Hey guys :)

Hi Lillie! How was your day?

Chaos and the fibro is bad but I'm nearly home now. Then just to shower and eat.

How're you lot?

Glad you’re nearly home. Is there anything that helps fibro?

A bath but I dont have one.

Crisis team guy came and said he won't see me because the dr hasn't seen me since Thursday, despite the dr saying today and it being in the notes to go on home leave today.
So crisis team guy has gone.
The staff here think it's really unfair so they are contacting crisis again.
If they say no, I have said I'd like to leave anyway because I'm informal and they said they wouldnt blame me so we shall see!
Just ugh!!!

What a hassle Beckie! I hope something can be sorted soon. I think it's far harder to cope with the waiting time when you know you should be going home than the general being in hospital when you know you're not going home yet. Don't know if I've explained that right.

Are you needing/getting any support Emma for going back to uni?

Lillie, I hope you can find something to relieve your pain at least a bit.

I actually suck at peopling, I only had an appointment with my CPN and then I bumped into one of my friends who ranted at me for 15 minutes and I'm all peopled out. I'm glad I live alone.

It is much harder!
If this had been sorted this morning then it would have been ok!
Now it's too late to get public transport home.
I'm hoping they'll pay for a taxi. They usually do but not sure because.
Am still pestering them!!

Peopling is hard!

People can be difficult lindsay! Least you can chill now right?

Urgh what a pain beckie!!

I had a long shower which did nothing :(

Guess who is going to the midnight release of avengers infinity war :-D

Midnight is bed time! :laugh:

And I won't pretend to know anything about that ?film?

4am the next morning is bedtime

film or no film :-p

EEek midnight is well past my bedtime too!!

Whats the release date?

i'll be seeing it this Wednesday night going into Thursday morning :-D

Jealous zombie!!
Can't wait to see that film!

I am not going home today.
They called duty doc who was very apologetic but said it's just not going to happen.
I could still just go but have no meds or anything so yeah.
Staff actually all feel really bad for me.
They said it would be easier for them if I was shouting and screaming at them but because I'm being so understanding they feel more guilty!! Lol!!
I've come to terms with staying for another night.

i'm so ****ing excited for infinity war :-D that and Deadpool 2 :-D

Zombie, I'm glad you're spending your time off work doing things you enjoy. :)

That's a shame Beckie, do they think you should definitely get home tomorrow?

coco have you been drinking anymore custard today?? :-p

They said definitely tomorrow.
The nurse is going to call the dr tomorrow personally even though she is not in tomorrow!
They are very apologetic.
I have to wait until after 4:30pm for meds though.
Argh!

No custard drinking today :p

have you ever tried the running on custard challenge?? :-p

I just think that's a huge waste of perfectly good custard!!

Waiting for meds is paaaaain!

Running on custard? Is that as obvious as it sounds?

look it up for yourself on youtube :-p

Why is this a thing?!

why not?

Ok, I can't answer that. But is the custard warm or cold?

I honestly don't know, I wonder if it mkes a difference when running on it *ponders*

Sounds like an experiment is needed! How about an RYL running on custard meet?

well it would be an interesting meet :-p

Awesome idea for a meet!!!

I’d attempt to attend such a meet.

Aubergine has been quiet recently. Hope she’s ok.

And Sketchy. =/

sketchbook texted me on Saturday to wish me a happy birthday :-)

Morning everyone

Lorraine is ok just been very tired lately. She's been getting out though. She said that when she's less tired she will get back online.

Glad she's ok

Anyone heard from aubergine?

I'm going on leave for a week!
Seen crisis and just seen dr so things are happening finally!
Have to wait until 4pm for meds though

Glad sketchy is ok.

That’s great Beckie! Well done!

Thanks :)

How are you emma?

That's great news Beckie.

I haven't heard from Aubergine either.

Not too bad thanks. Just trying to motivate myself to shower and get sorted for nephrologist appt tomorrow. Going to ask him if I can have tablets instead of IV chemo. CC is taking me.

How are you?

Are you on your way home yet Beckie?

Good luck for your appointment tomororw Emma

I wish!
Still waiting for meds and HCA who I've known for years and get on really well with is prodding the nurse in charge into paying for a taxi so fingers crossed!
Would take me like 3 hours to get home on public transport and sooo can't be bothered with that.
Especially as I have heavy bags

Thanks.

Fingers crossed! They will normally pay won’t they?

Just waiting for taxi now!
Soooo excited to go home! :-D

Yay!

5char.

Hooray!

I have been out for coffee with my friend. I am being bothered by the voices today and my friend was physically unwell so between the two of us we were a right pair.

Sorry you’re having a rough day. Was it at least nice to see your friend?

Yes it was great seeing her.