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23-09-2020, 11:17 AM
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#81
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The Shadow of the Day
Join Date: Oct 2004
Location: Scotland
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I hope all your appointments stay on time and your feel hopeful about the plans.
How are you today?
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I put it down on paper and then the ghost does not ache so much.
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23-09-2020, 03:01 PM
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#82
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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Thanks osc. I had my phone call with my spiritual director this morning which helped.
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with Christ I hang upon the cross
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23-09-2020, 06:03 PM
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#83
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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My Mind advocate has finished the letter so i just need to drop it off at the CMHT. he said to go back to him if it doesn't get heard because there are other options.
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with Christ I hang upon the cross
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05-10-2020, 04:13 PM
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#84
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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My cpn has been insisting for weeks/months that there is nothing they can do medically -
new psych is going to increase my clozapine...
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with Christ I hang upon the cross
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05-10-2020, 05:00 PM
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#85
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The Shadow of the Day
Join Date: Oct 2004
Location: Scotland
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Is that a more acceptable thing for you?
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I put it down on paper and then the ghost does not ache so much.
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05-10-2020, 05:02 PM
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#86
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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Yeah, after all, things can't get worse.
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with Christ I hang upon the cross
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17-10-2020, 12:04 PM
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#87
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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I had a seizure yesterday, it's weird, i can't remember anything but apparently that's normal. The paramedic agreed with my mum that it's probably a side effect of clozapine.
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with Christ I hang upon the cross
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17-10-2020, 12:12 PM
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#88
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The Shadow of the Day
Join Date: Oct 2004
Location: Scotland
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How are you feeling now? Does your CPN know what happened?
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I put it down on paper and then the ghost does not ache so much.
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17-10-2020, 12:28 PM
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#89
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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Second attempt at a post...
I spoke to my CPN and he is sorting a lamotrogine increase.
I've never had a seizure before, I'm scared it will happen again.
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with Christ I hang upon the cross
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19-10-2020, 02:06 AM
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#90
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Lana.
Join Date: Sep 2007
Location: London
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It sounds very scary indeed.
It's good your team is aware and can keep an eye on it.
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:skull emoji:
"... but me? Me? I am a thousand years old, you can't kill me!"
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19-10-2020, 05:10 PM
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#91
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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I'm on 2 regular meds, clozapine and lurasidone. They want to stop my lurasidone. I'm scared of the Organisation, I'm scared of having another seizure.
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with Christ I hang upon the cross
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19-10-2020, 05:14 PM
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#92
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The Shadow of the Day
Join Date: Oct 2004
Location: Scotland
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Have you spoken to anyone about your worries? You don't have to be alone with this.
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I put it down on paper and then the ghost does not ache so much.
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19-10-2020, 07:48 PM
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#93
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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I told my mum, she says we have to wait and see.
Tomorrow I have a blood test for my clozapine levels. The results effect whether my clozapine stays the same/increases/decreases.
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with Christ I hang upon the cross
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19-10-2020, 11:42 PM
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#94
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Lana.
Join Date: Sep 2007
Location: London
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It's understandable to worry about having another seizure.
Hopefully it won't happen though.
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:skull emoji:
"... but me? Me? I am a thousand years old, you can't kill me!"
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20-10-2020, 11:22 AM
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#95
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The Shadow of the Day
Join Date: Oct 2004
Location: Scotland
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I hope they can find a dose that will be helpful. How long does it take for your clozapine levels to measured and they get back to about what they're going to do, do you know?
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I put it down on paper and then the ghost does not ache so much.
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20-10-2020, 11:49 AM
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#96
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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I'm meant to have a blood test today but stupidly i have taken my morning dose so the number will be all wrong. I spoke to my CPN and he said to have the bloods done anyway and just warn the nurse doing it. Mum reckons they'll say to have it another day.
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with Christ I hang upon the cross
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20-10-2020, 03:45 PM
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#97
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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It wasn't a problem :) just the wait for results now.
I'm scared that when I come off lurasidone, the clozapine will make my weight balloon.
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with Christ I hang upon the cross
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20-10-2020, 04:59 PM
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#98
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The Shadow of the Day
Join Date: Oct 2004
Location: Scotland
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Have you mentioned that to anyone?
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I put it down on paper and then the ghost does not ache so much.
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20-10-2020, 05:08 PM
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#99
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Join Date: Jan 2008
Location: U.K.
I am currently: 
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I told my mum and she reassured me that i probably won't gain weight because I haven't gained weight this time around, but to tell the psychiatrist how i feel.
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with Christ I hang upon the cross
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20-10-2020, 05:11 PM
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#100
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The Shadow of the Day
Join Date: Oct 2004
Location: Scotland
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That sounds like a good idea, people can keep an eye on things.
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I put it down on paper and then the ghost does not ache so much.
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