old 27-11-2022, 09:42 PM   #168
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Right?! I am convinced that the week between Christmas and New Year is this weird liminal space because you never know if you can do things or if places are open or not! I think it's gonna be weirder this year because it's all on Sundays but then the Mondays are when everything will be shut so that will drag it out even longer.



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Old 27-11-2022, 11:58 PM   #169
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I don’t mind Christmas. I used to hate it, but I like the fact that I can juat stay in my house for twp weeks if I want. Sister is working this year so will provably go to dads to see her, then on the actual 2 weeks of Xmas V is bringing soot and his brothers to mine to stay for two weeks.

We are looking forward to it :)

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Old 19-01-2023, 02:51 PM   #170
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I’m just wanting to join in with this thread

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Old 19-01-2023, 10:05 PM   #171
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Hi,

there's not many of us and replies may be slow but feel free to join right in :)



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Old 19-01-2023, 11:41 PM   #172
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Hello *waves*

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Old 27-03-2023, 04:39 PM   #173
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Hi guys, sorry to bump with questions but I was wondering if anyone else's sensory triggers ever change? My pyjamas and a lot of my previously 'safe' clothes feel like they're burning my skin which is frustrating and a bit miserable tbh. I didn't know if it might be connected to low dopamine levels too?

I'm just finding life exhausting right now - things that I could previously tolerate or even enjoy are now too much, I'm barely functioning and it's horrible. It's messing with my body image as well which is ****.



'It's an impossible choice ... I'll just have to hope that when I flip the coin it somehow explodes and kills me.'

"You're not scared of climbing mountains. You're scared that you can't make them move."

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Old 27-03-2023, 07:08 PM   #174
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yes ours have changed before. it's really not fun at all. sorry you are struggling too :(



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Old 28-03-2023, 06:25 AM   #175
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Thanks Camden. Sorry you've had to deal with it too.

I'm sort of hoping it'll calm down again when I'm less strung out, and in the meantime just going with the least uncomfortable situations.



'It's an impossible choice ... I'll just have to hope that when I flip the coin it somehow explodes and kills me.'

"You're not scared of climbing mountains. You're scared that you can't make them move."

Jenna was here :P


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Old 28-03-2023, 07:54 PM   #176
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we hope it will for you too. it makes sense that when you are super stressed it might get worse.



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Old 29-03-2023, 04:31 PM   #177
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I don’t have many words right now, but I agree with Camden. Jope you’re okay Lio <3

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Old 29-03-2023, 05:25 PM   #178
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Hey lovelies just asking for some advice I'm not autistic but have sensory issues. How do people deal with loud background noise and loud people in general?

I work in a call centre now when everyone's on a call all is fine. But we've been quiet for a while and when we're quiet it seems all 4 of the loud people on the team like to talk/shout at each other. Then hears little me where it hurts my ears and my head.

Yes there Is moving seats but we all sit in our teams.



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Old 30-03-2023, 12:40 PM   #179
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Thanks Ali and Camden. It does seem to be getting less intense, though I think one particular pair of pyjama bottoms might need to go into retirement :(

Glitterfairy - I don't know if this is likely to have been suggested but could you look into earplugs? The two brands I know of are Flare and Loop. I've found that Loops especially make noisy places less... spiky? My main issue with them is tolerating having them in my ears which I think is mostly just me, but in loud or overwhelming noise situations they've really helped - I can still hear and hold a conversation but it's all a bit smoother.



'It's an impossible choice ... I'll just have to hope that when I flip the coin it somehow explodes and kills me.'

"You're not scared of climbing mountains. You're scared that you can't make them move."

Jenna was here :P


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Old 30-03-2023, 04:01 PM   #180
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Glad it is at least lessening in intensity!

We have the flare ones and also hate having things in my ears. But they do make things quieter.



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