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20-12-2013, 07:54 PM
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#1
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Join Date: Dec 2009
Location: England
I am currently:  
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Clozapine? Last resort?
They've tried near enough every anti-psychotic there is and I haven't responded to any of them.
So my team are starting me on clozapine after Christmas. I am terrified because there seems to be so many serious side effects (bone marrow, white blood cells etc).
Has anybody have any experience with Clozapine; positive or negative?
Thank you!
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When you try your best but you don't succeed
When you get what you want but not what you need
When you feel so tired but you can't sleep
Stuck in reverse
And the tears come streaming down your face
When you lose something you can't replace
When you love someone but it goes to waste
Could it be worse?
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20-12-2013, 08:20 PM
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#2
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90's B*tch
Join Date: Sep 2008
Location: Hyrule
I am currently: 
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I was on it for 3 years and it did help although it was quite sedating.
They monitor your bloods so closely (once a week at first, then once a fortnight, then monthly) that even if something were to go a bit wrong with your bloods, they would catch it before anything serious could happen.
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I'm fine! Totally fine. I don't know why it's coming out all loud and squeaky, 'cause really, I'm fine!
Who else is fine?!?!?
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21-12-2013, 09:06 AM
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#3
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Join Date: Jun 2008
Location: London
I am currently: 
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I've been on clozapine for nearly 2 years and it's helped a lot. At first I was really sedated and had really bad consitpation but that went after a while. Inititally I did put on quite a lot of weight but that too stopped after a while.
It's a really good medication, try not to be too worried about the serious side effects, like cacoethes said, they monitor you very closely.
Will you be going into hospital to start it or with the HTT?
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sticks and stones may break your bones but words can tear your heart out.
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21-12-2013, 12:18 PM
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#4
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Join Date: Dec 2009
Location: England
I am currently:
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Thanks for the replies.
I'm currently an inpatient
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When you try your best but you don't succeed
When you get what you want but not what you need
When you feel so tired but you can't sleep
Stuck in reverse
And the tears come streaming down your face
When you lose something you can't replace
When you love someone but it goes to waste
Could it be worse?
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22-12-2013, 03:44 PM
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#5
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Join Date: Jan 2008
Location: U.K.
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clozapine turned my life around. side effects suck (weight gain, tiredness, hypersalavation, poor concentration) but for me it is worth it.
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Zelo zelatus sum pro Domino Deo exercituum.
Ying tong iddle ai po!
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22-12-2013, 10:28 PM
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#6
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Join Date: Jan 2009
Location: Middlesbrough
I am currently: 
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Ive been on clozapine for 7 years. They do make me tires but i manage this by taking large dose at night and small on the morning and thats all fine. I drool a lot when i sleep and it has made me gain a lot of weight, but im functioning. I can now live a pretty normal life. Good luck x
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And if your thoughts should turn to death, you gotta stub them out like a cigarette..
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29-12-2013, 08:04 PM
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#7
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carla1983
Join Date: Apr 2008
Location: Hertforshire
I am currently: 
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I'm on it and and it has helped with voices etc i don't like. The weight gain that's only downside for me
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30-12-2013, 08:36 AM
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#8
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Join Date: Jun 2008
Location: London
I am currently:
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If you are able to, do let us know how it goes.
Thinking of you
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sticks and stones may break your bones but words can tear your heart out.
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28-03-2014, 09:03 PM
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#9
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Join Date: Dec 2009
Location: England
I am currently:
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It's helped a bit. Still keep waking up with a soaking wet pillow which isn't pleasant. Super sedative so not really functioning at the moment, but in terms of the psychosis its helped a little.
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When you try your best but you don't succeed
When you get what you want but not what you need
When you feel so tired but you can't sleep
Stuck in reverse
And the tears come streaming down your face
When you lose something you can't replace
When you love someone but it goes to waste
Could it be worse?
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28-03-2014, 09:07 PM
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#10
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Join Date: Jan 2008
Location: U.K.
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do you put a towel on your pillow? I find it's less uncomfortable for the hypersalavation. how long have you been on clozapine now? I was very out of it for the first few weeks but it gradually improved over the months. the hallucinations etc also improved over time.
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Zelo zelatus sum pro Domino Deo exercituum.
Ying tong iddle ai po!
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28-03-2014, 11:50 PM
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#11
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Join Date: Jan 2009
Location: Middlesbrough
I am currently:
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I have 3 pillows and i swap and change through the night.
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And if your thoughts should turn to death, you gotta stub them out like a cigarette..
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