Morning guys. I hope your appointment went OK LR.

Morning!
How are you?

I'm ok. Didn't get up til 11. I woke up briefly at 9 but was determined to have a lie in! How's home treating you?

Appointment went well. And have a review booked for in a couple of weeks time to check everything has settled down properly.

Lie ins ftw.

Love a lie in!
My body won't do them though. Very annoying!

It's brilliant being home thanks!

I'm glad the appointment went well jen

I might try a nap now if my body will let me. I am wired but 2 hours sleep is not enough.

Life is complicated by fact water company are fixing a leak just outside our flat. They are using a jackhammer :nono: Thank goodness for noise cancelling headphones.

Anything nice you can do for yourself you couldn't do in the ward Beckie?

I'm glad the appointment went well :)

I had a look on my NHS app. The cardiologist thinks my abnormal heart things may be due to my meds. Now I'm waiting for a letter from my GP telling me this!

2 hours is not enough!

2 hours is certainly not enough!

Ugh that's all you need!

I'm just enjoying being out and about and being home without very loud crazy people about! And being with the boys of course!
I have taekwondo tonight.

Meds can do stuff like that!

Hi everyone.

Noise cancelling headphones can cancel out the noise of a jackhammer? Or just some of it? I'm glad your appointment went well, Jen. I hope you can have a good nap and wake up feeling good.

I wish I could access my notes and test results through an app/online. You are all so high-tech/hi-tech/something.

Are you ok for taekwondo, Beckie?

Hi osc, how are you?

I usually just about function on 6 hours and need nearer 10 to feel at all rested. Alas I fear sleep will be tricky as too wired from a combo of anxiety and med side effects

Hope the heart stuff can all get evened out and changing meds if it has to happen doesn't cause issues Tamo. I have an app for my local hospital that weirdly also show GP blood tests.

Enjoy your freedom Beckie and try not to over do it and have someone call an ambulance on you.

Most of noise is cancelled, I have expensive active noise cancelling ones. Might not work so well outside directly next to them. There is still a vibratey noise but its more of a hum and bearable. Especially with music playing through headphones

In Scotland you might not have apps but at least you get free prescriptions OSC!

I forgot other places don't get free prescriptions, I am very lucky.

Your noise cancelling headphones sound good, Jen. Do you use them a lot?

Heart stuff seems common with antipsychotics. So annoying. I hope it can be sorted out, Tamo.

I'm coming off Risperidone because I have high prolactin levels. I'm only on 2mg now and I still have the high prolactin symptoms.

I don't really know how I am.

Use them a fair amount OSC. Can be quite soothong to block out the world and the sound quality is good too. They were pricy though, £375!, they were my birthday present last year.

I am very slowly coming off Olanzapine because of high prolactin. Although luckily I am not getting symptoms from the high prolactin just abnormal blood results.

I hate those days, do you feel unsettled?

Chuggers in the high street today. Been asked to stop twice. That must be a **** job

I have beats that cancel out noise, but I’ve had them for a while and they’re all strapped together with elastic band. New pair might be on the cards with any birthday money I get, can’t afford them otherwise. Not as expensive as yours Jen but they still set me back £250

I'll be fine for taekwondo.
I'm going to make sure the instructor knows that i need to be eased in. There's a high instructor to student ratio, so it's entirely possible i could be taught alone or in a group of 2 or 3 today. Depends on other people's grades.

I get free prescriptions because of epilepsy. That and the free bus pass are the only good things about it XD

Can you take sleeping tablets jen?

Those are pricy headphones! Get what you pay for i suppose! And i guess they'll last for ages!

Chuggers are best avoided!
Luckily my town is small so we don't really have them here!

I've cleaned out the boys, they are now happily resting as it was obviously SO exhausting for them :tongue2:

I don't think anyone can hate on crisp sandwiches!

I've just popped home on my lunchbreak, I STILL dont have next weeks rota so dont know if any of my appointments can go ahead. We're meant to have a minimum of a month, I don't even have 4 days time!

Whaaat?! That is NOT ok!
Is there anyone you can complain to?
How do they expect you to plan any non work stuff?

Oh we complain all the time. It never makes a difference though.

I'm meant to have in the next two weeks, that I've booked (but may have to cancel, rearrange, or see if I can swap a shift and if not, I can't have my appointment)
- Meeting with my ISVA
- Dentist
- Medical Psych
- Drs appointment (That I had to wait 2 and a half months for, I booked it back in March and this was THE SOONEST I could get, for anything, to see anyone. I'm not picky, I've never seen the same Dr more than once)

Ffs.
I don't even know what to suggest tbh!
Absolutely ridiculous.
Is there no one higher up you can talk to?

:-D No I just can't type for toffee I want to eject the rude passengers so they can no longer ride on the bus!

We don't have an NHS app either but like Scotland we get free prescriptions in Wales.

