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-   -   The 'I need a distraction' thread. (https://www.recoveryourlife.com/forum/showthread.php?t=243064)

Cacoethes 05-06-2023 11:54 PM

At least choose a decent photo of me for the poster.
Not like a tagged photo. Preferably a selfie that I've taken. Because i put a great deal of thought into those.

But your poster will have to wait until another time I'm afraid, as I am not missing.
Though i did once get reported missing while i was at home. Was just chilling and suddenly, text from the police asking me to call them. Still don't know who did it.

Unbreakable. 06-06-2023 12:51 AM

Reminds me of a time when I was taking a nap and next thing I know the police is almost kicking down my door. Good times.

Cacoethes 06-06-2023 07:18 AM

And the time we were welfare check buddies

Morning everyone

Pi.R^2 06-06-2023 07:37 AM

Right, fine! Everyone send me their favourite jpgs of themselves for use in future missing posters :P That's so funny that you got welfare-checked when you were just chilling at home Beckie!


Cacoethes 06-06-2023 08:20 AM

Was that the time you were attempting to speak german to the authorities in germany?

long road 06-06-2023 08:38 AM


Originally Posted by nonperson (Post 4354146)
Jen! Just came across this post on Facebook that you might enjoy (and may have already seen, it doesn't look new):


What a wonderful duck scale NP. I think I have seen it before but it was lovely to be thought of. I am currently around a 6.

long road 06-06-2023 08:39 AM

Also Good Morning Everyone!

Typical that the day I can sleep until 10am I wake up at 7:30am!

Glad you aren't missing Beckie!

Cacoethes 06-06-2023 08:47 AM

Know that feel!
I wake up stupidly early even when i have nothing to do!

Thanks! Lol
I have too much to do to be missing

How are you?
It's your gp appointment today right?

long road 06-06-2023 08:53 AM

It's sooo annoying!

How was your night of not going missing? Have fun?
What exciting things do you have to do today?

I am not sure how I am yet. Breathing seems alright which is kind of annoying as I don't trust it to stay alright and would rather GP saw the bad bits. GP appointment is today at 12pm.

Cacoethes 06-06-2023 08:59 AM

Was good thanks!
I left earlier than most people because i was exhausted XD
Got home around 11pm i think?

That's always the way with these things!
Like when you're having an EEG and that's literally the only time you WANT to have a seizure so you can see exactly what's going on!

I have gym soon, nails at 3 and glow beats this evening

long road 06-06-2023 09:11 AM

Obviously you need to build your going out stamina back up. Glad you had a good time.

I managed to have a non epileptic seizure during an EEG which is what proved they were non epileptic. Kind of proud of that :p

Will see how the breathing reacts to getting up and doing things to be fair, all I have done so far is get a drink and go to the bathroom.

Is gym with your PT? Any idea what kind of funky nails you are going for this time? Glow Beats sounds really fun, when my body is up for that much exercise without freaking out I shall have to see if there is a class near me.

Cacoethes 06-06-2023 09:16 AM

Getting up at 4:30am and rushing about all day didn't help XD
Though oddly, my feet used to KILL after a shift! When I first started, I could barely walk after a shift, literally! But absolutely nothing yesterday!

That's impressive! At least they found out straight away!
When I first started having them, everyone was going backwards and forwards between PNES and epilepsy. But apparently something goes high in your blood after seizures, so that swayed it!

Don't overdo it though!

It is! I'd find gym on my own boring. I need to be able to talk to people almost constantly XD
It's pride month so they will be black nails with one rainbow nail!

It's honestly so fun! Doesn't even feel like exercise!
Think clubbercise is more widely known, it's the same thing

long road 06-06-2023 09:32 AM

Well good to know your feet can still manage a full shift. Getting up at 4:30am and rushing about all day helps with no things, well apart from getting tired!

I always say it was **** FND and non epileptic seizures happened to me but they started in the best place, while I was already inpatient in hospital and they couldn't discharge me until they knew what was going on!

Me overdo it. :whistling:

I used to play hockey because I would forget I was exercising more easily as I was focused on the game rather than the running. Gym on my own would not work, I tried couch 2 5k for a few weeks and just got sooo bored. Hope it's a good session with PT.

Ooh classy going for just the one rainbow nail.

Well for now I will just have to dance at home but hopefully one day I wil be up to a class.

Cacoethes 06-06-2023 09:35 AM

It's really not! But apparently this is just what i do now

They're both ****, mostly for the same reasons!

Running is absolutely not my thing!


long road 06-06-2023 10:32 AM

So irritating that your body clock trolls you like that. Mines not been great lately but at least it gives me a few more hours than you.

True that.

I don't really understand how running for the sake of running can be anyone's thing, but to each their own.

I have had almond butter toast for breakfast and am trying to decide what to do with all m spare time before my doctor's appointment.

tamobhuuta 06-06-2023 10:56 AM

Morning x

long road 06-06-2023 11:01 AM

Morning Tamo!

How are you today? Looking forward to Doctors later?

tamobhuuta 06-06-2023 11:09 AM

Absolutely. I'm ok. Got up precisely on time :)

long road 06-06-2023 11:11 AM

Good work. Getting up can be very tricky sometimes.

What's the weather like near you? It's a bit of a grey day here

tamobhuuta 06-06-2023 11:23 AM

It's grey here too but apparently it'll brighten up later.

long road 06-06-2023 11:26 AM

It's very grey at the front of my flat, but the sun is starting to peak through the clouds out the back. So perhaps it will brighten up here too. I am enjoying it being a bit cooler though I must say.

tamobhuuta 06-06-2023 11:44 AM

Cool is good, I get to wear my oodie.

long road 06-06-2023 11:50 AM

Oooh those look super snuggly. Alas I overheat very easily these days I could only get away with one in the depths of winter

Cacoethes 06-06-2023 11:57 AM

I have returned!
My PT was feeling especially evil today.
And I've decided the stepper machine is called an evil escalater

It's grey and cold here too!
But apparently is gonna reach 27°c over the weekend!
Too hot for my liking!

