I scared this thread might anger people because they usually have the opposite problem. I'm not trying to anger or upset any one I am actually finding it a real problem.
Resently my mental health team have been seeing me too much and im starting to get sick of it.
My cc sees me twice a week and calls me 2-3 times a week (she actually called me 3 times today already). My psych wanted me in hospital but im not sure it's necessary so I said no so now htt see me daily.
I've had 2 MHAs in a week at home.
My housing support worker sees me weekly too.
Yea I've been having some anxiety and some stress but im not that ill. Not enough for all of this attention.
I've asked them to reduce visits and discharge me from htt and they say no. They just keep saying they are worried and when I say about what they don't answer.
I'm really no sure what I'm doing wrong and know this time and treatment could be given to someone who is really ill but im getting it instead.
It's like the opposite extreme to those who struggle to access help.
I know i should be greatful and i am I just feel a bit overwhelmed because I'm running out of things to tell them and they just keep telling me "I don't think your telling us everything"
I mean what do they want to know? The colour of my knickers.
The average,
well-adjusted adult
gets up at 7.30am feeling just plain terrible.
Call me Kate.
I have dyslexia so please excuse my poor spelling and sometimes poor understanding.
Wow.. Sounds like they are concerned.
I am delighted you are getting support
If you don't feel it's necessary do you think you can ask for more space or independence to see if it helps you in anyway?!
On a different note (sorry if you think this is inappropriate I don't mean it to be) if you are still so involved with services etc do you think going back to work so soon will be helpful or do you need more time?
I don't understand myself... I'm searching for the person I am, and the person I want to be..
To be honest it sounds like you need that level of support right now. To have two MHAs in one week means that you were seriously close to being sectioned, plus your team want you in hospital and because you've refused you're under the HTT.
You might not be the best person to decide if you're well or not as it seems you have lost some insight. Can you trust your team that you need this amount of support?
I do agree with in_BPD_hell in that starting a job when you're having the hallucinations and being unwell is probably not the best idea. I'm not sure you'd be cleared by OH if you've had MHAs so recently and been under HTT. It would probably best to be stable and not needing HTT for a few months before thinking about work.
Isn’t it funny how day by day nothing changes but when you look back, everything is different…
you once called your brain a hard drive, well say hello to the virus.
No they wouldn't explain it that's what's getting to me.
I spoke to my support worker and she suggested I get an advocate to help iron out some of the confusion.
The average,
well-adjusted adult
gets up at 7.30am feeling just plain terrible.
Call me Kate.
I have dyslexia so please excuse my poor spelling and sometimes poor understanding.
I see someone from student support, a psychiatrist and care coordinator through early intervention and a mentor through DSA.
Most of the time we organise it so I see either the person from student support or my care coordinator each week, my psychiatrist every couple of months and my mentor every fortnight. In the summer I had a hypomanic episode and they all wanted to see me weekly and my CC phoned me in addition to my appointments and they wanted HTT involved too but I said no to that. I just wanted to scream "leave me alone". I was fed up of saying the same things over and over again and begrudged having to spend time with them when I could have been spending the time being awesome.
That hypomanic episode was my least destructive, was brought under control more promptly than my previous ones. Their support enabled me to continue at uni and it kept me out of hospital (which was also being suggested). Yes it drove me mad at the time, yes it was a pain, I felt so guilty for taking up everyone's time for "just" a hypomanic episode and I felt such a relief when they started to back off again but it did make a difference.
Hang in there, try to be open and honest and I hope things start to look up for you. Here if you need someone to talk to.
Are you having any delusions?
Are you eating?
Are you self harming?
They haven't said im delusional. They haven't actually said what's wrong with me (if anything).
I'm eating fine.
I haven't self harmed for years and have no plans to do so.
The average,
well-adjusted adult
gets up at 7.30am feeling just plain terrible.
Call me Kate.
I have dyslexia so please excuse my poor spelling and sometimes poor understanding.
I see someone from student support, a psychiatrist and care coordinator through early intervention and a mentor through DSA.
