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Forum: General Chat 06-06-2020, 10:36 PM
Replies: 150
Views: 47,101
Posted By Bear
Hi all!

Hi all!
Forum: General Chat 12-12-2019, 04:44 AM
Replies: 8
Views: 3,087
Posted By Bear
Hi all it’s lovely to see you all! Thank you for...

Hi all it’s lovely to see you all! Thank you for all the replies it’s good to see you all safe. I found a rare photo of me with my bestie without my aspen collar or any tubes or medical stuff...
Forum: General Chat 23-11-2019, 08:50 PM
Replies: 8
Views: 3,087
Posted By Bear
Heart Just checking on you all xx

I know this time of year can be hard for us. I haven’t logged in in a while because I’ve been very sick and am now very physically disabled.
I wanted to check in on you all and make sure you’re...
Forum: General Support and Advice 10-06-2018, 02:08 AM
Replies: 3
Views: 1,173
Posted By Bear
I take it for pain and as a muscle relaxant but...

I take it for pain and as a muscle relaxant but it does help my rls. I take 1mg in the morning and 2mg at night. I find it helps. I still get the odd cramp or spasm. It takes about half an hour to...
Forum: General Support and Advice 01-04-2018, 09:15 AM
Replies: 2
Views: 1,009
Posted By Bear
I did it without anything and it just gave me a...

I did it without anything and it just gave me a sore throat but they wouldn’t give painkillers. Everyone else got tea and toast but because I was waiting for transport I got a glass of lukewarm...
Forum: General Support and Advice 29-03-2018, 10:11 AM
Replies: 2
Views: 1,009
Posted By Bear
Heart Endoscopy

I’m at hospital today having some investigations, has anyone has an endoscopy without sedation? Also the anaesthetic won’t work on me because of one of my conditions, so has anyone had it without the...
Forum: Mental Health Discussion and Support 28-04-2017, 01:11 AM
Replies: 3
Views: 1,075
Posted By Bear
Topiramate, topamax anyone?

Do any of you lovely people have experience of this drug? How did it work out for you and what dose were you on?
thank you! X:blush:
Forum: General Support and Advice 28-04-2017, 01:04 AM
Replies: 18
Views: 1,638
Posted By Bear
Hey chuck. Just seen you have hypermobility, is...

Hey chuck. Just seen you have hypermobility, is there a chance it could be a condition called POTS? That's what I have x
Forum: General Support and Advice 28-04-2017, 01:01 AM
Replies: 23
Views: 2,434
Posted By Bear
Hey hun. I have severe eds and Ms. I'm here if...

Hey hun. I have severe eds and Ms. I'm here if you need me x
Forum: General Chat 05-04-2017, 08:16 AM
Replies: 127
Views: 34,936
Posted By Bear
I've been here a while, but no one knows me!

I've been here a while, but no one knows me!
Forum: General Support and Advice 10-01-2017, 09:01 PM
Replies: 54
Views: 5,300
Posted By Bear
Hi all I'm Lani. I have multiplie sclerosis,...

Hi all I'm Lani.
I have multiplie sclerosis, ehlers danlos syndrome., ME. and several other conditions.
I am constantly in severe pain and cope by living on high doses of fentanyl and oxycodone. It...
Forum: General Support and Advice 18-09-2016, 04:57 PM
Replies: 17
Views: 1,134
Posted By Bear
Apparently they hate conkers! My mum puts some in...

Apparently they hate conkers! My mum puts some in the corners of the room, down the side of the couch, behind curtains etc.
I have no idea how but it seems to work!
Forum: General Support and Advice 10-09-2016, 06:09 AM
Replies: 17
Views: 2,244
Posted By Bear
Is it possible you may have fibromyalgia...

Is it possible you may have fibromyalgia hun?
just that I have something similar and relate to a lot of what you say, it may be worth some research?
Sending calm energy and love x
Forum: Serious Discussion and Advice 26-08-2016, 12:57 AM
Replies: 295
Views: 15,981
Posted By Bear
I know we're not particularly close or whatever,...

I know we're not particularly close or whatever, but if you ever need of I'm here.
Lani x
Forum: First Aid Advice 07-08-2016, 09:35 PM
Replies: 12
Views: 16,117
Posted By Bear
I get a lot of UTIs, it helps to drink a small...

I get a lot of UTIs, it helps to drink a small amount of bicarbonate of soda dissolved in hot water, tastes awful but works!
Forum: General Support and Advice 26-07-2016, 06:04 AM
Replies: 1
Views: 658
Posted By Bear
Heart Looking for spoonies!

Hi all!
I'd really love to make some friends who have chronic illnesses.
I just need to have some people in my life who understand what it's like to be in constant pain, the fatigue, the loneliness,...
Forum: General Support and Advice 08-07-2016, 06:31 AM
Replies: 21
Views: 2,121
Posted By Bear
Hey cocker! Best way to get up a kerb is to do a...

Hey cocker!
Best way to get up a kerb is to do a wheelie, push your chair back while leaning backwards and bounce the casters off the ground, then push them up onto the pavement. Then you need a big...
Forum: Serious Discussion and Advice 08-07-2016, 06:12 AM
Replies: 295
Views: 15,981
Posted By Bear
I'm thinking of you chicken x

I'm thinking of you chicken x
Forum: Mental Health Discussion and Support 05-07-2016, 04:36 AM
Replies: 1
Views: 1,002
Posted By Bear
I really don't know the answer, but I feel like...

I really don't know the answer, but I feel like my last two depots have been weaker! I'm on depixol x
Forum: Serious Discussion and Advice 26-06-2016, 05:06 PM
Replies: 295
Views: 15,981
Posted By Bear
Hey hun, you can get decent chairs from the NHS,...

Hey hun, you can get decent chairs from the NHS, mine cost over £2000 and got it free from them, you just need to be assessed xx
Forum: Mental Health Discussion and Support 10-06-2016, 06:57 AM
Replies: 4
Views: 804
Posted By Bear
Oh that's a bit rubbish, I might have been able...

Oh that's a bit rubbish, I might have been able to help more if you lived over here. As far as I know, it varies state to state with which charities are available.
POTS sucks! I understand what you...
Forum: Mental Health Discussion and Support 10-06-2016, 04:51 AM
Replies: 6
Views: 1,351
Posted By Bear
I'm so glad you're feeling more reassured now,...

I'm so glad you're feeling more reassured now, just wanted to say that just because they've been through medical school, it doesn't mean they have any people skills!
Sending love sweetie x
Forum: Mental Health Discussion and Support 10-06-2016, 04:43 AM
Replies: 4
Views: 804
Posted By Bear
Can I ask which country you're in? If you live in...

Can I ask which country you're in?
If you live in the UK, look up canine partners or dogs for good.
Amongst other conditions, I have POTS so understand your blood pressure issues.
Sending love x
Forum: Serious Discussion and Advice 10-06-2016, 03:58 AM
Replies: 22
Views: 2,692
Posted By Bear
I have great news, they think it's just ibs and...

I have great news, they think it's just ibs and gallstones :-D
And I have two lovely new carers starting work with me the week after next which I'm looking forward to.
I'm going to respite next week...
Forum: Serious Discussion and Advice 08-06-2016, 09:01 AM
Replies: 295
Views: 15,981
Posted By Bear
Sending good vibes xxx

Sending good vibes xxx
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