Live Help


Forum Jump
Post New Thread  Reply
Old 02-12-2013, 11:13 PM   #461
Aardbei
Forum Mod
 
Aardbei's Avatar
 
Join Date: Jul 2007
Location: UK
I am currently:

Sorry to intrude on the thread as I don't have a CI but I like to check in to see how you guys are doing :) Conor, my Mum has diabetes and I can't remember whether she's had a doctor's note for her sharps when we've flown although I expect she did. I did just want to say however that if we did get stopped and asked about the needles, all she had to say was that it was insulin and they very quickly let us move on so they tend to be very understanding and not at all scary about that kind of thing!





Aardbei is offline   Reply With Quote
Old 02-12-2013, 11:17 PM   #462
The Stolen One
Caz
 
The Stolen One's Avatar
 
Join Date: Jul 2008
Location: Manchester =]
I am currently:

Ah Marie, I feel for you so much with your wrists. When not at uni the only thing pulling me through days are braceleting and cross stitching and that doesn't mean half as much to me as everything you do does to you. I really really hope they start behaving soon.

It might be good to have some time over Christmas to let it sink in, Sarah. I'm so sorry to hear about your dog, it must be really difficult and make the cfs/me harder to deal with.. Being emotionally runs me down fast. I hope things start to look up soon

Hey Conor I don't have any experience either but fingers crossed someone here has or we can at least help a little by listening to frustrations etc and get some stuff off your chest when needed



There will always be a happy ending. If its not happy then its not yet the end.
Spongebob


The Stolen One is offline   Reply With Quote
Old 03-12-2013, 12:04 PM   #463
sherlock holmes
do you like my potato?
 
sherlock holmes's Avatar
 
Join Date: Mar 2004

Conor I think as long as everything is in the correct packaging with your name on it (the pharmacy sticker) you should be fine, I'd probably get a prescription to carry too or a doctors letter just in case.

Thanks everyone <3



Isn’t it funny how day by day nothing changes but when you look back, everything is different…

you once called your brain a hard drive, well say hello to the virus.


sherlock holmes is offline   Reply With Quote
Old 03-12-2013, 01:13 PM   #464
what_the?
continual crisis
 
what_the?'s Avatar
 
Join Date: Oct 2007
I am currently:

Sorry to intrude as well, and probably repeat advice, but I'll start by saying I hope you're all doing okay!

Conor, I've had type 1 diabetes for 20-odd years and my GP/the hospital have always been great about writing me notes for flying. My last one was scribbled on the back of a prescription! Anyway, the advice is that you should have a medical note, and I stick with that. However, I've only ever been stopped once and that wasn't an issue. Just remember, never put any of your insulin/BM/Glucagon in the hold, speaking from experience, it's very hard to inject frozen Lantus...

If you're having trouble with your BMs have you been offered the DAFNE course? Certainly in the UK they're really pro-it at the moment, and it is really good. It's essentially carb counting and adjusting your insulin that way, rather than sticking to specific doses. I was really sceptical about it, but it does seem to work well for a lot of people. Also, remember that you really haven't been diagnosed for that long, so your body may still be adjusting to the new insulin, and is probably at the stage where your pancreas is just about giving up producing insulin at all!

I hope I'm not too out of turn, but if you have any questions/I can help with anything let me know, and I'll try my best!





"I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel. Make us all feel wonderful. We'll never forget."




what_the? is offline   Reply With Quote
Old 04-12-2013, 12:54 PM   #465
Rodolphus
#Azkafam
 
Rodolphus's Avatar
 
Join Date: Jan 2009
Location: Bellatrix's Lair.
I am currently:

Does anyone find that when their pain levels are high, their brain stops functioning properly?

It's different to brain fog. It's like... It's like my brain has put up a blockage between itself and my body, so that it can't feel as much. Basic functions like knowing when I'm hungry have almost totally disappeared, as well as needing a drink or having to wee. I only know when it's desperate and I'm ravenous, choking or my bladder hurts. My thought function is okay, I don't feel foggy, I don't know how to explain it. I don't like it. I am still feeling a lot of pain, it's like that's all my brain can deal with right now, other functional things don't count. My balance and depth perception are shaky at best, but I'm trying to see the funny side.
Any thoughts/advice/experiences?

I'm going for more keliod scarring treatment today also, the injections leave me with a fair amount of nerve pain for a day or two (but its working so its worth it) & I do have Bollywood Night tonight, which I'm really looking forward to :)

How is everyone?




Now I'll play your ghost as my ace, whenever I'm led astray.
But I am actually good, can't help it if we're tilted.
I'm in my right place, don't be a downer.


Rodolphus is offline   Reply With Quote
Old 04-12-2013, 04:46 PM   #466
Cryptic.
If at first you don't succeed, try try try again.
 
Cryptic.'s Avatar
 
Join Date: Jan 2008
Location: UK, Surrey
I am currently:

Cuddles for all struggling<3

Also, Marie I'm on 300mg Gabapentin tablets, 6 tablets a day, at first, it'll take a few days for your body to adjust, but eventually you will :)
Keep yourself resting and let your body have a relaxing few days, don't overdo it or do too much, you deserve to rest especially when you're struggling.

xx



In a world where you can be anything, be yourself.






