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Old 12-09-2023, 05:14 PM   #241
Moonlight Princess
Never forgetting to be awesome
 
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Oh Jen I'm sorry, I'm sending you respiratory good vibes!



Unless someone like you cares a whole awful lot, nothing is going to get better. It's not.


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Old 14-09-2023, 11:27 PM   #242
long road
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Thanks Kiran. Am out of hospital at the moment and have got an appointment with the fancy consultant who specialises in difficult asthma tomorrow.

Today I am proud that I made a lot of medical phonecalls to co-ordinate my care and advocate for myself.
Including getting my neuro OT to write a letter to help me explain FND and adjustments I might require in the hospital environment. She is going to put stuff in my notes too but as not everyone looks at notes in an acute admission for a condition other than the one you have been admitted for, it's good to have something physical to handover. Partner has being doing his best to explain my needs as my carer and some have listened but something from a medical professional should help reinforce what he is saying or allow me to handover an explanation.




QUACK!


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Old 15-09-2023, 04:42 PM   #243
Accidentally Abstract
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I've done so many things today which I'm quite proud of, so this seems like a suitable place to brag. :P

I have:
- Got myself out of bed and done a full day of work despite really not wanting to.
- Contacted IT at work and sorted out an access issue which was annoying the hell out of me.
- Organised the cleaning schedule for a cleaner to come in every fortnight from next week (hooray for PIP!).
- Sorted out a blind to be put up in the kitchen with the estate agents, to stop us being blinded by the sun when washing up at certain times in the day.
- Cleared sorting to the handyman to organise him putting up my lovely new shelf thing - as well as speaking to him about payment for him putting my furniture together a couple of weeks back.
- Clarified the process for something at work, and (right at the start of the project) made sure it didn't randomly go off-course and change unnecessarily just because of a new project manager.
- Had 3 work meetings.
- Set up the new rent standing order ahead of the tenancy renewal.
- Ordered a scart lead, firestick and aerial to set up the telly.
- Reassured my current flatmate.
- Spoke to my new flatmate about various things.
- Put bills onto a new system so that me and new flatmate can split them correctly.
- Spoken to broadband provider to sort re-registering account and fixing an issue with OTPs.
- Rearranged this evening's plans when my friend told me she wasn't feeling well.

I'm also hoping to do some laundry and get myself organised ahead of the new module starting this evening, possibly, now that my plans have changed. But I might first have a nap because I'm quite tired after all of that!



Ride it out.
"I need a sunrise in the dark."


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Old 15-09-2023, 07:13 PM   #244
one_step_closer
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So much, Luce! Well done. You have every right to brag!





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 16-09-2023, 01:10 PM   #245
Moonlight Princess
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Jen, as someone who has tried to advocate for myself recently props to you. That sounds it will be very useful and I hope your appointment with the consultant went well yesterday.

Lucy! Holy Christ! Well done! I'm tired just reading that!



Unless someone like you cares a whole awful lot, nothing is going to get better. It's not.


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Old 18-09-2023, 08:54 PM   #246
Moonlight Princess
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  • Meditated
  • Took meds
  • Did some physio
  • Booked physio appointment



Unless someone like you cares a whole awful lot, nothing is going to get better. It's not.


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Old 20-09-2023, 09:58 PM   #247
Moonlight Princess
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Read a quiz even though I was nervous about it



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