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Healing vibes gratefully accepted.
How are you doing today Britney? |
Lacuna coil released a new album today so we've been listening to that :-D
Good luck on the nap jen I managed a nap finally! How are you lindsay? |
Good afternoon. Still reading!
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Congrats on your nap Beckie!
I alas have not managed to nap despite trying. Good to see you Tamo. Thinking of you <3 |
Hey tamo!
Hope you're ok Thanks jen Oh no! Hopefully that means you'll get a good sleep |
I love how you called me Britney, Jen! Autocorrect?
I managed to mostly build a new clothes rail, I hate flat pack, I gave up on some of the shelves and hooks but it's functional. What do you think of the new album, Beckie? Have you managed to do anything restful or enjoyable, Jen? How's the lego going? Hope you're doing as ok as you can be, Tamo. |
Don't know if sleep will be good tonight but maybe I will luck out. Steroids dose is still high enough to mess with sleeping.
Autocorrect being a troll. That and probably me spelling Lindsay wrong or maybe combined Beckie and Lindsay in my brain??? as otherwise don't know how it got to Britney! Flat pack can be frustrating at times. Well done with what you managed to get done. As an engineer I am a big fan of building stuff whether that is furniture, Lego, mechanno, k-nex, scaffolding or roads! Not really done anything. Feeling quite low and in pain and very exhausted. I did 2 bags of Lego yesterday, castle is almost finished only 2 bags left. |
How much longer will you be on steroids? Is it a thing for you that you will eventually sleep when your body gets exhausted? Is there something small and nice that you can do?
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So am slowly tapering off the steroids. Should be completely off them by 27th February provided lungs can handle it ok.
I do sleep on steroids just not much, they often leave me tired but wired. I normally struggle to get to sleep anyway but can usually sleep in when needed. With steroids I find it harder than normal to get to sleep and wake up early no matter how tired. Sleep has not been helped last few nights by muscle spasms which have woken me up during night a few times. By middle of next week should be a low enough dose not to make me wake up super early. I had a cup of biscuit tea. Feeling unmotivated to do much of anything. .Partner is cooking us Bolognese for dinner as we have ingredients and he knows it's one of my favourites. |
I'm doing ok thanks guys. Sounds like you're going through it.
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Well done Lindsay!
You did better than I could! L had to build the viv cabinet because I suck at things like that XD Love the new album! We're seeing them again in November and I can't wait. But November is sooo far away! I feel for you jen. You're really going through it! |
I think pretty much all the RYL regulars have had a rougher than ideal start to 2025. Hoping it improves for us all sooner rather than later!
Things have been rather **** for me recently but what can you do just got to keep on keeping on. |
I am going to be optimistic and say it will improve!
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Let's hope your optimism pays off!
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I'm rarely optimistic, so i really hope so!
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Hear hear to an improvement for everyone in 2025.
I don't think I count as a regular any more but I am feeling optimistic for us all right now =) |
Always good to see you np!
Morning everyone |
Morning!
I have just had a shower which is a massive win because I have wanted to have one since Thursday morning but not found energy / motivation before now. It's so nice to be clean!! Am tired now though so rest time for me. How is everyone's days going? |
Yay! Well done!
I am at Cambridge rail again. Rail replacement, so ive had about 9 customers in total. It's 8am-5pm. Alone the whole time. First time opening. It's freezing because of where the shop is. Sandwich delivery was late. I trapped my finger in a cage so I have a huge lump and bruise that I can't feel at all XD So my day isn't going all that well so far. LOLZ |
Sounds boring! Hope when you grab a break you can get a coffee to warm up nobody wants to freeze!
Oh no for your finger! Try and take it carefully! |
Afternoon everyone.
That's great you managed to have a shower, Jen. Hopefully it's a sign of things improving. Are you still feeling unwell, Beckie? Sounds like very difficult circumstances especially if you're still not well. |
Back in bed now. I have built a snuggle nest!
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It is very boring. Trying my best to keep busy!
