Sorry to hear that :( are the bad things still happening?

Not at the moment tamobhuuta. Main problem is being tired despite going to bed early.

Can you look after yourself? I'm thinking cup of tea and TV?

Oh yes I am watching TV. Things that went wrong is that I woke up in pain, my wild swimming was cancelled and my eBay order was cancelled. All happened today.

Oh dear that's not fair!

Home. Just about physically ok. Exhausted. And mentally a bit traumatised. Going to try and rest now. Might not be about much.

Hope you're doing OK lr.

I managed to sleep in my own bed for like 4 hours! Felt so good just woken up to do meds and have a late supper then back to sleep hopefully. Still running on a defecit but body has been kept ndly letting me actually get some sleep here and there tonight

Morning! Got another 5 hours or so. Doesn't magically make up for being sleep deprived but great to get some decent sleep in my own bed.

Well I got back to sleep and got 1 more hour and woke up for good about 6:30am. Been slowly working way through my routine. The differnce in my independence level at home where I am calmer and at hospital is massive. I may be slightly overdoing it by doing my morning routine independently right now but I am making myself take breaks. And partner needs to rest.

How are you all doing?

Morning lr. I might be going to O today because my sister's having her ketamine infusion. But Mum thought maybe a Haven could keep me safe for a day? They say that's what they do. So we're waiting to hear from the Crisis Team.

What does your day hold?

Definitely take breaks, Jen. Hopefully it will help you to continue to do stuff and be at home. Hope you have a good day.

I hope everything goes ok, Tamo. Did you watch any Geordie Hospital?

Hi Jen, Tamo and Lindsay :)

Hope you can stay at home this time, Jen. Must be exhausting rushing in and out of hospital. I'm crossing my lucky fingers for you :)
Would you be okay with haven for a day, Tamo??
Are you up to anything today, Lindsay?

I was just at the gp for a blood sample. Even in small amounts, downtown is stressful!!!!

Currently my day is mainly waiting around for a load of medical calls and then seeing where those go. Got my neuro OT and nurse practitioner ringing me back at some point this morning and hoping they don't try and phone at same time. Going to ask nurse practitioner for best way to chase chest CT. As on discharge summary it was expected yesterday but haven't heard anything yet.

Otherwise I am trying my best to chill listening to music and internetting I am very sore in muscles but I have taken paracetamol and ibuprofen and want to be with it so can do phone calls do laying off my prescription painkillers.

I think if my FND wasn't a zillion times worse in hospital they would just be keeping me in rather than letting me bounce.

At some point I want to try and have a shower, get last of ecg sticker stickyness off.

And now to reply to all of you
Got a bit wrapped up in myself there!

Tamo I hope haven is helpful and if not/ they won't take you then that going to O with your mum and sister isn't too stressful.

What you up to today Lindsay? You always seem to ask about us but not let us know how you are doing!

Big thanks Zurg. Fingers crossed, I only have to make it to consultant appointment tomorrow morning without ambulance and A&E. Then getting a load more tests Nd doing more planning.

Blood samples suck. I have had far too many recently. Early hours of Tuesday even my good vein complained it had been stabbed too much and so we had to use my average vein instead! Crowds also suck. How is the menagerie today?

On my way to O! Will reply to everyone when i get there.

Hope going to O goes ok Tamo.

Still no phone calls for me. But you can bet if I try to shower one will occur. Hopefully nurse will call by 1pm or so as that's when morning surgery ends. Ot could be at any point cos she will have to squeeze me around her home visits etc.

The zoo is actually very Well behaved today. But they have had a bit of a difficult night, i Think. We've had some major roadwork going on at the main road just next to our block and to minimise the impact it has on traffic, they do the work at night. Last night the very big machines were at it and it made all the furniture and the floor vibrate like crazy all night. Quite the commotion if you're a small creature!!!

Trying to pull myself together and hoover my flat. I feel partly lazy and partly exhausted. I Think i also used up the last of my support worker's battery power because things get tricky with my crazies every now and then… At least he gets paid for it :/

Well done to the Zoo for behaving! Porr them with the roadworks though as an engineer who sometimes is responsible for roadworks occurring they have my utmost sympathy and many apologies on behalf of my profession

Can you do a half arse hoover? Something is usually better than nothing.

Tis support workers job. Did talking help with crazies?

OT and nurse have both called me back detials in my thread for those interested. I now have a glorious hour and half where I am not expecting any medical calls. Going to eat some lunch and then have dhower and finally get dressed.

Osc - I haven't watched geordie hospital yet, still on Ambulance. We're now in Liverpool.

