Oh kim Hun I'm so sorry.
I know the surgeries have been hard on uou but at the same time your hope.
Has the doctor mentioned any other options than Big surgeries?
One thing I will say is this doesn't have to stop you exploring the world it just needs to be done in a different way.
My cousin is wheel chair bound due to cereberal palsy. He has an amazing life and it does not stop him exploring the world at all. He has a job and goes on holiday and to him life is wonderful.
I know your situation is different but would having a wheelchair or one of those little scooter things help? Don't think of them as a step back but an aid to help you move forward and do the things you want to.
Will the small operations keep you on an even keel? As in, stop things getting worse?
Big cuddles. Xxx
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