Severely Triggering (ED) - In-Patient *UPDATE!! FUNDED FOR ONLY 2 WEEKS*

[[LittleMonster]]

HUN *holds you tight*
Don't let go of hope because the idiots wouldn't fund you, they're obviously blind and bloody stupid.
You can get through this, you have lots to live for even if it doesn't seeem it now
We all love you, care for you and are behind you 100%!!
You will get the support you need babe
I love you

[Sleepless123]

PLEASE be safe.

*sits with you*

i love you.

Remember im here for you anytime day or night.

Please, please be safe.

xx xx

[Snow White.]

Helen sweetheart please, don't give up, don't give up we are all here for you and Sarah has many wise words she's already said above me, you can appeal it and if they made any recommendations (like a dietician?) maybe try that too, please Helen, whatever you do do not give up. We're all here to help you through this, every single step of the way. You're not alone, we're here for you.

xxxxxx

[wigglemuffin]

I know I don't speak to you, but after reading the majority of this, it's a joke, it really is.

Please please stay strong and safe, so many people care and love you.

Keep strong

Katie xxx

[finding.my.wings]

Oh my God
Helen, im so sorry....i would hug you now if i really could.
those people... they are really stupid, how can they not see that you're sick and that this is what you need. Hun, Please Dont Give UP.........YOU CAN AND WILL GET BETTER, YOU WILL GET HELP.

there are other things you can do right now as many others have suggested... please dont stop fighting.

love <3 you.

[MissAnonymous]

Sadly Im not surprised. You need to appeal the decision, a lot of people appeal decisions before they get a result, I know its hard not to be put off, but this happens a lot but it doesnt mean you wont get a result later on. I know you need it now, but this is another reason to fight harder and seek support from people around you.

Maybe you can get all the professionals working with you already to write statements. Ask for all the funding paperwork to be sent to you under the freedom of information act, and with the people seeing you now, work through it and nit pick all the inconsistancies and discrepancies and make a case for the appeal.

I've had to do this with other things before and its amazing how you can show up their clear mistakes to a panel when you pick through and quote, highlight and counter their statements with what the people working with you now say.

I also wanted to say, it is not impossible for you to recover out of hospital, just because they say the reccomendation is 4-6 weeks in hospital, it does NOT mean you cannot do this without it. Ideally that would be the best way to break your frequent binge purge behaviours, but if you have a dietician now, there is ALWAYS work that can be done to improve things here and now. The fact is if you want it, it can happen, being in a hospital building isnt what makes recovery work, it has a lot to do with what you take from the people you work with and how you intend to move forward.

I dont think now is the time to give up hope, you still have a lot of people fighting for you, so fight with them and Im sure you'll get where you want to be.

[EyelinerAndCigarettes]

Quote:

Originally Posted by MissAnonymous

Maybe you can get all the professionals working with you already to write statements. Ask for all the funding paperwork to be sent to you under the freedom of information act, and with the people seeing you now, work through it and nit pick all the inconsistancies and discrepancies and make a case for the appeal.

That is a brilliant idea! I'm writing a letter to my GP, CAMHS teams etc asking for information on Blood tests, funding paper work, etc. I can hopefully forward it onto the funding people then. Thank you so much! I didn't know about the FOIA

x

[EyelinerAndCigarettes]

Just thought I'd let you guys know I just sent an email to my local hospital asking for all the notes on admissions because of ED complications

[Snow White.]

Well done Helen, keep fighting, MissAnonymous has some good tips and advice too about what to do in the meantime before you get the funding. Don't give up; show them you're willing to work for this. Well done on being persistant and getting the letters/info etc, that's a great move :)

[EyelinerAndCigarettes]

I would love to die right now.

[Snow White.]

*sits with you*
Oh Helen I know this must be so tough for you, please keep talking and keep yourself busy & safe. Is anyone home with you right now, or maybe you could call Sarah for a bit of a chat? You can get through this and we are all here for you and rooting for you to get the outcome you want, deserve and need. You can do this love, don't give up.

Maybe distract yourself for a bit on the computer or something? I know it's sounds silly but I know you do great pretty things with images, maybe editing more pics of you & sarah might distract your mind and cheer you up. Whatever it takes to get through moment by moment, yknow? Baby steps.

xxx

[l.e.g.o]

i read this all before and it totally shocked me that they refused funding
please keep fighting helen
you are good and strong and you can do this
your in my thoughts
take care
and i'm right behind you
xxxx

[fragile as glass]

Dont give up fighting just yet. The funding bodies often refuse funding first time round to try and save money but if you appeal with a good case behind you then they will find justifying you funding a second time round very difficult. If they think that you have given up then they will find little reason to help you (sad but true) so dont give up, keep going and take all the support you can get right now.

And yes, you have the right to a free advocate to help you put your case together and/or present it to the appropriate people. Also they will attend meetings with you if you wish and make sure youre not taken advantage of by the authorities.

[[LittleMonster]]

As Fragile just said, do not give up
Appeal against this!!
Make a petition, write these letters, go to your MP, just do whatever you have to do to be funded.

Love u
xxx

[Shambles]

Helen, don't give up. Sending that email to the hospital was such a positive step. As everyone has said so far, it is clear that you need the help, and it will only be a matter of time before they realise that when you start the appeal process. In the mean time, I do agree though that you should look at getting help from other people, a dietician so you can say that you've tried that, and also so that you're not trying to do this without added support.

I am truly shocked that they didn't approve the funding, however, everything worth having in life comes with a bit of a fight. When you do get into Cotswold, hopefully the fact you have had to battle to be there will make it even more of a valuable experience for you.

Thinking of you right now xxx

[Revival]

Please don't give up Helen, I am so so sorry that you're in this position and struggling so much, I wish that I could do something to help. I can't believe that they refused the funding it is so obvious how much you need the help right now. I can really only echo what has been said, and well done on emailing the hospital that was a really positive and brave step. You will be in my thoughts xxx

[EyelinerAndCigarettes]

Wow. I am so humbled to have such beautiful people in my life, Thank you all so much for your support, you have no idea how much it means to me. Knowing I'm not alone in fighting this.

I will keep fighting, its just a bitch having to go through all this, all over again & wait more months. The hospital is sending me paperwork to fill in for my medical records & I made an appt with my GP.

Gosh I feel so low & depressed though. Hm...

[Buttons.]

I think maybe it might help if you could manage to let yourself do/have something that helps you unwind and cheers you up, e.g lie in bed with a good (none MH related) book or if you have TV in your room watch a nice cheery film like Disney.

[Shenanigans]

I agree with Buttons hun, I'm so proud of you for fighting this and being so strong but remember to look after yourself. Play computer games, watch TV/movies, read, etc you need time away from this as well, time to breathe and let your mind unwind a bit.
Take care of yourself and stay safe
Xxxx

[NeonHaze]

Im very sorry about your funding getting denied, did they give you a reason for it? Also, sorry if Im prying, but since your in Wales do you know why they didnt refer you to the ED unit in Bridgend?