Cryptic. is offline   Reply With Quote
Old 04-12-2013, 06:59 PM   #467
Cryptic.
If at first you don't succeed, try try try again.
 
Cryptic.'s Avatar
 
Join Date: Jan 2008
Location: UK, Surrey
I am currently:

I have a question for those who suffer with Fibro.

I have a very close friend who suffers with FM/Fibro, and she is 6 months pregnant.

If anyone knows how to cope with having Fibro as well as being pregnant, it would be really helpful!

If not, don't worry :)


How are we all today?x



In a world where you can be anything, be yourself.






Cryptic. is offline   Reply With Quote
Old 04-12-2013, 08:22 PM   #468
sherlock holmes
do you like my potato?
 
sherlock holmes's Avatar
 
Join Date: Mar 2004

This isn't really related to CI but i feel like i'm going hypomanic and i'm scared because I crash hard afterwards.

But I am also proud of myself because I got the bus to town and walked around a busy shopping centre, bought some things and got the bus back without any diazepam, and I didn't feel anxious at all!



Isn’t it funny how day by day nothing changes but when you look back, everything is different…

you once called your brain a hard drive, well say hello to the virus.


sherlock holmes is offline   Reply With Quote
Old 05-12-2013, 04:01 AM   #469
The War Doctor
Man ist, was man isst
 
The War Doctor's Avatar
 
Join Date: Jul 2007
Location: Gallifrey
I am currently:

Thanks for your advice guys, I plan to get a doctor's note (and/or get my diabetic pass stamped) either today or early next week at the latest. I hope everyone else is doing alright.

The War Doctor is offline   Reply With Quote
Old 05-12-2013, 06:19 AM   #470
a_seething_one
~*~Dawn~*~
 
a_seething_one's Avatar
 
Join Date: Apr 2011
Location: Michigan
I am currently:

Well, hello all... I guess I just noticed this thread, and thought I'd join in. I have numerous chronic illnesses... the worst of all probably are congestive heart failure, FMS, tendonitis, bursitis, arthritis, and sciatica. Oh, and migraines/chronic sinus headaches from chronic sinusitis. So yeah, that's enough about me, and my lovely illnesses.

Rodolphus, yes, I know what you mean about the pain levels, and lack of brain functioning. It's like an extreme disorientation, kind of. I don't know what sort of advice I have, but I've dealt with it.



So your scars fade away/You soaked up the pain/A better person 'cause you lived through those days/And now you know what it's like to prove/You can overcome anything that gets to you/Well it's alright/We're sayin' our goodbyes/To the past and everything that ain't right/We won't waste another day/With all these silly things in our way-Crossfade

Light a candle for the sinners...Set the world on fire...


a_seething_one is offline   Reply With Quote
Old 08-12-2013, 11:58 PM   #471
Rodolphus
#Azkafam
 
Rodolphus's Avatar
 
Join Date: Jan 2009
Location: Bellatrix's Lair.
I am currently:

Hey lovely people <3
How are you? Thank you for the replies to my last post, I'll come back when I'm not painfogged.

I booked my train tickets to see the EDS specialist in January this evening. The nearest one to me, which I have an appointment for, is Sheffield (160+ miles), which is a three train journey. My partner is going with me, and we're staying over the night before and the night of the appointment so that I didn't have to do it all in a day. We're going to try and make an adventure out of it :)

I am exceptionally nervous about the appointment, though. But I'm sure it'll be okay.

How is everyone getting on? X




Now I'll play your ghost as my ace, whenever I'm led astray.
But I am actually good, can't help it if we're tilted.
I'm in my right place, don't be a downer.


Rodolphus is offline   Reply With Quote
Old 10-12-2013, 10:09 PM   #472
LaurenLumos
 
LaurenLumos's Avatar
 
Join Date: Oct 2012
I am currently:

Hi sorry just kinda butting in. Does anyone else here have IBS? And if you do how do you deal with it? I had to go for a three hour car journey today and I was fine in the car until we had to get out. I had a bit of a freak and thought I was going to have an accident right there in the car park.

My psychologist told me to focus on other things but I just cant do it.


Last edited by LaurenLumos : 10-12-2013 at 11:16 PM.


“Never forget what you are, for surely the world will not. Make it your strength. Then it can never be your weakness. Armour yourself in it, and it will never be used to hurt you.”

George R.R. Martin

LaurenLumos is offline   Reply With Quote
Old 10-12-2013, 10:48 PM   #473
sherlock holmes
do you like my potato?
 
sherlock holmes's Avatar
 
Join Date: Mar 2004

Yeah I have IBS. If I'm going on a long car journey I make sure we stop a few times along the way at service stations so I can go to the loo. I also have a loo roll in the car with me and a change of underwear and some baby wipes. I also take an imodium if I think I might not make it through the journey.