Oodies are super snuggly! I love mine!

long road 06-06-2023 12:01 PM

Stepper machine does sound like an evil escalator to me. Hope you can rest for a little bit now before your nail appointment Beckie, sounds like you will need to!

27°C is too hot, unless you are planning to spend all the time outdoors or have an air conditioner. I don't do well with heat at the best of times and I think heat has been contributing to my asthma flaring.

What patterns do you both have on your oodies Tamo and Beckie?

tamobhuuta 06-06-2023 12:07 PM

I have one with llamas and one with what I *think* are sloths.

Time to rest Cacoethes!

What are you up to LR?

Cacoethes 06-06-2023 12:12 PM

And apparently you can do lunges on them...which is even less fun than just stepping....

My nail appointment isn't until 3pm, so I have plenty of time to rest!

It is too hot! Work has air con, could probably just go and hang out there.
Although my house oddly stays pretty cool in summer, unless it reached like 40° like last year.

Mine is alcohol themed! Lol
So i have vodka bottles, martini glasses etc.

tamobhuuta 06-06-2023 12:26 PM

Thank goodness it never reached 40 here! I think 30 was our max. But that was TOO hot.

I checked my oodie, I think my blue one is koalas, not sloths.

Cacoethes 06-06-2023 12:33 PM

It was absolutely ridiculous!
Had to walk the 30 mins to the cmht in it, at midday!
Thought i was gonna pass out!

tamobhuuta 06-06-2023 12:46 PM


Cacoethes 06-06-2023 12:54 PM

Yep! Horrendous!

When is doctors on?

tamobhuuta 06-06-2023 01:09 PM


I'm going to do a wordsearch now and try to do some reading. I want a coffee but my mouth tastes of toothpaste.

long road 06-06-2023 01:15 PM

Ooh two oodies Tamo. Love that the sloths are unclear XD

Alcohol themed is very appropriate Beckie XD

It's already 23°C inside my flat.

Am sat in doctors waiting for my appointment.

Cacoethes 06-06-2023 01:23 PM

Have fun with your wordsearch!

It is! :tongue2:

I was cold. But my oodie has helped!

Good luck jen! Hope they're helpful

long road 06-06-2023 01:25 PM

Stil waiting about for now. But we are only ones left in the waiting room.

Cacoethes 06-06-2023 01:41 PM

Fingers crossed you'll be seen soon!

tamobhuuta 06-06-2023 02:06 PM

I hope you get seen soon LR.

I've done the reading I needed to do for my prayer group next month :)

Cacoethes 06-06-2023 02:11 PM

Well done tamo!

not_so_insig 06-06-2023 02:12 PM

Afternoon all. I have not long woken up. Annoyingly I wanted to be up early today as I need to go to tesco to return an item. But with bus times and walking means i will be hitting the college kids. It's a nightmare on the bus with them and I hate it.

long road 06-06-2023 02:14 PM

I have been seen and am now back home. Just making a fish finger sandwich for lunch.

As things are moving in the right direction no more steroids for now but keep a close eye on things for next few days to see if I deteriorate without them. He is going to get referral all sorted now tests have come through and ask in referral for me to be seen more urgently by hospital if possible. Not changing my day to day meds around because he would rather have the hospital review that. So just a bit of a waiting game really.

tamobhuuta 06-06-2023 02:24 PM

Hi insig. Good luck on the buses.

How do you feel about what the doctor said LR?

Cacoethes 06-06-2023 02:27 PM

Hope you don't have to wait too long jen!

not_so_insig 06-06-2023 02:28 PM

I am not going on the bus today tamobhuuta. Be a bloody nightmare with the college kids. Plus I need a shower as it's very hot here.

long road 06-06-2023 02:44 PM

It was good I have a proper chat about it with doc, I did feel listened to. Don't like that I just have to keep monitoring stuff but it is the easiest way to work out if I need to seek help again. Wish there could be a quicker solution but being under specialists does seem best plan. So mixed but like we have a good plan in place

Cacoethes 06-06-2023 02:48 PM

I guess you can't really do much more than you're already doing!
Hopefully the specialists will be able to come up with some different ideas

long road 06-06-2023 03:09 PM

Pretty much. Right now can only do more if it gets worse! Hopefully specialists can help me get it back under control, I know there is a different kind of inhaler they might get me to try and there are biologics but I don't know if I meet criteria for those.

Cacoethes 06-06-2023 03:14 PM

Fingers crossed they'll be able to find something!
They used to prescribe cigarettes for asthma many years ago. How mental is that??

long road 06-06-2023 03:19 PM

Super mental!!! Someone smoking near me can set my asthma off let alone smoking one myself! I think I heard they prescribed menthol ones because they opened up your airways??

Cacoethes 06-06-2023 03:24 PM

Yeah i heard that too!
Then again, they also used to put cocaine and chloroform in like cold medicine and stuff. It was a wild time for medicine!
I wonder if there's any treatments that we do now that in 100 years, they'll think 'wtf??'
Maybe chemo, because it's pretty much poisoning someone but with less risk than what they're trying to poison

long road 06-06-2023 03:29 PM

I mean cocaine would definitely make you forget about your cold but doesn't seem the best idea XD

Chemo will hopefully be one would be great to find an alternative to posioning people, maybe radiation therapy as well. 'you mean they intentionally irradiated people??' I mean even now it does sound kind of crazy.

I am off to attempt to nap. Hope your nails go well.

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