I'm glad your menagerie seems OK Zurg. Have you spoken to your support worker?

How are phone calls going lr?

Full update on phone calls in my thread. Mostly went well. Ot was especially useful. Nurse was good but mostly out of options. GP said no neb at surgery, as he doesn't like giving them and would rather I be seen at hospital if needed one, so only option if I deteoriate is go direct to A&E or ring 999. Which isn't ideal but is what it is.

CT scan scheduled for next Wednesday afternoon.

Now off to shower finally. As expecting no more phone calls this afternoon.

Enjoy your shower!

We're off home.

Shower done emotional and physical exhaustion has hit going to attempt to nap if brain / lungs will let me.

Sweet dreams :)

Rested for like 45 minutes maybe fell asleep for 15-20minutes. Coughing a bit so abandoning project nap for now.

How is everyone else doing?

Are you home now Tamo?

Not yet.

What will you do now?

Just sitting in living room watching some YouTube. Going to have dinner soonish.

Morning all

I am currently sat in majors at Emergency Department trying to get out for my consultant appointment. But consultant appointment was automatically cancelled a sI am in ED. It's a nightmare the ED sister is trying to fix it as I am stable enough to leave ED but clearly need specialist follow up before the weekend. And admitting me is not ideal or definitely necessary.

Oh dear, that's not good!

I'm going for Confession at 11.30am. The priest is new so I don't know what to expect!

Nothing is straightforward, Jen!

Hope confession goes ok, Tamo.

What are you up to today osc?

Just been to Confession and prayed my penance in church. Waiting for my mum now.

I hope it was a good confession, Tamo :)

I've been on a parcel Pick up spree/grocery shopping tour. Now i'm done with parcels for a while. I have a very small fish tank that i can't keep clean from algea at all anymore so i have bought a bigger fish tank as the increase in size makes them easier to keep clean and tidy. But getting the tank is just the tip of the iceberg. Also had to get bottom filling, plants, something for the fishies to hide in and some thingys that protect the wires from all the Electric devices hooked up to the tank. Goodness me!!! (Findus insists that a part of a balanced bunny diet must consist of various wires of any kind. Protecting your wires is easily a full time job with an indoor bunny…)
But NOW i am ready to start setting up the new tank!! Well, as soon as i've had something to eat and had my coffee.

I hope you can go home soon, Jen <3
What scandalous shenanigans have you planned today, Lindsay???

Well done Zurg. Enjoy your coffee.

Confession was good, our new priest is nice.

Hey everyone!
Finally got the energy for GC! Woohoo!

How is everyone?
Have i missed anything exciting?

Home! Hopefully for good this time but time will tell.

After a lot of kerfuffle I essentially had my clinic appointment in A&E briefly saw consultant who wasn't super helpful but reiterated the plan and tweaked a few bits. Then saw respiratory physio who was awesome and has given me a load of exercises to try to help control my breathing, open airways/ vocal chords and clear sputum. She is phoning me next Friday provided I stay out of hospital in the meantime. She was super reassuring and also gave me advice on when to escalate / that it is still ok to escalate and call paramedics just try these bits as well/ first. She said with asthma they would much rather me call and end up not needing them that not call and end up dying

Welcome back Beckie!

Thanks Dawn!
How are you?

The physio sounds really good lr.

Hi insig, how are you?

Hi Beckie, good to see you back.

Hey tamo!
How have you been?

Not great. But yesterday I doubted the voice!

That's great progress!

Go you, Tamo!

Good luck with setting up the tank, Kat.

Hi, Beckie. Nice to see you around here. :)

Glad respiratory physio offered some useful advice, Jen.

Hi Dawn, what are you up to today?

I was on hold on the phone for half an hour to request a PIP letter.

Oh dear osc, could you get on with other stuff at the same time or did you have to sit and wait?

Hey lindsay!
I have missed you guys!

Honestly, 30 mins is actually pretty good for them!

Physio is my current favourite medical professional for my asthma. Very understanding, patient and is giving me options to try and help myself with.

Eurgh DWP hold music....

I had brunch when we left hospital of a cherry and custard danish and a yoghurt, berry and granola pot from hospital restaurant. Trying to decide when to eat lunch and what to have. Due to being ill I don't have a massive appetite right now.

*Cheerleader for Tamo*

Always good to have nice professionals about!

Love a granola yogurt!
Just eat whatever you fancy! Even if it seems random!

Not really fancy much yet. Will try and raid cupboards/ fridge soon

Just stare into the fridge/cupboard and see what you vibe with!

Beckie, all about the vibes!