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-   -   The 'I need a distraction' thread. (https://www.recoveryourlife.com/forum/showthread.php?t=243064)

Sketchy 28-05-2017 09:15 PM

Haha. Well, the world is your oyster now.

I'm going to have an early night. Too warm to do anything else.

Good night.

Cacoethes 28-05-2017 09:19 PM

Night night. Sleep well!

not_so_insig 28-05-2017 09:50 PM

Evening all. I have been out today during which I went for a walk along a river.

Shy_Bambi 29-05-2017 09:30 AM

Good morning everyone!! I haven't been to sleep yet, I'm running on a slight coffee rush!!

Who had awesome storms last night with thunder and lightening?! Some of that thunder actually shook my room!!

Cacoethes 29-05-2017 11:36 AM

Morning guys!

You should get some sleep bambi!

No storms here!

Driving instructor text at like 1:30am saying we'll have to postpone because his wife went into labour.
So a bit disappointed!

Shy_Bambi 29-05-2017 01:04 PM

No storms? Not sure if thats good or bad for you, I love watching them!!

I'll get some sleep at some point. Not sleeping is bad for my ep, but eh.

I'm sorry to hear about your driving test, I bet you was really pumped up for it too!

chinahorse 29-05-2017 02:53 PM

Oh that sucks beckie but suppose it's exceptional circumstances.

Hooe you've managed tk get some sleep Rebecca.

Cacoethes 29-05-2017 02:54 PM

I love storms too!
It's raining here now and very humid. Would be good to have a storm to clear the air a bit!

Yeah that is true! Lack of sleep is one of my major triggers for seizures!

He's going to call to rearrange when he can. I hope it's soon!
But wife going into labour is a very good reason not to go to work so it's fine!

chinahorse 29-05-2017 04:24 PM

I neeeed the loo!!

The loo is out of use on the train and the train is making weird noises.

Sketchy 29-05-2017 04:24 PM

Good afternoon all.

That's a shame about your driving lesson Beckie.

Sketchy 29-05-2017 04:24 PM

Oh no Lillie. I hope you get to a loo soon.

chinahorse 29-05-2017 04:28 PM

Hi ya :) how be you?

It's about 45 mins to my stop then I'll have to hope Costa or somewhere is open.

Cacoethes 29-05-2017 04:28 PM

Hi Lorraine!

Oh no Lillie! That's the worst :(

Sketchy 29-05-2017 04:30 PM

I'm ok thanks. At my sister's flat again. She's had time off work so I've been spending a lot of time with her.

I hope Costa or something is open.

Cacoethes 29-05-2017 04:31 PM

That's good Lorraine. It's nice to make the most of her time off!

chinahorse 29-05-2017 04:32 PM

That's great that you're getting to spend time together lorraine.

Sketchy 29-05-2017 04:34 PM

Hi Beckie.

What's the weather like where you guys are? It's raining here and much cooler, which is nice since it's been too hot.

chinahorse 29-05-2017 04:35 PM

I've travelled the width of the country and it's all been grey and rainy. Can't comment further as I'm in a train. I like the heat though and wish it'd stayed a bit longer.

Sketchy 29-05-2017 04:37 PM

I think I'm just difficult to please. I moan when it's too cold as well.
I have enjoyed sunny days though.

chinahorse 29-05-2017 04:40 PM

Lol somewhere in the middle for you then!

Cacoethes 29-05-2017 04:42 PM

It's been warm and humid here and we had a bit of rain.
It's quite grey.

Entropy 29-05-2017 06:30 PM

We've had cold and rain all day!

Cacoethes 29-05-2017 06:31 PM

It's just started raining here again!
I hope it clears the air. It's been really humid

Shy_Bambi 29-05-2017 08:43 PM

It's dry here but it's really cloudy which is good because it's cooler. Though my room is still so hot that I need the fan on. I have thermal roof tiles on my ceiling and it keeps all the heat in!

I hope ever one has had a good day!! :D

Cacoethes 29-05-2017 08:50 PM

Hey rebecca!
Have you managed to have a sleep?

Buttons. 29-05-2017 10:32 PM

Hey all! I just nipped out for a cig and it's raining really hard here!

not_so_insig 29-05-2017 11:59 PM

We had some rain but not tons. I am finding that the hot weather is making some of my scars itch like crazy though.

Wonderland. 30-05-2017 09:10 AM

Chamomile lotion might help ease that Dawn.

Morning guys!

not_so_insig 30-05-2017 10:07 AM

I don't have any chamomile lotion or even moisturiser. The nearest I have got is hand cream.

I am having a weird day. Woke up suddenly thinking that the postman was knocking on my door only to find that's there's nobody there. Darn schizophrenia making me hallucinate. Then my hayfever is really bad today because I have itching runny eyes and nose.

