I can understand how distressing this feels. The whole system is very confusing, and even the awards letters are confusing for professionals never mind people in receipt of the benefit.
Please don't be alone with it. Practically speaking, it could be worth speaking to the CAB, or seeing if any help can be offered from the people at the Benefits and Work website. Also, Mind often have specialist staff who can assist so maybe ask at your local Mind if you're still in touch with them or ring/e-mail the national Mind.
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