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Old 25-01-2019, 06:57 PM   #201
tiptoes
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Do you think think you could try another fortisip?

Please try to work with them, I doubt they are saying these things for effect.



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Old 25-01-2019, 07:02 PM   #202
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I don't know.
I had a coffee earlier and that's enough for now

Consultant sent me to hospital again.
Just got back.
They did 2 ECGs. Did some weird test to see if the muscles in my legs work (they kind of do) and then got sent back to the ward.
I warned them it was a waste of time!



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Old 25-01-2019, 07:43 PM   #203
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So when you don't eat and drink, your body essentially starts to feed on your organs. One of the first ones is your heart muscle and it weakens your heart. On top of electrolyte imbalances it can be very, very dangerous. I know people who have had heart attacks and other permanent heart damage from not eating. I was lucky in that the damage that I had reversed itself once I ate again. These are very real and serious concerns. I'm not trying to say that to scare you, more so just to say that their reactions and actions sound logical based on the information you are telling us.



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Old 25-01-2019, 08:04 PM   #204
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I am a bit scared tbh.
Especially as my ECG was weird earlier and have had pretty persistent tachycardia.
But I don't know what else to do
I don't know what the plan is



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Old 25-01-2019, 09:27 PM   #205
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Is there a nurse or someone you can ask? Or could you ask your mum? I know you said you didn't want her worrying but now that she's aware of what is going on maybe they told her?



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Old 25-01-2019, 09:56 PM   #206
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No one seems to know what's going on
I'm kind of looking forward to seeing my mum tomorrow but also dreading it because she'll ask about things and I don't want to talk about it.
She is so worried and I want to reassure her but I can't



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Old 28-01-2019, 09:41 AM   #207
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How did your weekend go?
I hope today goes ok.



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Old 28-01-2019, 09:58 AM   #208
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It was ok thanks

Thank you
Im in the waiting room now and I am so so nervous



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Old 30-01-2019, 07:23 PM   #209
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How are you doing now Beckie?



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Old 30-01-2019, 07:56 PM   #210
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Thanks for asking

I think I'm doing better
I am now drinking fluids and the fortisip drinks.
It feels very uncomfortable though and I'm not sure I want to continue with it
But I'll never get home if I don't start drinking and eating
Its hard.
Got my second ECT session tomorrow which I hope makes a difference



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Old 30-01-2019, 08:42 PM   #211
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Glad that you are feeling a bit better and well done for drinking. I hope that the ECT goes well.



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"He who is tired of Weird Al is tired of life." - Homer Simpson
"I hear those voices that will not be drowned"
Sanity is a nasty disease. The world would be a happier place without it. - Rilic
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Old 30-01-2019, 08:53 PM   #212
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I'm really glad you are drinking and having the fortisips. You will definitely feel physically pretty uncomfortable for a while. But it really does wear off in time but only IF YOU KEEP DRINKING. Basically your muscles in your stomach and intestines have weakened, and are not used to being used. So they have to get moving again and readjust. Sort of similar to how if you aren't used to exercising and you start exercising you get sore for a while at first.

The uncomfortable feelings suck and are hard to deal with. Hot water bottles can help if that is a thing they will let you have. I hope ECT goes well for you.



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Old 30-01-2019, 09:14 PM   #213
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Thank you both

I'm tempted to stop drinking again because I feel really awful mentally as well as physically after drinking stuff. It feels like I've had too much even though realistically I haven't.
But I do want to get out of here.

Don't think they'd allow hot water bottles unfortunately.



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Old 30-01-2019, 09:57 PM   #214
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Yea, it sucks and it feels awful both physically and mentally. BUT IT WILL PASS. It's just as I constantly got told when I was in treatment, the only way to make it pass is to keep doing it and get through it. It's a really crappy catch 22 unfortunately.

Are you still on 1:1? I know we weren't allowed hot water bottles but what a nurse did for me was heat up some damp wash clothes in a microwave and then sort of make a wrap that I could use as an alternative.



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Old 31-01-2019, 08:14 AM   #215
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You can use those microwave heat packs in hospital, or at least I could. Ask. If they say yes I can send you one.




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Old 31-01-2019, 09:44 AM   #216
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I am still on 1:1
I don't understand why I'm finding this so hard

They said the microwave heat packs would be fine
So maybe that would help?

Got my second ECT session today.



I'm fine! Totally fine. I don't know why it's coming out all loud and squeaky, 'cause really, I'm fine!


Who else is fine?!?!?


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Old 31-01-2019, 02:15 PM   #217
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It was my second ECT today too. Hope you’re feeling ok after yours x

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Old 31-01-2019, 04:00 PM   #218
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Just a bit of a headache

Hope yours went ok x



I'm fine! Totally fine. I don't know why it's coming out all loud and squeaky, 'cause really, I'm fine!


Who else is fine?!?!?


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Old 31-01-2019, 06:55 PM   #219
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Well done with everything you are trying Beckie. I hope you see continued improvement.





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Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 31-01-2019, 09:15 PM   #220
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Thanks Lindsay

I had a cheese sandwich today
Everyone is making such a massive deal out of it
I am now in a lot of pain probably because food
Im tempted to not eat again because I dont feel good
But I really want to get off 1:1 and go home



I'm fine! Totally fine. I don't know why it's coming out all loud and squeaky, 'cause really, I'm fine!


Who else is fine?!?!?


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