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Old 14-09-2024, 06:41 PM   #41
one_step_closer
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When's the deadline for sending the email? It must be difficult, I understand. What makes it difficult for you to take meds in the morning? Will you be able to contact someone early on on Monday to see about where you're staying and also about getting your wheelchair sorted?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 17-09-2024, 01:18 AM   #42
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Not really a deadline for the email as I'm not even sure it will help but I've sent it any way.
I had to move this morning to a new hotel. The hotel doesn't have a restaurant so if my wheelchair breaks food will be harder to get. I also can't charge my wheelchair close to my bed so if I need to charge it at night I can't use it because it will be plugged in far away from me. If charge it in the daytime I can't move away from the plug. It's fine though. I'll cope.
My dad temporarily fixed my chair.
The meds thing - my mood is just better in the evenings, it always has been



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Old 17-09-2024, 11:24 AM   #43
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Well done with sending the email. I will keep my brain fingers crossed that you get a good outcome. The hotel doesn't sound very suitable for your needs. I hope you can find a way to manage. So what is your mood like in the mornings that prevents you from taking your meds then?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 17-09-2024, 06:32 PM   #44
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Thanks Lindsay.
In the mornings I just generally feel lower and more tired but today I took the citalopram in the morning and it might have helped because I have been productive (for me).

Now that I am at least here for two weeks I have been working on my appeal and the process is confusing me. So last month I went to a non-formal meeting during which the course co-director strongly suggested I withdraw but as that wasn't formal I'm waiting for the uni to communicate with me re whether they are going to ask me to withdraw (which I can then appeal). Currently I'm just appealing my results.



You cannot get through a single day without having an impact on the world around you What you do makes a difference, and you have to decide what kind of difference you wish to make.


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Old 18-09-2024, 11:26 AM   #45
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I think if you're supposed to take your meds in the morning there is definitely a reason for it and that could be why you were more productive. What helped you to take it yesterday morning? Is there a way that can make it easier for you to do that all the time?

That sounds like so much stress. Are you getting any support with the appeals?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 30-09-2024, 03:39 PM   #46
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I think sticking to getting up at the same time would be helpful but I can never seem to do that
Ywp I have support from friends, student support, Unite Union I'm moving hotels again today and that always unsettles me. My mum had to help me carry bags. I didn't want to invite her into my life more than I had to. I made a mistake, I don't actually want her here. It unsettles me too. It churns me up inside.



You cannot get through a single day without having an impact on the world around you What you do makes a difference, and you have to decide what kind of difference you wish to make.


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Old 30-09-2024, 06:17 PM   #47
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It can be so hard to get into a routine with your sleeping schedule. It took me a while to get into a good pattern but it is achievable. You don't have to be getting up really early either, just a time that you can consistently manage and setting an alarm helps. I found that I can get up consistently at 9.30am but not 9am so it's really all about what you can manage as long as it doesn't make you miss appointments etc.

I'm sorry you're having to go through another move and it and seeing your Mum is unsettling for you. Can you try and plan for someone else to be able to help in the future?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 05-10-2024, 10:46 PM   #48
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Yeah moving my wake up time backwards has helped, thanks!



You cannot get through a single day without having an impact on the world around you What you do makes a difference, and you have to decide what kind of difference you wish to make.


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Old 06-10-2024, 11:42 AM   #49
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That's great! Are you taking your meds in the morning now then? Noticing any difference if so? How are things going in general? You don't have to say if you don't want to.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 06-10-2024, 12:05 PM   #50
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I feel like in general I'm more productive and less avoidant.

Things are generally pretty good in that I'm getting better at problem solving when things go wrong in my life which is a skill I'm developing living by myself. I'm so much in limbo though with my job and housing. I really, really want to win my appeal and if I don't I know it will devastate me.



You cannot get through a single day without having an impact on the world around you What you do makes a difference, and you have to decide what kind of difference you wish to make.


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Old 06-10-2024, 06:08 PM   #51
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Well done with the things you're achieving. It's so hard being in limbo, especially with such important things. What's the next steps with housing and your job? Do you have timelines for when you'll hear anything?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 19-10-2024, 05:00 PM   #52
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I have been offered a flat and it's great but it doesn't have a wet room. I've decided to accept because there is too much good about it to give it up and OT are going to try to help with the situation.

The flat is in the next road to where my old residence was and it makes me hopeful that should I be allowed back on the course then going back to my old placement might be a possibility.

I should hear back about the decision to appeal my assignment results on Tuesday but I haven't heard anything about whether the university are asking me to withdraw. On the 17th September I was told by my co-course director that I should hear something from the university in two weeks, possibly sooner and it has now been a month.



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Old 19-10-2024, 06:05 PM   #53
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Will OT be able to help you get a wet room or some things to help you be more able to access things in the bathroom? Do you think this will happen before you move in? I hope you get a good outcome on Tuesday. Is there someone you can contact to ask what's happening with the lack of contact?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 19-10-2024, 06:10 PM   #54
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Oh hooray on the flat! What is the timeframe for adaptations being made and moving in?

I hope there is good news in the pipeline with uni :)



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Old 20-10-2024, 12:55 AM   #55
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Re flat sadly no option for a wet room for 2 YEARS because it's a new build
Lindsay I'm going to wait until Tuesday to chase up other appeal I think. If it's good news then I'll feel more confident with chasing things up.



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Old 20-10-2024, 11:38 AM   #56
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That's a long time. Will they be able to offer something else that will allow you to use the bathroom safely? Sounds like a good plan about the appeal. I will keep my brain fingers crossed for you.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 21-10-2024, 01:08 PM   #57
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Got home (to mum's) after she had been on holiday and we just argued straight away. She's pissed of at me for not knowing the move in dates for the flat yet. I don't because people are on annual leave. She's stressed about co-ordinating it with her move but I don't know yet so I said let's park the conversation and she just explodes.
Sorry bit of a rant but I just had to get it out.



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Old 21-10-2024, 05:25 PM   #58
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It's ok to rant. That sounds like a difficult situation and hard to be getting all that thrown at you. I hope you are alright.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 22-10-2024, 03:17 PM   #59
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I will receive the keys to my flat next Tuesday!



You cannot get through a single day without having an impact on the world around you What you do makes a difference, and you have to decide what kind of difference you wish to make.


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Old 22-10-2024, 06:09 PM   #60
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Exciting! How are you feeling? Do you know how you're getting all the moving stuff done? I hope this can be a great thing for you.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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