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Old 27-07-2011, 01:42 PM   #141
roiben
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I am glad to hear they are thinking of changing your meds, Rara. It does sound like you need something at the moment, and I am sorry the Voices are being so constant for you at the moment.

I do not know much about Aripiprazole, but it sounds like the Consultant is trying to weigh up what is best for you, versus financial constraints (which I understand many NHS side consultants have pressure on them for right now... goodness knows what they will put me on...).

Did he say when you would know, one way or the other?

*safe hugs*

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Old 27-07-2011, 09:12 PM   #142
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I think that you should try the aripiprazole as it has a pretty different mechanism of action to chlorpromazine/quetiapine (chlorpromazine is a dopamine-2 antagonist and quetiapine is a serotonin-dopamine antagonist, whereas aripiprazole is a doapmine-2 partial agonist), and aripiprazole does good work on negative symptoms. Will he keep you on the chlorpromazine? As aripiprazole can cause activation and insomnia.



PM me if you want a PDF copy of the ICD-10 or the Mental Health Act 1983/2007. I ALSO HAVE THE DSM-V BOOK and am a pharmacology student.

I have a visual impairment / neurological problems so I need people to type in clear text and no funny fonts. Also excuse any typos, my vision blocks things out.
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Old 28-07-2011, 12:49 AM   #143
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Roiben, I'm most likely seeing him again today. He said he was going to check out meds/cost last night. So hopefully I will find out today when I see him. My mother has said for me to tell him cost isn't an issue. As I think she may pay for them.
*safe hugs* thank you

Oly, I'm glad to hear the mechanism is different, that gives me some hope. I'm not sure what he will do with the chlorpom yet, I may find out today.

I keep waking early-ish, 7 and I want to be able to sleep in at least a little sometimes. I have a good nurse this morning which is helpful and the nurse on night is fantastic, do today is good in that department. Voices wise they're increasing at the moment and I'm feeling the Spy creatures all over my right side. Tugging and pulling to the point of discomfort or pain. Like strings with hooks. Claws in my skin.

I'm on an open ward so I snuck out to get coffee and am enjoying it (one of the few things I still enjoy) now outside though it isnquite cool andnwindy. The elements nhelp a tiny bit to keep me grounded and not go 'far away' sometimes

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Old 28-07-2011, 04:21 AM   #144
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Today I have absolutely no motivation. I've done nothing. I feel almost immobilized.

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Old 28-07-2011, 08:58 AM   #145
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Glad they are trying something new. I am on 30mg aripiprazole (with olanzapine) and apart from the intial few weeks of restlessness, I have no side effects now. Worth a try maybe?

Hope the voices calm down for you, andeven if you are feeling really unmotivated, just do something, even something small. Do you like doing art and stuff like that? I find writing everything down helps just to clear my head abit too. Have you ever had cbt or similar?

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Old 28-07-2011, 10:18 AM   #146
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Thanks Ami
Worth a try.
I have had some CBT, will be getting more.
I've been doing little things, wash my face, shower when possible. I do like art and writing. I've been journalling to show my psych but can't write much, or creatively at the moment.

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Old 28-07-2011, 11:01 AM   #147
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Thats good, keep it up.

I cant write good but i just write to clear my head, not for it to be read by other people. Hope the CBT helps. Do you know when you are changing meds?





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Old 28-07-2011, 11:47 AM   #148
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My psych is back tomorrow, so I suppose tomorrow or around there.
I'm battling at th moment. Trying to stay 'here'

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Old 28-07-2011, 12:10 PM   #149
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Yeah, keep at it. hopefully you can change to aripiprazole soon, although it does take a bit longer than most to start to work apparently. Maybe talk to one of the nurses (about anything) just to keep 'here'. Do you get the feeling of moving between planets or different earths?





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Old 28-07-2011, 12:57 PM   #150
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I feel like, and have for quite some time, like I'm not from this planet/dimension. And thats part of the reason these futuristic Spies and Spy creatures are all over me.
A nurse took my stitches out today, took some time and angle my arm was at was uncomfortable. The Voices kept talking about using the stitch cutter to try to debug me.

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Old 28-07-2011, 01:10 PM   #151
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I hate feeling afraid, being scared, but I am. I have to keep one foot planted here and one there or else I will be lost one way or the other. I feel like I could die. My mother commented on the way I was walking when she came to visit, I was 'loping to the side' the right side. The side the creature Spies are wrenching at me. I want to smoke my cigarette but there are Spies in the smoking area, I'll get my energy shield up and do it. I think.

