please tell me things can get better *updated* - Page 2

Sigma · 28-11-2009, 01:22 PM

Thanks petal... I see a psychologist weekly, just the psychiatrist occasionally. I think he's going to suggest a mood stabliser next, once the AD had settled... not sure I want another set of side effects but we'll see. At least the ADs are reducing my appetite and I'm definitely in swimming costume shape for the summer, without even trying! so there are some benefits ;)

Looking back, I think part of the problem was a stressful week at work (running training sessions which is always exhausting, and these groups are full of angry, negative people - so negative most didn't turn up, hoooray!) and that sent me 'down'. Things wind down for Xmas now though, so hopefully a month or two of low stress and lots of sitting around chatting!

take care of yourself, I'm glad you've got the therapy stuff to a point you're comfortable with!
xx

Merc · 28-11-2009, 02:17 PM

I've been on a MS for..hmm..3 years? I love it. No side effects, inexpensive and works so very well.
So *fingers crossed* the same for you.
I'm glad things are soon to settle down!
You sound a bit more positive/less stressed already.
love ya
xx
(and thank you muchly for all your support!! Means a great deal to me)

Sigma · 11-12-2009, 10:02 AM

thanks everyone for your support - things have got better! This AD seems to be having an effect, and I've just started on a MS to see if that will nuke the final symptoms (lamotrigine - so no need for blood tests... just the possibility of a fatal rash, but 'no other side effects'!)

Here's hoping this will last a while...

xxx

CeNedraLivesOn · 11-12-2009, 10:10 AM

Hi Tokoloshe
(also in the good ol RSA ...)
I've just come back here after a loooong absence, hope you don't mind me replying to you. Glad the AD's seem to be working. The MS can work really well - I'm just about to try another one. I tried Lamotrigine first and I almost laughed when my pdoc told me we had to make the dose going up really slowly because there was 'a chance of a rash' - I thought a rash? how bad can a rash be?? Unfortunately I found out!! Just remember that you can get other allergic symptoms before the rash so don't assume it's not that just because there's no rash!
OK, off my soap box now, I just have this thing about making sure EVERYONE on that drug knows to be careful!! I've heard it can be really really good though and work really well.
Hope it works well for you.
Ce.

Sigma · 11-12-2009, 01:36 PM

Hi Ce!

yes, it made laugh.. the psych said 'no side effects except sudden death' - well words to that effect... how long did it take for you to have a reaction? Have been taking it for 3? days now, so far so good. Apparently it affects about 10% of people, which is high, but worth a try because better for you than lithium if it does work...

Merc · 11-12-2009, 09:52 PM

Hope it works well for you.
Keep us posted ok?
xx

CeNedraLivesOn · 14-12-2009, 09:37 AM

I was on 50 mg per day for 2 weeks, then upped it to 100 mg per day, supposedly for another 2 weeks before upping it again - 3 days into the 100mg dose I got sick. I was really lucky, I got SJS it didn't go to TENS which is the really bad one, but I lay in hospital with the words from the pamphlet going through my head "disfiguring, disabling or fatal rash"!! The secret is though to stop it immediately if you get a reaction, I think it only goes to TENS when you keep taking it. AND as you said it is much better for you than other drugs and can work really well. I might try something similar next year only prob is once you've had SJS (Steven Johnson's syndrome) you're more susceptible to getting it again and it's not something you should get twice.
I hope it works really well for you.
Sigh, trying this med then that is EXHAUSTING!
Hang in there ...
ce

Sigma · 14-12-2009, 01:07 PM

so far so good... have started on 2 weeks of 25mg, then up by 25mg every 2 weeks until 100mg

just the extreme tiredness to deal with, but that's the AD not the lamactin - sounds like you've got something similar going on...

don't you just hate all this meds stuff?

CeNedraLivesOn · 15-12-2009, 09:01 AM

Yea I'm also doing trying this and that at the moment, and it takes MONTHS!! And each time its a new one or a change there's the tiredness and nauseau etc etc yuck!!! I feel like I'm personally keeping the pharmaceutical companies in business .....

Sigma · 15-12-2009, 09:14 AM

well, in this time on economic uncertainty, we must try & keep the wheels of industry turning! Though I'd rather be throwing my money into more pleasant things :)

CeNedraLivesOn · 15-12-2009, 03:26 PM

Hee Hee
Ah well - I'm off work for 2 weeks now shall return to RYL when I get back - have a blast ..... Ce