Thank-you, I really appreciate it so much.
It's the uncertainty that is so difficult I think. Once we know 100% that it's gone/is going, it will make it easier I think, at the moment it's still easy to focus on what they said in March about it being probably less than a year. I think partly it's because after the initial prognosis, once the chemotherapy started they said it was really positive and they could probably do the surgery straight after that. And then after the chemotherapy finished it had shrunk (so it's still really good) but it still wasn't operable, so now I think we all just don't want to get our hopes up too much. But once we know it's ok then the uncertainty is gone.
I will try and talk to my student advisor and the hospice counsellor. I feel a bit awkward about talking to him at the moment, 'cos I've only met him once, but he says they do unlimited sessions for patients/relatives from the hospice and he seems helpful so far, so I will have a go.
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