Wow! Thank you so much everyone. I wasn't expecting so much support. How can I begin to do justice to your kindness and respect in my reply?
Excuse me for choosing one reply to quote for now - I'll come back later and respond in more depth to everyone. Irene -
Originally Posted by
Morrigan
Well I don't have much to add to the points already made, but I am proud of you for so bravely confronting your illness and the way that you constantly challenge it. Am sure it must completely exhaust you at times, but I believe that it is your sheer determination and refusal to just sit back and take it which has kept you out of hospital.
None of that means that your struggles are lesser and I think people have a reasonable notion of how hard you have to work to stay afloat.
XX
It
is so much work to stay afloat. It is a struggle a lot of the time. Being in public, around people, is especially hard for me. Back last Summer I couldn't bear anyone even slightly looking at me, it felt they were staring at me, and I felt way too exposed and vulnerable and frightened and behaved in a way from this that incited people to stare at me more, and laugh at me. Thankfully my homeopath found a remedy that helped ease this. But even when it was at it's peak, I somehow managed to keep going to work every day and do my food shopping. It was torturous though.