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Old 22-04-2021, 11:08 AM   #1
shadow-light
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diagnosis - are you usually told?

so I have requestioned my medical notes for benefit application reasons. Anyway I just received them and have discovered that I have several diagnosis's on there that I was never told about... is this normal?



apparently I was diagnosed with borderline persoanlity disorder in 2015 and bipolar in 2016... but noone have ever told me of this





also I wasn't even in treatment in 2015 or 2016...





I am not sure how I feel about this, but I do kind of disagree with both diagnosis's


just curious if this sort of thing has happened to others as I kind of assumed that when diagnosed with something I'd be told

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Old 22-04-2021, 11:31 AM   #2
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Unfortunately it happens all the time. At least in my experience.
It is very rude of the doctors to do this



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Old 22-04-2021, 11:40 AM   #3
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i'm mainly scard that the job centre will now see me as having lied on my PIP and WCA forms... The list of diagnosis's here is totally different to what I wrote...



Also, and this may be bad of me, I kind of really dislike the idea of been seen as having BPD...

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Old 22-04-2021, 11:55 AM   #4
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I'm sure they'll understand if they even question it.

Basically if you've ever self harmed in your life and/or had previous trauma, you get slapped with a BPD diagnosis.



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Old 22-04-2021, 11:57 AM   #5
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ye I just went though the DSM5 requirments for BPD, I honestly think the self harming is the only bit I fit into

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Old 22-04-2021, 12:08 PM   #6
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Unfortunately professionals can be lazy like that.
Definitely worth bringing it up with your doctor



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Old 22-04-2021, 12:11 PM   #7
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he's phoning tomorrow afternoon, I already have a fair list of stuff to mention... I will try to crowbar it in though





my main confusion is that I wasn;t in treatment in 2015 or 2016, so who the hell diagnosed me?

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Old 22-04-2021, 12:52 PM   #8
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Definitely try and mention it

That is very strange



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Old 22-04-2021, 01:48 PM   #9
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Ok so I've gotten over the shock and looked through the DSM properly about BPD... and... I'll accept that maybe...

Bipolar though I'm not in any sort of agreement with and cant understand why, if I was diagnosed with it in 2016, I've never been offered any sort of treatment

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Old 22-04-2021, 02:33 PM   #10
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It is certainly very odd



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Old 22-04-2021, 06:04 PM   #11
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I know I'm in a different country, but I don't normally get told any diagnosis. I usually have to ask, and it's something that they typically handle with care re disclosing.

If it were me I would ask who diagnosed the condition and why. Basically, if it was a medical doctor who diagnosed and/or someone in a brief crisis type assessment, then I'd ask for it to be removed. That's when you usually get hit with a lot of weird mental health diagnoses, kind of like what Beckie mentioned.


I've also randomly been diagnosed bipolar by a psychiatrist who assessed me once, mostly because there was a language barrier and they literally understood none of what I was explaining. It was pretty weird.



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Old 22-04-2021, 06:29 PM   #12
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I also don’t currently know my MH diagnosis.

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Old 22-04-2021, 07:28 PM   #13
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maybe this is more usual than I assumed then... I just kind of assumed that we'd be told our diagnosis's in order to help us to understand ourselves

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Old 22-04-2021, 07:38 PM   #14
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So I'e always been told that they don't generally disclose diagnosis because it can actually be damaging and confusing to someone to hear. That's part of why I wasn't allowed to find out without having a specific session from the provider who diagnosed me, so they could explain and we could discuss. I also haven't been allowed to have access to treatment and medical notes without the same thing, and without some things still being redacted for similar reasons.

I don't think it's unusual, but again I am in a different country.



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Old 22-04-2021, 07:42 PM   #15
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I guess that makes some degree of sense...


but in my case I've actually felt hugely better once I've discovered what's "wrong" with me as it's helped me to understand what's going on, and in some strange way made me feel better about myself as I am no longer blaming myself so much

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Old 22-04-2021, 07:49 PM   #16
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Yea I totally get that! I think a lot of people like knowing for that reason. I think it's just they want to be careful how people get told that way there is time to discuss and explain if needed. I've had some diagnoses that have been particularly difficult for me to understand and accept, so having been able to have that discussion versus just finding out in notes probably was important. Everyone is different.

Basically what I've always been told is that if you ask for a diagnosis, they have to disclose. But they typically don't unless you either directly ask or it is relevant to tell you.



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Old 22-04-2021, 08:01 PM   #17
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i do think i would rather have been told than have just discovered it in my notes today, it's left me feeling a bit confused and sort of questioning a lot... I think the having a discussion and proper explanation makes a lot of sense

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Old 22-04-2021, 09:35 PM   #18
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Just a note that in the UK doctors don't use dsm they use icd. So if you read the bpd part of that you might see where they are coming from.



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Old 23-04-2021, 08:10 AM   #19
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I checked the NHS and mind websites too, and multiple others. My default reaction to stuff like this is to do ALL the research

I'm still not convinced by the diagnosis of BPD, in part as I feel that my autism diagnosis and upcoming ADHD diagnosis do cover a lot of the traits... also apparently BPD and autism are often misdiagnosed as each other - though still looking into this for anything other than anecdotal evidence.

Now that i realise that people are not always told their diagnosis - my bad for assuming. My main confusion with both of these , previously unknown to me, diagnoses is that I wasn't seeing a psych at the time so cant figure out how i could possibly have been diagnosed (I didnt even see crisis in either of those years and to be honest barely saw my GP). Also not sure why I never got offered any sort if treatment. But, I am going to leave it for now as my anxiety and panic attack issues are the priority right now, I really need to be able to leave the house again. I will mention the whole diagnosis thing to my GP at a later date.

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