More spinal surgery?!?!

[LuvableLyssie]

The surgeons are considering more spinal fusion for me (loooong story) but to cut it short I have scoliosis and it's got worse despite having a full fusion mass - it shouldn't get worse when you're already fused for it. But I suffer a lot of pain at L5 and they are considering extending my fusion to L5, perhaps lower as I'm already fused T11-L3.

I am petrified, it's a rather major surgery as they're messing with paralysis! I know I've been through it before and it'd be a smaller fusion so less levels to be messing with but still, I was 17 when I had the first major surgery and I didn't give a damn I was so like "yeah whatever" kind of knowing but not realising the implications etc. I'm now 21 facing my second major spinal surgery and know exactly what implications there are and how big a deal this is. Meaning a few nights in intensive care, in hospital for a few weeks, lots of morphine, physio, hydro, a year of no BLT - bending lifting twisting perhaps a spinal corset to keep the fusion in place while it heals.

I'm seeing my surgeon on Monday the 13th so we can discguss where to go with it all. Because my pain can't go on like this either!

Just a hug or 2 would be great if you guys would sit with me that would be great too!

Lyssie xxx

[88shelz]

if it is going to be helpful to you in the long run then maybe it is worth it.
speak over al your concerns when you see the surgeon
everything is gonna be ok x

[LuvableLyssie]

Thanks so much Michelle! I'll write a list of things I want to ask I think that way I don't get tooo nervous talking to him. Thanks again xx

[88shelz]

writing things down is always a good idea so that you go ovver everything you need to.
any type of surgery is daunting so having concerns is natural.

[LuvableLyssie]

Thank you so much and thank you all for the hugs. Xx

[crazykat]

*sits with you* Discuss your concerns with your surgeon they may be able to ease some of your anxiety. Haven't really got alot of advice but here if you need anything

[LuvableLyssie]

Thank you so much xxxx

[Snow White.]

*sits with you Lyssie*

So sorry to hear of this :( Lovely to see you, even though things are not going so well right now. Be strong you'll get through this. I hope it all goes okay.

Thinking of you.
xx

[UnanimousAnonymous]

Hey hun sorry i have only just seen this thread and i wanted you to know i can kinda understand how you feel. My mum and me have scoliosis and she has had her lower spine fused. She also has a body brace and has to self cathatarise. Mine at the moment is managed with exercise and physio so i cant understand the pain of surgery but ive seen my mum go through it. If the doctors think you should have more ops then it may be for the best. Also dont forget you can voice your concerns and they can explain things to you. Take care and if you need anything then my pm box is always open xxx