I don't have any sleeping tablets, Beckie don't think I have ever been prescribed them. And I know often when my asthma is playing up they are reluctant to prescribe me sedating things like diazepam as they can affect your breathing. I've not had access to PRN for years. I probably should have mentioned the 2 hours sleep to nurse but it didn't cross my mind. Was just relieved that things were mostly ok.

I really should try getting some shut eye. Doesn't help lying flat make my breathing worse but I struggle to sleep propped up on pillows.

*Shakes fist at Ahimsa's work* That is really bad is it in your contract that you get a month's notice? You might be able to push back at them legally if so with support from ACAS or a union.

You probably should have mentioned the sleep thing

That sounds so so difficult!
I can't even imagine

Jen has good suggestions!

Is your Olanzapine going to be replaced with something else, Jen? How are you finding the reduction?

If I had sound cancelling headphones I think I'd always listen to music with them because I can imagine the 'deafening' sound would cause me to hear my tinnitus louder.

I've never heard anyone call those people chuggers. If they try to talk to me and I feel too anxious to ignore them I just say 'sorry these things make me anxious' and then walk away.

I love crisp sandwiches. My preference is tomato flavoured crisps. Does anyone put mayo or anything on them? I just put a little bit of olive spread, no sauces.

I hope you enjoy Taekwondo. Beckie. Where do you put your fluffies when you're cleaning their space?

I really hope you can get to your appointments, Ahimsa.

I didn't think. It's kind of normal for me to occassionally not fall asleep until 6/7am due to FND nonsense but usually once I am asleep I get at least 6 hours (which isn't enough but I can just about handle). Today I had to be up to call GP at 8:30am and so got woken by the alarm after 2 hours fitful sleep. Although it was asthma and med side effects keeping me awake so a different reason for not sleeping.

I know the not sleeping is likely to get worse too as steroids give me insomnia as a side effect. I have come to bed and made a pillow nest. Hoping I can get at least a small nap.

Guess if I don't get any more sleep I have to call GP surgery again tomorrow. Cannot be bothered but it's a three day weekend so better sooner than later.

I hope you do get some better sleep and if not you can get through to a GP and sort something out. It might be hard to phone the surgery if you're so tired but please try and do it.

No replacement. Haven't seen a psychiatrist for a med review since 2015. Have been on Olanzapine since 2014... It just been managed by GP to variable effect. Current plan is to stay on lowest dose of Olanzapine unless prolactin stays above X at which point if I still feel I need medication the GP fights CMHT for an alternative plan.

P.s. Jenna let me know if I should move this to somewhere else not sure if I have gone too serious.

Are you on multiple psych meds? Do you have a psychiatrist? I thought you had to have one if you were on multiple psych meds. Surely you should have had a review though.

Oh I am on multiple meds. I should have a psychiatrist. Should have med reviews. But I fell through the gaps.

I moved home after uni and though I was referred to the local CMHT I had my first job and was out of the house 12 hours a day every week day so I ignored referral. Then when moved back to Uni town where I still live now I tried to get back under CMHT there but I didn't meet criteria. GP's are often surprised at the lack of supervision but at least I have a GP now who has said he will advocate for me / fight them should I need it.

I would argue putting feets on seats is rude. Especially in muddy shoesm other people have to sit there after you / may need a seat you are occupying with your feet

Happy Star Wars Day everyone!

Happy Star Wars Day insig!

Skips are my favourite crisps.

I've got to put proper clothes on so I can pick up meds and vote.

Ooooh skips!!

Hi Ahimsa, how's your day going?

Do you think it's time for your GP to stand up for you, Jen?

Beth, you're getting like Jenna just popping in to reply to random things that you like! :laugh: How are you getting on today?

There are no elections in Wales.

No elections here either.

I have a rota. Only for next week. I can’t go to my appointment I booked in March.

How annoying!

I have voted :) now I'm queueing for meds.

That's honestly outrageous beth.
I'm so angry for you!

It is what it is.

They can’t swap my appointment. I’ve waited 8 weeks for it, I may as well wait longer. They don’t have a bookable diary yet but they said it’ll likely be July.

Sorry to hear that, Beth. That's really not fair, it should be easier to get time to go to important appointments.

You are doing ALL the adulting, Tamo!

JULY???

I am not so good today so went for a takeaway. Was cheaper than domino's. Stuffed now.

What takeaway did you get?

A doner wrap, a can of Tango and a garlic bread pizza. Only had the wrap and tango so far though.

I napped! Got bout 3 hours in the end which more than doubles my sleep total to a grand 5 hours for the day. Hope I can sleep tonight

I concur that skips are amazing. But I think I would want potato crisps on a crisps sandwich. I like to add prawn cocktail crisps to a cheese sandwich very satisfying.

Ooh I do that with cheese and onion, and tuna sandwiches