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Old 23-09-2020, 11:17 AM   #81
one_step_closer
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Join Date: Oct 2004
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I hope all your appointments stay on time and your feel hopeful about the plans.

How are you today?





I put it down on paper and then the ghost does not ache so much.


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Old 23-09-2020, 03:01 PM   #82
tamobhuuta
 
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Thanks osc. I had my phone call with my spiritual director this morning which helped.



with Christ I hang upon the cross

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Old 23-09-2020, 06:03 PM   #83
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My Mind advocate has finished the letter so i just need to drop it off at the CMHT. he said to go back to him if it doesn't get heard because there are other options.



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Old 05-10-2020, 04:13 PM   #84
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My cpn has been insisting for weeks/months that there is nothing they can do medically -
new psych is going to increase my clozapine...



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Old 05-10-2020, 05:00 PM   #85
one_step_closer
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Is that a more acceptable thing for you?





I put it down on paper and then the ghost does not ache so much.


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Old 05-10-2020, 05:02 PM   #86
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Yeah, after all, things can't get worse.



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Old 17-10-2020, 12:04 PM   #87
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I had a seizure yesterday, it's weird, i can't remember anything but apparently that's normal. The paramedic agreed with my mum that it's probably a side effect of clozapine.



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Old 17-10-2020, 12:12 PM   #88
one_step_closer
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How are you feeling now? Does your CPN know what happened?





I put it down on paper and then the ghost does not ache so much.


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Old 17-10-2020, 12:28 PM   #89
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Second attempt at a post...

I spoke to my CPN and he is sorting a lamotrogine increase.

I've never had a seizure before, I'm scared it will happen again.



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Old 19-10-2020, 02:06 AM   #90
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It sounds very scary indeed.
It's good your team is aware and can keep an eye on it.





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Old 19-10-2020, 05:10 PM   #91
tamobhuuta
 
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I'm on 2 regular meds, clozapine and lurasidone. They want to stop my lurasidone. I'm scared of the Organisation, I'm scared of having another seizure.



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Old 19-10-2020, 05:14 PM   #92
one_step_closer
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Have you spoken to anyone about your worries? You don't have to be alone with this.





I put it down on paper and then the ghost does not ache so much.


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Old 19-10-2020, 07:48 PM   #93
tamobhuuta
 
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I told my mum, she says we have to wait and see.

Tomorrow I have a blood test for my clozapine levels. The results effect whether my clozapine stays the same/increases/decreases.



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Old 19-10-2020, 11:42 PM   #94
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It's understandable to worry about having another seizure.
Hopefully it won't happen though.





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Old 20-10-2020, 11:22 AM   #95
one_step_closer
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I hope they can find a dose that will be helpful. How long does it take for your clozapine levels to measured and they get back to about what they're going to do, do you know?





I put it down on paper and then the ghost does not ache so much.


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Old 20-10-2020, 11:49 AM   #96
tamobhuuta
 
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I'm meant to have a blood test today but stupidly i have taken my morning dose so the number will be all wrong. I spoke to my CPN and he said to have the bloods done anyway and just warn the nurse doing it. Mum reckons they'll say to have it another day.



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Old 20-10-2020, 03:45 PM   #97
tamobhuuta
 
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It wasn't a problem :) just the wait for results now.

I'm scared that when I come off lurasidone, the clozapine will make my weight balloon.



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Old 20-10-2020, 04:59 PM   #98
one_step_closer
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Have you mentioned that to anyone?





I put it down on paper and then the ghost does not ache so much.


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Old 20-10-2020, 05:08 PM   #99
tamobhuuta
 
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I told my mum and she reassured me that i probably won't gain weight because I haven't gained weight this time around, but to tell the psychiatrist how i feel.



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Old 20-10-2020, 05:11 PM   #100
one_step_closer
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That sounds like a good idea, people can keep an eye on things.





I put it down on paper and then the ghost does not ache so much.


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