Shy_Bambi 30-05-2017 10:37 AM

Good morning everyone, I hope you're all doing okay!
I have a hospital appointment today, not really in the mood to talk about my epilepsy.
The heat has made my scars itchy too, dawn. I put Savlon cream on them and it seems to cool them down a bit and helps.

Wonderland. 30-05-2017 11:26 AM

Hope your appt goes okay Rebecca, be gentle with yourself.

Dawn I hope your day improves!

Cacoethes 30-05-2017 11:52 AM

It might not be schizophrenia dawn. That kind of thing happens to most people once in a while.
I know several family members who get it sometimes!

Hope your appointment goes ok Rebecca

What's everyone got planned for today?

Wonderland. 30-05-2017 12:26 PM

I agree Beckie, I often think my buzzers gone and no one is there.

I've got some grocery shopping to do today and some chores. How about you Beckie?

Shy_Bambi 30-05-2017 12:26 PM

Thank you guys. I really don't like this doctor, she seems to think I don't really have epilepsy, even though I've been having seizures for over 15 years. She keeps asking me questions that make me feel as though I have to prove I have epilepsy, it's horrible. She yelled at me last time (in front of my mum) because I forgot to bring my epilepsy diary. Also denied getting a phone call from us, even though we spoke to her directly. Horrible woman.

Cacoethes 30-05-2017 12:27 PM

Pretty much the same amy! Fun times!

At least tonight is pizza night :-D

That sounds horrible Rebecca.
Could you request a different neurologist? It's your right to be able to choose.
With something as important as this, you need proper help and someone to actually listen!
I've been lucky with my neurologist.
I'm on an epilepsy support page on Facebook and lots of people say they've been accused of either faking seizures or not having 'real seizures or whatever. It must be so frustrating!

Shy_Bambi 30-05-2017 12:38 PM

That's pretty much what she's saying, that they're not 'real' seizures. I never thought about requesting a change, but I don't want to cause even more friction with her, especially if it turns out I can't get another one for some reason. It is really frustrating. I never thought to look on Facebook for a support page, I may do that when I get home, thank you for your advice!
I'm fairly new to Facebook (I have to friends so never had a reason to have it) so I hope I find a good page and not one full of people who are nasty.

Cacoethes 30-05-2017 12:47 PM

I'm not sure so don't quote me on this, but I think there are other ways to get a second opinion rather than asking her directly.
You could go through an advocacy service. They will be able to help you.
I don't see any reason why you wouldn't be able to see a new one, you have a very good reason to want to change neurologist!
But yeah, try the advocacy services. I think it's called PALS

Wonderland. 30-05-2017 12:49 PM

I would have thought you would be able to see someone different Rebecca. Your Epilepsy needs to be taken seriously!

Shy_Bambi 30-05-2017 01:05 PM

Okay, thank you for your advice guys, it means a lot. I'm leaving now to go to the appointment. Wish me luck with getting her to listen :(

Cacoethes 30-05-2017 02:00 PM

Good luck! Let us know how it goes

not_so_insig 30-05-2017 04:05 PM

Afternoon all. I have been for coffee with my friend. Unfortunately I have a problem with next week. I forgot to tell her I will have to change the time and I have no way of contacting her. She smashed up her phone so I don't have a number for her and she's deactivated Facebook (reason why is nothing to do with me) so I can't contact her that way. I don't have her email address so it looks like I will have to let her down which sucks.

Sketchy 30-05-2017 04:05 PM

Afternoon all.

Rebecca she sounds horrible. I hope your appointment goes well and that she listens to you.

How is everyone?

Sketchy 30-05-2017 04:06 PM

That's a shame Dawn.

Cacoethes 30-05-2017 04:08 PM

That's a shame dawn.
Can't be avoided though I suppose.

How are you Lorraine?

not_so_insig 30-05-2017 04:13 PM

I am ok thanks Lorraine. My hayfever is a bit better than this morning. I was a horrible mess.

Sketchy 30-05-2017 04:13 PM

I'm a bit stressed, but in the coffee shop having tea. I have electricians coming tomorrow, which stresses me out and I need to tidy up for them. I'll be tidying this evening but I'm so tired. I only came to the coffee shop because I was passing it to go to the shop, otherwise I'd be tidying just now.

Wonderland. 30-05-2017 04:18 PM

Do you have a home address for her?
If not you could phone up the coffee shop you are planning to meet her in on the day and ask if they can pass on a message to her if she pops in.

Try and de-stress this evening if you can Lorraine!

not_so_insig 30-05-2017 04:18 PM

Oh dear is it anything to do with the issues that you said in your r/v?

not_so_insig 30-05-2017 04:20 PM

Ames I do have her home address so I will write her a letter.

Sketchy 30-05-2017 04:20 PM

They came out and changed the smoke alarm that was causing me problems, but they are coming back to fit another smoke alarm, replace my fuse box and do a check on electrics. At least I no longer have that beeping. I just don't have the energy to tidy up for them. They want me to clear my art area, so they have space.

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