Most of the time we organise it so I see either the person from student support or my care coordinator each week, my psychiatrist every couple of months and my mentor every fortnight. In the summer I had a hypomanic episode and they all wanted to see me weekly and my CC phoned me in addition to my appointments and they wanted HTT involved too but I said no to that. I just wanted to scream "leave me alone". I was fed up of saying the same things over and over again and begrudged having to spend time with them when I could have been spending the time being awesome.
That hypomanic episode was my least destructive, was brought under control more promptly than my previous ones. Their support enabled me to continue at uni and it kept me out of hospital (which was also being suggested). Yes it drove me mad at the time, yes it was a pain, I felt so guilty for taking up everyone's time for "just" a hypomanic episode and I felt such a relief when they started to back off again but it did make a difference.
Hang in there, try to be open and honest and I hope things start to look up for you. Here if you need someone to talk to.
Thanks but by the sounds of it you actually had something wrong with you.
I don't believe there is anything significantly wrong with me except a bit of extra stress which they are just making worse by stressing me out over so much support
The average,
well-adjusted adult
gets up at 7.30am feeling just plain terrible.
Call me Kate.
I have dyslexia so please excuse my poor spelling and sometimes poor understanding.
My level of paranoia gets assessed at reviews with my CC using the PANS scale (I think that is what is called) would it be worth asking them to do something like that with you then you would have evidence to support the fact you aren't paranoid for them.
I have just got a call off my mum saying she had a voice message off the amhp saying would like to talk to her.
They didn't ask my permission.
Is this braking confidentiality?
As far as I know I'm not currently being considered for section. Well that is what I assumed when psych seen me today.
Wtf?
The average,
well-adjusted adult
gets up at 7.30am feeling just plain terrible.
Call me Kate.
I have dyslexia so please excuse my poor spelling and sometimes poor understanding.
If any of the MHA assessments recently came about because your mum requested one, or if she has contacted them then it could be her getting back to her as she is you NOK (?)
Perhaps ask her if this was the first she has heard from them.
I can't say if its breaking confidentiality because I don't know and that would be a big accusation to make, could cause a lot of confusion and upset for someone on here to comment when none of us really know what is going on. Not that I think its any help me saying this cos it seems you don't know the full story either.
I suggest you keep asking questions and insist on an advocate and if you feel they are not answering questions you can request your notes. There is a policy that encourages staff to show your notes (at least the ones that particular professional has written) to reduce the need for formal requests.. I'll have a google but I have tried to use this before. An advocate may be able to help also.
I have asked her what she would say if they decided on a MHA and she said she would say I don't need one and she is against medication for me. Which is good but im not sure how much say she would have.
I'm so sick of them just doing stuff and not asking me or explaining why or even making me aware what they may do.
The average,
well-adjusted adult
gets up at 7.30am feeling just plain terrible.
Call me Kate.
I have dyslexia so please excuse my poor spelling and sometimes poor understanding.
I am not surprised - they have no respect for confidentiality (disclaimer - in my opinion... I know this isn't everyone's experience...!!)
all I would say is sometimes they need to speak to those closest to you to get a full picture or understanding of what is going on for you at the moment
try not to let it bother you or wind you up
I don't understand myself... I'm searching for the person I am, and the person I want to be..
Right, some trusts will allow informal veiwing of notes, perhaps bring your mum with you so she can understand what is happening too...
For example Central and North West London Foundation Trust say on their website that; 'We are happy to facilitate access to your records. We can provide informal access through your doctor or other practitioner. Just ask to see your recent notes (less than 40 days old) and they will discuss them with you.'
I understand the uncertainty must be hard but try and remember that whatever really is happening, they must be thinking they are doing the right thing by you, even if they have got it wrong. They're not wasting time on you, is what I am saying, you have been very unwell.
I think you should write down a list of clear questions to your care team, be constructive though, don't just try to argue your point from the off.
As suggested you could ask them what clinical assessment they have made and why. If they explain their assessment tool and clinical indicators you might get a more direct answer. Again though I would have someone with you if possible.
