I suffer from a chronic, undiagnosed medical condition, and I don't have any idea what to do... no one I know can understand even if I try to explain thoroughly, even my parents don't get it, and they see the doctors with me.
I found a website just for people with chronic conditions and it gave me A LOT of hope because I thought for ONCE I would be able to have support from people who would know what I'm going through, and it was an amazing feeling at first.
As it turns out, I was bullied quite terribly there. I'm in the process of trying desperately to have my account deleted, because every now and then I go back thinking it will be better, only to find people saying worse and worse things to me. It kills. But they have to have an admin do it, so it takes mailing them, and confirming it... I have this compulsive NEED to check back for some reason, and every time it leaves me in pieces.
I am really, really not safe right now. I feel like I'm at definite risk for self-harm relapse and maybe even at risk for suicide.
I don't think I've ever felt so hated or worthless in my life. Or so hopeless either. And I just need these feelings to go away...
I really don't know what to do... I even sort of tried to seek support in the chat room, but I'm not very good at such things, and everyone was talking about other things, so I just ended up having to leave.
I don't belong anywhere... I hate it... I don't even know how to distract myself...
Are your doctors giving you any help with your condition? Are they managing the symptons sufficiently?
Don't worry, we're a lot more friendly here. We don't bite! :) And we're always willing to help.
The chat room in here can bit a bit... variable... sometimes people are more helpful that others, although there's usually a few friendly faces there. Don't be afraid of chat; just introduce yourself and go from there, or ask to private message someone.
It doesn't matter where you come from; it matters where you go.
No-one gets remembered for the things they didn't do.
We won't all be here this time next year,
so while you can take a picture of us.
We're definitely going to hell,
but we'll have all the best stories to tell.
I am sorry you have been treated badly when you have been looking for support. You say you have a chronic condition, but that it is not diagnosed - do you mean the Drs have not yet confirmed which condition you have?
I have medical conditions, and understand how much time and effort they can take up in ones life. I also know how hurtful it can be for someone to say things about you or the condition.
I hope you are able to find some support here. Chat, as said above, can very much depend on who is in them at the time and what level of support is available or needed. Sometimes just saying hello and that you are new can be enough to kick start a conversation - do try going back a couple of times as it can take a while to find your feet in there.
Be gentle with yourself.
Roiben x
If the Human brain were so simple that we could understand it, we would be so simple that we wouldn't.
Are your doctors giving you any help with your condition? Are they managing the symptons sufficiently?
Don't worry, we're a lot more friendly here. We don't bite! :) And we're always willing to help.
The chat room in here can bit a bit... variable... sometimes people are more helpful that others, although there's usually a few friendly faces there. Don't be afraid of chat; just introduce yourself and go from there, or ask to private message someone.
They're trying. Well, some of them. Some are more helpful than others. My symptoms aren't really controlled very well, because what we're having to do currently is treat each one individually since they don't know what the main problem is, and that's usually harder than treating one actually condition, which in most cases would help most or several of the symptoms at once.
Quote:
Originally Posted by roiben
I am sorry you have been treated badly when you have been looking for support. You say you have a chronic condition, but that it is not diagnosed - do you mean the Drs have not yet confirmed which condition you have?
I have medical conditions, and understand how much time and effort they can take up in ones life. I also know how hurtful it can be for someone to say things about you or the condition.
I hope you are able to find some support here. Chat, as said above, can very much depend on who is in them at the time and what level of support is available or needed. Sometimes just saying hello and that you are new can be enough to kick start a conversation - do try going back a couple of times as it can take a while to find your feet in there.
Be gentle with yourself.
Roiben x
My doctors haven't a clue really. They've been working on a definitive diagnosis and decent treatment for about four years. Well, sort of. For a long time it was assumed it was all a symptom of anxiety and depression, but that theory was flipped as my condition progressed to include symptoms that aren't normally symptoms of psychological conditions and things too severe to normally be caused by such things. So we really have no real clue what it could be. Which makes it all that much harder to help people understand what I'm going through, and get support for it. This website I was on had plenty of people going through the exact same thing, and it excited me for a bit, until it was made apparent I was not welcome there.
I feel so awkward in the chat... I've tried a few different times, but I can never really seem to get anything going, or be included at all really. I used to use it a lot, but it was a long time ago and I can't remember how I used to do it. >.< It's strange. I'll keep trying, I suppose, but I've forgotten so much about how to deal with people properly over the past few years somehow. I'm not very great with such things.
Which makes it all that much harder to help people understand what I'm going through, and get support for it. This website I was on had plenty of people going through the exact same thing, and it excited me for a bit, until it was made apparent I was not welcome there. 