Does anyone have any advice/tips for me? I'm going to Hull over new year to see the boyfriend's family. It's about a 4 hour car journey from where we live. We'll be there for about a week, and last time I was there I got incredibly tired and a bit upset. I already said to him I might have to have naps and lie ins etc as my medication makes me extremely tired, and he said that was fine, but I'm still anxious. His nephews are 1 and 6 and very excitable and I want to be able to play with them, but I get overwhelmed very quickly.

Last time every evening we went for a walk, just the 2 of us, and that did help. But any more advice on how I can cope with the tiredness and over stimulation?



Isn’t it funny how day by day nothing changes but when you look back, everything is different…

you once called your brain a hard drive, well say hello to the virus.


sherlock holmes is offline   Reply With Quote
Old 10-12-2013, 11:33 PM   #474
Rodolphus
#Azkafam
 
Rodolphus's Avatar
 
Join Date: Jan 2009
Location: Bellatrix's Lair.
I am currently:

I also have IBS, but manage to control mine most of the time. Main triggers are anxiety and certain foods. Sarah has good advice regarding an 'emergency kit' to put your mind at rest :)

Sarah, the best thing I've found is deep rest periods. I curl up comfortably on in bed, pull the duvet over so it's dark and snuggly and just breathe really deeply and concentrate on that only, for about 30-45 minutes without going to sleep. Sounds odd, but it really helps me.




Now I'll play your ghost as my ace, whenever I'm led astray.
But I am actually good, can't help it if we're tilted.
I'm in my right place, don't be a downer.


Rodolphus is offline   Reply With Quote
Old 10-12-2013, 11:40 PM   #475
LaurenLumos
 
LaurenLumos's Avatar
 
Join Date: Oct 2012
I am currently:

It's just that I can't get myself to go out. I'm too embarrassed by my gas. I will defiantly start taking spare clothes and toilet roll make me more calmer, I hope. I have loperamide which is the same as imodium I think but sometimes it can be a bit ineffective.

I just worry about what people will say. I'm scared they won't like accept it? Probably doesn't make sense. I never tell anyone about it, too embarrassed.



“Never forget what you are, for surely the world will not. Make it your strength. Then it can never be your weakness. Armour yourself in it, and it will never be used to hurt you.”

George R.R. Martin

LaurenLumos is offline   Reply With Quote
Old 10-12-2013, 11:58 PM   #476
The Stolen One
Caz
 
The Stolen One's Avatar
 
Join Date: Jul 2008
Location: Manchester =]
I am currently:

I don't have IBS but for fatigue I deep rest, like Marie. It's actually wierd to have someone describe the same type of rest! Thought it was just me.



There will always be a happy ending. If its not happy then its not yet the end.
Spongebob


The Stolen One is offline   Reply With Quote
Old 11-12-2013, 12:44 AM   #477
Rodolphus
#Azkafam
 
Rodolphus's Avatar
 
Join Date: Jan 2009
Location: Bellatrix's Lair.
I am currently:

Not just you, Caz! Sometimes it's much more helpful than an actual nap. Napping can leave me disorientated.




Now I'll play your ghost as my ace, whenever I'm led astray.
But I am actually good, can't help it if we're tilted.
I'm in my right place, don't be a downer.


Rodolphus is offline   Reply With Quote
Old 11-12-2013, 01:57 AM   #478
The War Doctor
Man ist, was man isst
 
The War Doctor's Avatar
 
Join Date: Jul 2007
Location: Gallifrey
I am currently:

Just an update for anyone who's wondering, yesterday I went to the doctor to stock up on diabeetus supplies for my trip to Ireland and while there I got my pass thingy stamped and signed by the doctor, so hopefully that will get me through airport security without any problems. Also, after adjusting my insulin dosage ever so slightly, my blood sugar seems to be under control now.

The War Doctor is offline   Reply With Quote
Old 11-12-2013, 09:52 AM   #479
Rodolphus
#Azkafam
 
Rodolphus's Avatar
 
Join Date: Jan 2009
Location: Bellatrix's Lair.
I am currently:

I'm glad you got things sorted and your blood sugar is under better control, must make life a bit easier for you :)

I'm so sick of myself complaining about pain, but ****ing ow.

Happy Wednesday :)




Now I'll play your ghost as my ace, whenever I'm led astray.
But I am actually good, can't help it if we're tilted.
I'm in my right place, don't be a downer.


Rodolphus is offline   Reply With Quote
Old 11-12-2013, 10:48 AM   #480
sherlock holmes
do you like my potato?
 
sherlock holmes's Avatar
 
Join Date: Mar 2004

I was just concerned that it's rude to nap/rest when you're a guest in someone elses house, but my boyfriend said everyone would understand.



Isn’t it funny how day by day nothing changes but when you look back, everything is different…

you once called your brain a hard drive, well say hello to the virus.


sherlock holmes is offline   Reply With Quote
Reply


Currently Active Members Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Censor is ON
Forum Jump


Sea Pink Aroma
All times are GMT +1. The time now is 06:38 PM.