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Old 28-07-2011, 01:42 PM   #152
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I know what you mean about not liking to feel afraid, Rara. I have the same thing. I also understand the feeling of not wanting to commit too much to one side or another (here or there) for fear of choosing the wrong one - I know I struggle with that one a lot...

I am sorry the psych has not changed your meds yet. Hopefully they will soon (I need to write to mine) and it will help you.

In the mean time, I agree with what others have said - Often, it is worth doing things even when you do not have the motivation, to make yourself is hard and I understand that, but on the other hand, being busy and doing something will make it easier to deal with the voices and to feel more confident in yourself. I write, draw, take photos and even just walk at times, because it is better than doing nothing - maybe putting together a time-table of things to do may help you to have a structure that you can work through even if the motivation is not there?

Thinking of you, and sorry to not have better words

Roiben x





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Old 28-07-2011, 03:09 PM   #153
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I'm sorry to hear that you're still struggling. I really think you need the meds change. I understand that you're scared though. Are you on any PRN (take-when-needed) medications?



PM me if you want a PDF copy of the ICD-10 or the Mental Health Act 1983/2007. I ALSO HAVE THE DSM-V BOOK and am a pharmacology student.

I have a visual impairment / neurological problems so I need people to type in clear text and no funny fonts. Also excuse any typos, my vision blocks things out.
I have autism and have problems communicating, PMs included.
Just becasue I type well doesn't mean I speak well. I am only part time verbal.


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Old 28-07-2011, 03:21 PM   #154
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Quote:
Originally Posted by rara avis View Post
I feel like, and have for quite some time, like I'm not from this planet/dimension. And thats part of the reason these futuristic Spies and Spy creatures are all over me.

Im sorry you are having these thoughts. I have similar thoughts and know how unnerving and scary it can be. Sorry, no advice, but well done if you go for the cigarette. Spies shouldnt stop you living your life. x





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Old 29-07-2011, 12:36 AM   #155
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Roiben, thank you. I'm glad and sorry you understand. Thank you for your words. Today I'm going to push myself to do things. Really push. And hopefully my Dr will see me today and arrange the meds. A timetable is a good idea, I have a white board in with me. So I can use that.

Oly, you are right. And yes I can takenPRN clonazepam and PRN chlorprom on top of my Three Times Daily 100mg.

Thank you Ami

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Old 29-07-2011, 06:03 AM   #156
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Have just seen my Dr, and I am going onto ziprasidone/zeldox as of tonight. He called me "chronic" and isn't letting me go out. I might be allowed to have a coffee with my mother tonight.

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Old 29-07-2011, 12:07 PM   #157
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Ive never been on Ziprsidone or even really heard of it being used in the UK really.

Hope it helps you. x





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Old 29-07-2011, 12:40 PM   #158
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I'm afraid i don't have much experience with said medications or what you're unfortunatly going through right now. I just wanted to say that i've read your posts and i think that you're amazingly strong and i hope this new medication works for you, darling.

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Old 29-07-2011, 01:45 PM   #159
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Rara, I believe Zeldox is an atypical - all I have ever heard about it is that it makes some people restless... I know that is not much use. Glad they have changed it though and are taking you seriously.

Sorry to be lacking in words right now.

*safe hugs*

Roiben x





If the Human brain were so simple that we could understand it, we would be so simple that we wouldn't.

Emerson Pugh


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Old 29-07-2011, 05:45 PM   #160
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I have never taken ziprasidone but after my friend leaves I wull research it in my psychopharmacology textbook. I do know things about it, but I want to give you the stuff from the book to make sure. I hope it will help you. Chlorpromazine is a very sedating drug, is it helping you to sleep? I'm sorry to hear the psych is not letting you out, I know how frustrating that can be.



PM me if you want a PDF copy of the ICD-10 or the Mental Health Act 1983/2007. I ALSO HAVE THE DSM-V BOOK and am a pharmacology student.

I have a visual impairment / neurological problems so I need people to type in clear text and no funny fonts. Also excuse any typos, my vision blocks things out.
I have autism and have problems communicating, PMs included.
Just becasue I type well doesn't mean I speak well. I am only part time verbal.


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