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Old 03-04-2019, 09:32 AM   #81
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Sorry to hear that... I hope it goes ok.

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Old 03-04-2019, 02:23 PM   #82
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I hope you're getting on ok.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-04-2019, 02:23 PM   #83
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it went okay they didn't even bother.



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 03-04-2019, 02:25 PM   #84
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How are you doing now?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-04-2019, 06:49 PM   #85
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I got to the door tooo late seriously are they taking the piss? I have to trasnfer from wherever I;m sitting into the wheelchair in time to answer th epissing door. it takes me time.ims orry but it does



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 03-04-2019, 06:53 PM   #86
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Who was it that didn't give you enough time to get to the door, someone who knows you or doesn't? Would you put a note up near your door or something explaining that you'll need some time to get to the door?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-04-2019, 06:53 PM   #87
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which basically means no support tonight



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 03-04-2019, 06:56 PM   #88
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Quote:
Originally Posted by one_step_closer View Post
Who was it that didn't give you enough time to get to the door, someone who knows you or doesn't? Would you put a note up near your door or something explaining that you'll need some time to get to the door?
there is a note on my door basically it will take me time to get to the door. they should know this or have the key safe number to let themselves in if I'm not fast enough.



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 03-04-2019, 06:56 PM   #89
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They should be more understanding. I'm sorry they left. Is there someone you can phone?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 03-04-2019, 08:02 PM   #90
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Funnily enough when I rang social services someone turned up and said there was a misunderstaing that they come 7 onwards. Good to know.



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 04-04-2019, 06:28 PM   #91
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Ah, so you did get your support yesterday evening then? How are you doing today?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 04-04-2019, 06:56 PM   #92
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Yup but no support this morning to get to group if the taxi driver wasn't exceptionally nice I wouldn;t have made it-he even helped me put my shoes on. Also yesterday night and this morning I couldn't see- I had to rely on listening for my dog's collar when she moved but it made getting down the ramp and into group a lot harder- as my eyes have got a little better (there will always be the optic nerve damage but I can see better now thank God) I think it was a virus that made my eyes screwy as before I went to sleep I was pouring sweat and felt so so ill (and had vomited a lot) but I've just woken back up and apart from feeling a bit weaker than normal I seen to be okay on the eyesight front. Also my immune system is for shit so every illness is going to hit me harder.



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 05-04-2019, 07:04 PM   #93
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Does anyone know how unwell you are right now?





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 06-04-2019, 09:41 PM   #94
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Yes, support workers and a staff member from the place I go to for the support group visited me in hospital and after an endoscopy showed I also have an ulcer in my stomach I left her a message. The hosp gave me a perscription for some stronger meds for my stomach to pick up from the GP so although I'm not sure I'll make it there on Monday as I have group that day and not enough time support wise to do both but I'll make sure I get it Tuesday, and today I've been keeping a little food down which has made me feel way way better.



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 07-04-2019, 12:07 PM   #95
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Please prioritise the things that will be helpful for you. Reach out to people if you need to.





I put it down on paper and then the ghost does not ache so much.

Don't try to calm the storm, calm yourself, the storm will pass.

You didn't come this far just to come this far.


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Old 13-04-2019, 10:53 PM   #96
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So rang Htt as desperate and needed advice re night terrors as am afraid to go to sleep and his repsonse along the lines of 'eeeeer well don't know about night terrors and regards eveything else distract distract dstract as if I hadn't been using distraction to the nth to avoid ringing those aresholes.



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 14-04-2019, 12:21 AM   #97
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Ugh. Do you have your dog? Can she sleep with you? I know when it's bad for me sleeping with my dog in bed sometimes helps because if I wake up panicking and they are okay that makes me feel safer. I also try to do something like play a game right before I go to sleep to distract my head a bit. Sometimes it means I can't sleep until 4 or 5am just because I am so scared, or it means sleeping for an hour or two nap during the day instead. So take whatever sleep you can get whenever it feels safest.



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This is happening, this is part of you.


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Old 14-04-2019, 02:05 AM   #98
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Camden my dog paws at me during night terrors, brings me round so'as to speak. I'm trying to focus on her and her presence but it's tough. I know it's stupid but up until a few months ago I thought nightmares and night terrors were the same thing just wratched up a knotch, now I know they're called night terrors for a reason, I'm 'awake' but the nightmare continues I want to scream but I can't...it's horrible.



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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Old 14-04-2019, 03:12 AM   #99
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It's not stupid! If nobody's ever told you before that they are different, then how would you know? I'm really glad you have your dog. <3



Please do not give me virtual hugs unless you are only using the hug function on threads. Thanks.


You can't always keep it separate.
This is happening, this is part of you.


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Old 14-04-2019, 07:03 AM   #100
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I can't I can't I can't today in church. But I have to keep my own feelings deep deep dowm inside. I need to Hold My Tongue.... (but he is still fucking one whiy is the ONLY FUCKER who hasn't ioragherjlgerj;gnrkljganfjl



'Never forget what you are. The rest of the world will not. Wear it like armor, and it can never be used to hurt you.'

['There is only one thing we say to death. Not today'.']

'We are each our own devil, and we make this world our hell.’ – Oscar Wilde
‘It’s hard to dance with the devil on your back.’ Sydney Carter


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