Average waiting list is 19 weeks and I was referred 11 weeks ago. So should be seen by October. I could try ringing hospital and politely inquiring about wait and casually mentioning that things have been worse recently in case my referral can be upgraded from routine to urgent. But I don't have energy to try that today and they might not be able to do anything anyway. Waits are long at the moment.

if I have to go to hospital again (which I hope I don't) they might be able to chase internally. Consultant I saw at A&E on Saturday 12th said he would chase them by sending my discharge summary, AMU consultant said if I end up in A&E again or being sent to see them then we need to look into getting them to see me more urgently.

Also have been referred to respiratory physio but have no idea how long that wait will be as there is no info online.

It was still dark when I woke up this morning! Summer is fading!

Worth an ask. Worst they can say is no.

Hopefully it won't be long!

It was dark when i woke up too!

Yeah do not have the energy to make that phonecall today though. Perhaps tomorrow. Lot of uncertainty about if it would work makes me reluctant to call because mentals mean I overanalyze everything!

At least October is only 2 months away now. And then I would get seen before winter cold and flu season hits.

You woke up even stupidly earlier than me so I am not surprised XD

That's fair enough. I overanalyze too!

Yep exactly!
And it'll fly by, like most of this year has!

Yep, really annoying! I'd love to sleep in just once!

If it gets better like we hope it's not that long to wait. And if it gets any worse I have to go back to hospital anyway and they might be able to get me pushed up the waiting list. Or at this point I have been in and out so much they might admit me for a day or two to get to the bottom of things and I would get to skip the queue and see a consultant on a ward anyhow. Not that I want to be admitted to hospital but in /out every few days isn't particularly great either!

I can send someone round with a dart gun if you like XD
I am hoping sleep will slowly become more of a thing for me as I come off steroids. But even when not in steroids somedays FND means sleep doesnt really happen. Still would be nice to get a good night sleep even some of the time.

Where's all my thread peops at????

I am borrrrred

Being better is worth waiting a little longer imo!
Idk how you see it though, because it must be annoying af

Dart gun sounds great XD

I've just been to be measured for a bra at M&S. Turns out i was wearing the COMPLETELY wrong band and cup size! Well, my boobs have shrunk quite a bit, so that's why. I have a new one now and it feels way better!

I need new bras, I only have 2 that fit.

Totally fine with virtual (or real!) hugs, and appreciated so thank you Jen.

Yeah you're right Beckie, it wasn't going super well, haha. Hooray for successful bra fitting!

It's really worth getting measured tbh!

How are your days going, tamo and Luce?

Alright thanks Cacoethes. Had hot chocolate with my support worker :)

Hello all.

Oh nice! Love a hot chocolate

Also, i missed my hay delivery.
They're gonna try tomorrow.
Which is fine, i can be in tomorrow.

Of course the minute I go and help put the shopping away everyone turns up XD

It's a bit much now I was ok with waiting when it was relatively stable in between flares but this last two weeks is the longest flare I have with most medical involvement since I was admitted to hospitlal in 2021.And things still arent really under control, just less bad. So now I just want to get seen and try and find the right medication to fix things long term or the reason it keeps flaring. Because it might be a bit of trial and error to find the right meds anyway.

My 2 new bralettes arrived today. Super speedy, the free delivery said arrives within 5 days and I only ordered on Saturday! Which is within 2 days!

Glad you are much comfier now Beckie!

Hugs headed your way then Luce!

Ooh hot chocolate! Was it a good hot chocolate Tamo?

Hi Dawn!

Of course XD

Yeah that makes sense!

Ooh i love it when things arrive early!

Thanks!

Sorry you missed your delivery Cacoethes. I hope it arrives promptly tomorrow.

I hope things improve for you soon lr.

Hi insig, how are you?

I am having a coffee. I was avoiding coffee because it makes my heart rate faster and that's been a bit out of whack but heart rate is calmer today and I have really missed my daily coffee so having a cup with a couple of cookies.

Deliveries arriving early is the best feeling. Unless you are out XD

Thanks!
I don't really have anything i need to go out for tomorrow, i have a MS teams meeting at 2pm but that's it. So it'll be fine

I miss coffee when i don't have it too!

Yes that is true!

Yum, cookies. I don't drink caffeine any more but do like a coffee still.

Day isn't great, but I'm getting by. Had a bit of a run-in with my partner and she's trying to be supportive but she can get kinda bossy and snappy with it.

Sorry about missed delivery Beckie, glad it'll be coming tomorrow instead.

Thanks for hugs Jen, appreciated.

How was the hot chocolate trip Tamo?