Doing a lot of standing under the singular working heater. But it doesn't do a lot XD I got a coffee on my first break. Currently on my second break. I get another one because its longer than normal hours. I am still feeling unwell, but not as bad as the last couple of days, thankfully! Though I don't think the freezing cold is going to help XD A snuggle nest sounds awesome! How are you lindsay? |
No wonder the rail shop is short staffed Beckie - no-one wants to freeze! Not too long left of your shift now and then you can get home and warm.
Snuggle nest us awesome I may never leave! |
Yeah, I really don't blame them!
After a brief bin crisis, I am finally home! But still freezing XD |
What makes up your snuggle nest, Jen?
I'm glad you're home now Beckie and I hope you're warming up. Will you have to work there again? I'm not great, my brain is refusing to let anything cheer me up and I also can't be bothered doing anything. |
Hooray for home! Hopefully dinner will help you thaw out Beckie.
My snuggle nest is made up of many pillows, 2 blankets and a duvet and filled with cuddly toy animals all on my bed although a smaller version can be made on sofa as required. |
Thanks lindsay!
L made me a lemsip and a hot water bottle. And i have my oodie on. So I'm getting there! Sorry to hear that lindsay :( I wish I could suggest something helpful! |
That sounds great, Jen! I wish I could do that but I get really anxious about bed things when it's not bedtime and also soft toys are really irritating me right now for some reason.
Hopefully you will soon be all toasty, Beckie. It's ok, my brain is just a huge troll. |
Evening all, just catching up on your lives in a stalker type manner.
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*waves at stalker Tamo* XD
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Morning everyone
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Morning!
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How are you jen?
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Not too bad. Exhausted though, had a long seizure last night, so taking it very slow this morning.
How are you? |
Oh no!
Taking it easy sounds like the best option! I'm ok. Tired despite getting over 10 hours of sleep! We went to the cinema this morning, but S only managed about 30 mins before we had to leave |
Afternoon everyone.
I hope you can have a relaxed day, Jen. The way bodies react to sleep is stupid sometimes! |
I had an extra little nap. Feeling a bit more with it now.
Any further plans for day Beckie? How goes your day Lindsay? |
Afternoon all. It's my birthday on Saturday and I believe that yours is on Thursday Jen. So I won't be around much as I am going to another country on that day.
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It is my birthday on Thursday! I am hoping I will be well enough to go out for lunch on the day.
Hope you enjoy your birthday plans Dawn! |
Thanks Jen. Fingers crossed that you can have your lunch.
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Not been out apart from for medical appointments since 28th January so it could be a bit too big of an ask.
Managed a few hours watching TV on the sofa this afternoon. Just ordered a pizza for an early dinner then think I will head back to bed, exhausted and shaky. FND tremor and spasms acting up. |
I'm glad you got to watch some TV and you're having pizza, Jen. Sorry you're now having to go back to bed. What did you watch on TV?
Hope you enjoy your birthday, Dawn. I'm not enjoying anything at the moment which is annoying. But I managed to do some colouring with Scot Squad on in the background and a bit of reading. |
I watched Gladiators and then Great British Menu both on BBC iPlayer.
Pizza was good. And had a mars bars ice-cream for dessert Have a bit more energy after eating (think taking painkillers also helped) so watching one more episode of Great British Menu. Sorry to hear you are struggling to find enjoyment in things Lindsay. Well done for persevering regardless. |
Morning everyone
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Morning!
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Morning all. I'm up 'early' because I've got a priest visiting at 11am.
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Afternoon both!
How are you? Hope it goes ok with the priest tamo. I am at work. Booo |
I am pretty good thanks. Just found out my PIP has been increased!
Hope all went well with your priest visit Tamo. Boo I work Beckie! What time do you finish today? |
Afternoon everyone.
Hope work goes well, Beckie. Are you at your usual place or the railway station? I hope it was helpful talking with the priest, Tamo. Hope you have a good day. I'm so glad you had a positive PIP outcome, Jen, and that they got back to you fairly quickly. |
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