Getting by is all we can do sometimes!
Sorry you've had a bit of a run in. Hopefully things will settle down

Thanks! I don't need the hay desperately yet so it's fine

Coffee is so delicious I am savoring this cup.

The cookies however are all gone already! They were the little Maryland choc chip cookies. I have massively cut down on caffeine generally have one coffee and one tea a day and none after dinner.

It can be hard for partners to get it right sometimes, I know mine may always mean well but sometimes make things worse. Hope she cools off and you can have an ok evening together.

Love maryland cookies!

I haven't run into that with L yet, but it's still very early days! I'm sure it will happen!

Yeah it's bound to Beckie, it's a bloody minefield, and doing it long distance is even harder I think. Hope you enjoyed the cookies Jen, pleased you're enjoying the coffee.

I know it will, i think it's literally impossible to have any sort of relationship without run ins!
I'm sure long distance is way harder!

The big thing is how you handle the run in and move on afterwards. Nobodies perfect and we all have disagreements or misunderstandings sometimes.

The cookies were good! That's why they disappeared quickly! Although only had 2 as trying to spread the packet through the week.

I know I just had a coffee but I am considering a nap. I am constantly tired at the moment.

tamobhuuta i am not feeling so good today. But I am better than yesterday. Gonna spend the rest of the day in bed.

Yes exactly!

Nap if you need to jen!

Now debating whether to try and make it to bed or nap right here on the sofa. Might be easier to prop myself up on sofa. But bed is softer. Decisions, decisions.

And a very first world sort of problem XD

It is a bit XD
You need one of those recliner chairs!

The hot chocolate was good thanks Abstract :) we sat outside so we had lots of space from the peoples.

I dozed on the sofa for about an hour. Was in and out of sleep but still mostly restful.

How is everyone else this evening?

Glad you got some rest, Jen.

I'm annoyingly peeing all the time!

Eurgh Lindsay that is not a vibe. Do you think you might have a UTI or something?

I am a little bit short of breath again after my nap but it seems to be resolving after a couple of puffs of inhaler.

We are going to have cooked breakfast for dinner although no eggs as turns out they were super out of date! Going have beans, bacon sausages, mushrooms and Hashbrowns.

Love a cooked breakfast!

I'm back from my weird injection thing and i am sore!
But fine

I'm just drinking lots.

Mmm, cooked breakfast. Enjoy! I eat eggs well past their use by date.

Poor Beckie. Lots of sympathy.

I am looking forward to the cooked breakfast muchly. Just sausages, beans and Hashbrowns last week was epic. And this time I get bacon and mushrooms too!

Make sure you follow the aftercare advice miss Beckie! Hope when swelling goes down it will have helped with thing it was for.

Fair Lindsay. Try not to overhydrate its a thing! Is it hot where you are?

So do I but 5 weeks past the use by date was too far XD

Thanks for the sympathy!
Totally self inflicted though, i chose to do it!
Taken some ibuprofen

I will be following the after care advice!
I desperately want this to work!

You can check if eggs are out of date by putting them in a jug of water. If they stay horizontal, they're ok, if the top points up vertically, they're off.

Actually if it floats its off. If they're vertical then they're still safe to use.

I do the float test usually but I had none of the energy and I don't think they have ever been ok 5 weeks later.

Whatever

Yeah 5 weeks is quite a while!

I just haven't been cooking as much and forgot they were there. I usually I have scrambled eggs for lunch or I make meals with eggs in like egg fried rice. Neither of which are things partner really cooks.

Just haven't had the energy/ capacity to cook

I get that energy to cook thing too. I am like that today.

I love scrambled eggs
I do actually have some eggs, from when i made the cake for L and S
Don't know what to do with them though!

Sorry to hear that Dawn. Hope you can find something simple, low effort and tasty.

I am lucky that most of the time when I cant cook my partner can and then when neither of us can we can afford takeaway.

You had lots of eggs when you were at your mum's. What was your favourite way you ate them there?

Or you could you know have scrambled eggs...

I did!
I mainly had scrambled, or a fried egg sandwich.
Or made brownies.
I would make scrambled eggs but i have no butter or milk!
I wish i could make omelettes but they always end up as scrambled eggs XD

L made me an omelette!

Nice! What kind?

Sounds like it's time for a friend egg sandwich then if you have any bread!

I can sort of make omelettes I have about a 50/50 success fail rate.

Breakfast for dinner went down amazingly. It's nice to havee my appetite back a bit more.

I have no bread. Or anything to use as oil in the frying pan.

Better than me! XD

That's good to hear!

Hmmm poached egg? Maybe on rice or noodles?

Or you could wait until tomorrow and buy a bread roll or two and some kind of oil or pan spray.